1. < Neuropathy

COVID vaccines and neuropathy

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

Interested in more discussions like this? Go to the Neuropathy Support Group.

bustrbrwn22 | @bustrbrwn22 | Aug 13, 2021
In reply to @littlenoise "On 2nd round of prednisone. Lower dose this go round, but it's day 3 and have..." + (show)
@littlenoise

On 2nd round of prednisone. Lower dose this go round, but it's day 3 and have major relief! Feet feel almost normal... very reduced tingling, no burning, slight calf tingling, no swelling of feet/calves yesterday after being on my feet all day. Reduced gabapentin for the last 2 days simply because it hasn't been necessary.

This is the day (3) it all fell apart last time, so fingers crossed that it continues to improve instead of going the other direction.

Seeing the podiatrist on Friday, hopefully she's found a neurologist referral of some sort. Will keep in touch with Primary. Still have 2 already paid for chiropractic visits I'll utilize at some point.

Just need to know how to proceed. Is it the vaccine? Is it lower back problems? It is just something due to age (54)?

Apparently prednisone is not the long term answer even though it's helping in the short term. Hopefully, the information that prednisone does SOMETHING to the problem will enlighten someone to what the underlying issue is.

Here's hoping.

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Well I can say with a high degree of certainty that it’s not the COVID vaccine because it never is.

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1 reply
littlenoise | @littlenoise | Aug 13, 2021
In reply to @bustrbrwn22 "Well I can say with a high degree of certainty that it’s not the COVID vaccine..." + (show)
@bustrbrwn22

Well I can say with a high degree of certainty that it’s not the COVID vaccine because it never is.

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What does this mean? Since it's relatively new, how can it "never" be? Seems to me that the side effects, as evidenced in this thread, are still somewhat unknown.

I'm not here to say that the vaccine IS the culprit, but the coincidence deserves some investigation.

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2 replies
janinem | @janinem | Aug 13, 2021
In reply to @joeyd5641 "How is everyone who got a new onset or worsening of neuropathy from the vaccine doing..." + (show)
@joeyd5641

How is everyone who got a new onset or worsening of neuropathy from the vaccine doing now? I seem to be having some let up the last few days , but I am megadosing Alpha Lipoic acid, b12 and Vitalituses Palmitoylethanolamide . These have worked in the past for me also. I recommend for anyone with Neuropathy. I did report my case to VAERS. Let me know if any of you are feeling better after the neuropathy induced by the vaccine. If there are 15 or so of us here, there must be so many more suffering after the shot also. I am glad though to be protected from Covid, but holy cow there should be a warning for the neurological possiblities. Does anyone know anyone who didnt have any previous neuropathy that now has it from the shot? Regards, Joe

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Hi, I know I'm late to the party here but I'm trawling through the internet trying to get answers after my first dose of Pfizer. As far as I'm aware I have no underlying health conditions and no neuropathic events in the past. Within 36 hours of receiving the vaccine I started with a range of strange neuropathic symptoms. 3 weeks on the pins and needles, numbness and pain have gone but I'm left with a mild tremor, a very sensitive mouth, slightly blurred vision and red palms. My doctor has advised me not to get the second dose of Pfizer but mentioned maybe getting another vaccine. I'm quite reluctant without actually knowing what happened with that first dose and whether the effects are lasting

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1 reply
Mentor
Lori, Volunteer Mentor | @loribmt | Aug 13, 2021
In reply to @littlenoise "What does this mean? Since it's relatively new, how can it "never" be? Seems to me..." + (show)
@littlenoise

What does this mean? Since it's relatively new, how can it "never" be? Seems to me that the side effects, as evidenced in this thread, are still somewhat unknown.

I'm not here to say that the vaccine IS the culprit, but the coincidence deserves some investigation.

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Hi @littlenoise You’re spot on that the all side effects from the vaccine and the actual Covid-19 virus are still unknown. Since this is still a new virus with multiple variants continuing to develop, it will be years before we can get clear data. The vaccine is proving to be an incredibly powerful tool in our fight to get this pandemic under control and the data that is available is showing no more side effects for this vaccine than our routine flu vaccinations. It’s just that it’s new and therefore controversial.

I also had some re-emerging neurological symptoms with my first vaccine. After extensive testing with my transplant team and neurologist at Mayo, I was cleared to get my second dose. The threat of actually getting the virus still completely outweighed possible compilations from the vaccine. The 2nd shot went off without a hitch and all my symptoms disappeared in a few weeks.

