Has anyone tried Scrambler Therapy for neuropathy or for pain?

Who can afford that

@greenacres Glad I can help out. Norm Black in Illinois has his own Scrambler company, and does the treatments. He owns Spero Clinic in Illinois, and as far as I know, is the only Scrambler therapy in Illinois. Norm knows many people connected to Scrambler Therapy, and probably can answer your questions and give you guidance. People come from different states to get his treatments. He is a good, honest man, and would be a knowledgeable person for you to talk to. My first 10 treatments of Scrambler treatment helped for about 2 or 3 weeks, but the second group of 10 treatments did nothing. For the first ten treatments, my pain was less than it had been for easily one year. Good luck, Lori

Thank you @lorirenee1! You're so kind to provide all the information regarding things you've tried and your personal experience with this disease. It's nice to have contact with other people who have had similar experiences with this disease. I will contact Norm Black and see if he knows anything about the clinics down here in Florida as we live in Northern Florida. However, if he feels that his treatment might help we would be willing to travel to travel to Illinois and give it a go. My husband would be willing to try almost anything if he thought it might help take away the pain.

@greenacres Something good must come from something bad! If I can help even one person with neuropathy, then there is some purpose to my having this dreadful illness. It was through a patient here at Mayo Connect that I first learned of Benfotiamine. It is a fat soluble form of Vitamin B1 (thiamine). Since the start of taking it, my pain went from about a 9-10, to a 6-7, and there are many times throughout the day, where I have no pain. I literally never heard of Benfotiamine, and it has given me my life back. So if Scrambler therapy helps, I am very happy. I have learned more from Neuropathy patients than all my doctors. God Bless all of us!!!! LoriRenee1

Hello @lorirenee1. That's a nice perspective. The kindness and helpfulness of the members in this group is soemthing positive. I'm sorry that you're pain is often a 9-10. That is remarkable that the supplement can bring ti down to a 6-7 and even more so that at certain times of the day you have no pain! I'm looking into that first. Do you mind my asking only when you have time what brand you use and how much you take? Also, I've read that in a study 600 mg of alpha lipoic acid can help reduce pain in PN. I was wondering if you've experimented with that as well? Thanks again.

@greenacres Hi again, I buy Bestvite Benfotiamine 300mg. on Amazon. I take 2 pills a day, for a total of 600mg. Occasionally, I take 900 mgs., or 3 pills. Within about 2 days of taking it, my pain totally changed, and got way better. It's like a miracle. I had breast cancer 3 years ago, and was left with terrible foot neuropathy. What I think happened to me, after extensive reading about Benfotiamine, is that my breast tumor lowered my thiamine levels, causing neuropathy. It is the only thing that makes sense, as I have had every test imaginable to figure out what caused it, and only taking Benfotiamine lowered my pain. It just makes me think that I must have been low in thiamine, as tumors can lower thiamine levels. I suggest that you do give it a try. No harm in it. Also, I take Alpha Lipoic Acid in the form on NA R-Alpha Lipoic Acid from the company Immunovites, also bought on Amazon. The pills are 600 mg., and I take 2 a day. It is not as clear to me whether this lowered my pain, because I was already in significantly lower pain from the Benfotiamine. But there is such good research on NA R-Alpha Lipoic Acid, that I thought it could not form. You must take this form for the Alpha Lipoic Acid to be best absorbed. Anyway, I never imagined that I would be doing better, but I am. I would suggest to start with the Benfotiamine, for at least a month, and then add the NA R-Alpha Lipoic Acid. Take one at a time to start, so you can see more clearly what it does. I hope that you get some relief. Living with this illness is intensely hard, when it is not controlled. My best to you, LoriRenee1

@lorirenee1 Hi. You're terrific. This information is incredibly helpful and it's encouraging to hear that you got some relief. I'm happy to know that you survived your breast cancer. Both my sisters are also breast cancer survivors. My husband just started on the R-Alpha Lipoic Acid made by Pure formulas but is only starting with 200mg a day and apparently the lowest dosage used in the study to help with pain was 600mg/day. He plans on increasing the dosage slowly. The supplements that I purchased only come in 100mg capsules so next time I'll look into purchasing the Immunovites. I'll take your advice and have him start the Benfotiamine at a different time so he can be more aware of how he's reacting to them and since he's already started with the R-ALA.
Thank you again for providing so much feedback with the different things that you've tried from the Scrambler to the supplements and more. Living in pain is indeed challenging and I wish you continued success with controlling your pain.
One last note, the past week I've been using the Penetrex on my husband on one foot and the Topricin on the other, in the morning and at night, to see if there's a difference in the creams, and both creams provide temporary relief of bringing the discomfort down a couple of notches.
Kindest regards, Michelle

@greenacres Hi Michelle, I am so glad to help you! Like I said, something good must come of something bad. I believe that! Everything I use to help myself, has come from other Neuropathy sufferers, not my doctors. People are just wonderful here. I don't know how I would have managed without them. By the way, I have tried Penetrex and Topricin, and neither helped much. I bought them once, and not again. However, many patients here, swear by them. Thanks for suggesting them! Much appreciated! Kindest regards to you as well. Let me know if you need any other information. LoriRenee1 Lori

Thank you Lori! @lorirenee1

Can you explain what scrambler therapy is?