Has anyone experienced internal vibrations?

Posted by redladyjoni @redladyjoni, Nov 26, 2018

I started having the only way I can explain it is internal vibrations. I've had them for 3 months now, I went to t hihe ER and they told me it was anxiety. A doctor diagnosed me at a clinic as having Lyme disease I've started a 21-day prescription of Doxycycline I'm on day 7. I went to a psychiatrist a week ago to get something because of my nerves are just over the brink. He prescribed me Gabapentin and Valium I've only been on them a few days.
Has anyone experienced these internal vibrations?I have them almost 24/7 chest neck stomach from the hips down. I have more lab tests that should be in today, but the doctor's office said that they would not call unless there was some abnormality in the lab work.

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I have had internal chest tremors for 15 years. Eliminated gluten and lactose - no more tremors. When I mess up and eat a piece of cheese, tremors return.

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Profile picture for jlg47 @jlg47

Hi, this is my 1st time on Connect. I’ll introduce myself first and hopefully share with others.
I am a 74 year old female with the usual list of age related medical issues. I have been diagnosed with chronic clinical depression, take my meds. Have been for more years than I can count. My internal vibration issues started approximately 4 or 5 years ago (no particular stress present). I was very tired - laying on my bed and calling down to my husband to ask why the furness was roaring. It was NOT. It has progressed . This is the best way to describe my vibration sensation.
It is a very fine vibration throughout my entire body. It was intermittent and I ignored it as “crazy old lady syndrome “. I have had tinnitus as far back as i can remember. It flared up with a heavy pressure (feeling that my head would blow open) at about the same time. Moving on 3+ years
Neurologist = scans and 2 lumbar punctures no real or pseudo tumor.
ENT = CT scan of inner ear = Superior Semicircular Canal Dehiscence. This does not explain the vibration, but is the closest we’ve come so far. Does this sound familiar to anyone? I have had less than 2 hours sleep in the past 3 days. The vibration, pulsating engine roar and tinnitus have been 24/7 for the last 2 weeks. I am not functioning well at all. if you’re out there
Please help. thank you.

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I have had internal tremors for 15 years. Eliminated gluten and lactose - no more tremors. I have been better for about two years now except when I mess up and eat a piece of cheese, and tremors return.

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Profile picture for bumble81 @bumble81

I have them too. The vibrations/tremor are not dangerous so just know that. My theory is that it is central nervous system related but I am not a doctor.

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Mine resolved by eliminating gluten and lactose

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Profile picture for khc @khc

I have had internal tremors for 15 years. Eliminated gluten and lactose - no more tremors. I have been better for about two years now except when I mess up and eat a piece of cheese, and tremors return.

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Hello @khc, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. Thank you for sharing your experience eliminating gluten and lactose. I found an article on the gluten connection that might be helpful for you and other members with questions.

Movement Disorders Related to Gluten Sensitivity: A Systematic Review: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6115931/

Have you been diagnosed with a gluten sensitivity or celiac disease?

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Profile picture for januaryjane @januaryjane

Anyone heard of internal vibrations or tremors? Ive been experiencing hypnagogic hallucinations for a year so I assumed when I was lying down, these vibrations were related to narcolepsy. But i have them awake, i can move. Just feels like my bed is shaking. I am not diagnosed with any narcolepsy but do suffer from insomnia. I just am finding these little episodes to be weird, but am afraid to tell anyone. I do have raynauds and suffer from neuropathy, at times. I got a lot going on, is this something to worry about?

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Lactose and gluten caused internal chest tremors for me for 15 years. But for two years, no tremors unless I blow my diet.

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Hi. About 3 weeks ago I had some tightness on the left side of my neck into my shoulder. Doctor said it was muscle spasms and gave me a muscle relaxer and paxil for my anxiety. I have never taken paxil. I started experiencing internal tremors a couples days later. I went back to my doctor and she had me stop taking the paxil saying I was having a side effect from it. Two weeks later and I'm still having vibrating in my head and tightness in my eyes. She gave me topamax to help with vibrations but haven't noticed a difference. It's super annoying and scary

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Profile picture for ahannah2021 @ahannah2021

Hi. About 3 weeks ago I had some tightness on the left side of my neck into my shoulder. Doctor said it was muscle spasms and gave me a muscle relaxer and paxil for my anxiety. I have never taken paxil. I started experiencing internal tremors a couples days later. I went back to my doctor and she had me stop taking the paxil saying I was having a side effect from it. Two weeks later and I'm still having vibrating in my head and tightness in my eyes. She gave me topamax to help with vibrations but haven't noticed a difference. It's super annoying and scary

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Hello @ahannah2021, Welcome to Connect. It does sound super annoying and scary to me also and I don't have it. You mentioned that the doctor switched you to topamax after the paxil caused you to have tremors. From what I've heard paxil withdrawal symptoms can last up to a year if you suddenly stop taking the drug.

Paxil withdrawal: Symptoms timeline, and how to cope: https://www.medicalnewstoday.com/articles/paxil-withdrawal-symptoms

Have you mentioned to the doctor you are still having the tremors?

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Profile picture for John, Volunteer Mentor @johnbishop

Hello @ahannah2021, Welcome to Connect. It does sound super annoying and scary to me also and I don't have it. You mentioned that the doctor switched you to topamax after the paxil caused you to have tremors. From what I've heard paxil withdrawal symptoms can last up to a year if you suddenly stop taking the drug.

Paxil withdrawal: Symptoms timeline, and how to cope: https://www.medicalnewstoday.com/articles/paxil-withdrawal-symptoms

Have you mentioned to the doctor you are still having the tremors?

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O great!!!! That doesn't make me feel better. Yes I did let my doctor know about the tremors and she gave me the topamax but to take only at night so during the day I have to deal with the tremors.

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Profile picture for ahannah2021 @ahannah2021

O great!!!! That doesn't make me feel better. Yes I did let my doctor know about the tremors and she gave me the topamax but to take only at night so during the day I have to deal with the tremors.

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Sorry about making you feel worse about it. My thinking is maybe there is some information in the how to cope part that might help. The other thing maybe a pharmacist might know more than your doctor about it is that you were only on paxil for a very short time and I'm not sure that is long enough to be a problem stopping it cold turkey. It might be good if you could pose the question to a pharmacist directly or through your doctor.

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Profile picture for John, Volunteer Mentor @johnbishop

Sorry about making you feel worse about it. My thinking is maybe there is some information in the how to cope part that might help. The other thing maybe a pharmacist might know more than your doctor about it is that you were only on paxil for a very short time and I'm not sure that is long enough to be a problem stopping it cold turkey. It might be good if you could pose the question to a pharmacist directly or through your doctor.

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I'm alittle annoyed because I went into the doctor for stiffness in the left side of my neck, lump in my throat and my anxiety. Walked out with a muscle relaxer and paxil. A few days later had to make a trip to the er cuz I was feeling very wierd I was already vibrating and the tightness on my neck was bothering me. Left the er with Lymphadenitis and fluid in my ears. Took antibiotics for that and finished them that's completely better but still have the vibrating. I went back to the doctor and explained that I still had vibrating and I had tightness around my head almost like a band around my head. She gave me topamax. She explain while at the er my ct scan and blood work came back normal so she says it's side effects from the paxil, another week later and still have the vibrating and the pressure. Hasn't gotten worse nor better. Noticed warm compresses sometimes help and sometimes cold helps and then sometimes neither helps. I'm upset cuz I didn't have this when I went in the first time I want to feel like myself again

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