From reading other posts from @bustrbrwn22 I believe this particular post was an attempt at sarcasm which doesn’t always translate well in a written forum.

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bmum30 | @bmum30 | Aug 13, 2021
In reply to @nance78 "Hi everyone. I got Moderna 1st shot on 27th of May. Experienced tingling in fingerscand face..." + (show)
@nance78

Hi everyone.
I got Moderna 1st shot on 27th of May. Experienced tingling in fingerscand face on same day than tingling in feet, legs and torso the following days. I got a rash on day 8, on the vaccinated arm.. then swollen lymphs nodes. I had 2 days without any tingling this w-e but tingling came back in the face today. I worry about taking 2nd dose. Very scary side effects and annoying no one is listing them

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Hi! I feel like I’m in the same boat.
I got the Pfizer vaccine 4 days ago. Literally hours later, I started experiencing tingling and sensitivity right above my bum that radiates into the lower back. It is still there. The next day I started getting this weird prickling, tingling feeling in all different areas of my body from head to toe.

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2 replies
Moderator
Colleen Young, Connect Director | @colleenyoung | Aug 13, 2021
In reply to @bmum30 "Hi! I feel like I’m in the same boat. I got the Pfizer vaccine 4 days..." + (show)
@bmum30

Hi! I feel like I’m in the same boat.
I got the Pfizer vaccine 4 days ago. Literally hours later, I started experiencing tingling and sensitivity right above my bum that radiates into the lower back. It is still there. The next day I started getting this weird prickling, tingling feeling in all different areas of my body from head to toe.

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@janinem and @bmum30, welcome to Mayo Clinic Connect. As you can see, several people on this forum have reported neuropathy-like symptom following the COVID vaccine. This side effect may or may not have been induced by the vaccine. Anecdotal evidence is extremely important to track and I encourage you to report your side effects to the Vaccine Adverse Event Reporting System (VAERS) https://vaers.hhs.gov/ if you live in the US. For people outside the US, contact your national health authority.

With the delta variant, fully vaccinated is better protection that a single dose.

As you read the stories here, you'll see that some people's side effects actually resolved or improved with the second dose. Bottom line: no two people are exactly alike and you should consult your doctor or local health authority for recommendation on the second dose.

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sdf2000 | @sdf2000 | Aug 14, 2021
In reply to @littlenoise "What does this mean? Since it's relatively new, how can it "never" be? Seems to me..." + (show)
@littlenoise

What does this mean? Since it's relatively new, how can it "never" be? Seems to me that the side effects, as evidenced in this thread, are still somewhat unknown.

I'm not here to say that the vaccine IS the culprit, but the coincidence deserves some investigation.

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eh, I believe that was sarcasm.

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nance78 | @nance78 | Aug 14, 2021
In reply to @janinem "Hi, I know I'm late to the party here but I'm trawling through the internet trying..." + (show)
@janinem

Hi, I know I'm late to the party here but I'm trawling through the internet trying to get answers after my first dose of Pfizer. As far as I'm aware I have no underlying health conditions and no neuropathic events in the past. Within 36 hours of receiving the vaccine I started with a range of strange neuropathic symptoms. 3 weeks on the pins and needles, numbness and pain have gone but I'm left with a mild tremor, a very sensitive mouth, slightly blurred vision and red palms. My doctor has advised me not to get the second dose of Pfizer but mentioned maybe getting another vaccine. I'm quite reluctant without actually knowing what happened with that first dose and whether the effects are lasting

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All the vaccine can create this symptom as we saw on Medscape... you are likely to have even more problems with the others on the market. My doctor and neurologist advised me to wait. A university hospital in Berlin established the reason why some of us have neurological issues and are working on a more passive vaccine where these responsible antigens attaching to our nerve cells would be removed from the vaccine.

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Aug 14, 2021
In reply to @nance78 "All the vaccine can create this symptom as we saw on Medscape... you are likely to..." + (show)
@nance78

All the vaccine can create this symptom as we saw on Medscape... you are likely to have even more problems with the others on the market. My doctor and neurologist advised me to wait. A university hospital in Berlin established the reason why some of us have neurological issues and are working on a more passive vaccine where these responsible antigens attaching to our nerve cells would be removed from the vaccine.

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Nance, can you please provide links to the article from Medscape and the paper from the university hospital in Berlin that you reference in your latest post?

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