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Stem cells for Pulmonary Fibrosis

Lung Health | Last Active: Aug 27, 2021 | Replies (40)

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@robtlhughes

Sue,
I appreciate your thoughtful, detailed response. I’d happened across the Mayo piece some time ago, but the "14 questions to ask" was new to me. It’s exceptionally helpful. (I was startled to learn that 90 percent of the fibrosis patients have GERD. I have it big-time.)

I’ll see my pulmonologist a week from Thursday in Asheville where the only thing we mine is tourist dollars. My uncle, a coal miner in West Virginia where I grew up, died of black lung. My family doctor has referred me to the Duke Lung Clinic in case a second opinion is warranted, and it probably will be.

I’ll let you know what develops. Thanks for asking. And thanks for helping get oriented to and get started on whatever’s ahead.
Bob

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Replies to "Sue, I appreciate your thoughtful, detailed response. I’d happened across the Mayo piece some time ago,..."

Bob - You are so welcome. I remember how helpful the people on Connect were when my diagnosis was dropped on me 3 1/2 years ago, by a pulmonologist whose idea of explaining was handing me a one page handout about the drugs he was prescribing. I was lucky he had a good nurse, and that I found Connect - where I learned about options he had never heard of.
Sue