I pretty much have the same situation. I’m not sure there is a remedy for this. I tried with a caregiver to massage my feet several times but it doesn’t really work.
I’m also experiencing additional symptoms subsequent to coming off Amiodarone a couple f weeks ago. I seem to get tired faster during the day. I don’t know if it’s due to the change of medication to Tiazac XC. I wonder if anyone has or had this.
Hello @1932, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. Interesting question that I suspect depends upon who you ask. What works for one person doesn't necessarily work for someone else. There are several discussions where members have shared what helps them for neuropathy symptoms. Here are a few you might want to browse through to see what others have found helps:
I have scalp itching and skin itching on my left shoulder. I took gabapentin for about ten years, but changed to Pregabalin two years ago. I have gotten steadily worse over these years. Any suggestions from anyone?
It only takes about twenty minutes to start relieving the pain and makes me very productive plus better than any antidepressants I’ve had. Saved my sanity.
I have scalp itching and skin itching on my left shoulder. I took gabapentin for about ten years, but changed to Pregabalin two years ago. I have gotten steadily worse over these years. Any suggestions from anyone?
Hello @jeanieweeniexyz, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. You might be interested in the following discussion on skin itching.
You're welcome @ greenacres.
Once a teacher, always a teacher...a calling. I taught in the public school setting as well as at the college level within the area of exceptional children.
I'm always on the lookout for finding methods and strategies that offer people a way to succeed. I would rather accentuate the positive and acknowledge the negative in order to problem solve. So, I understand the reservations you have had to reach out to others.
Surround yourself with nourishing people and take care of yourself. Encourage your husband to take advantage of the "good" moments and work together as a team--reliable alliances.
Beautifully said. You're words resonate. I imagine that you have clearly left your mark with many as you certainly have with me. Thank you for your kindness @audriana
Beautifully said. You're words resonate. I imagine that you have clearly left your mark with many as you certainly have with me. Thank you for your kindness @audriana
I have Arachnoiditis in the the lower spine (LBP) chronic 24/7 Peripheral Neuropathy very intense . I’ve been everywhere under the sun had surgery SCS spinal cord stimulator implant taking all kinds of meds with no help
Pain never goes away I was mis- diagnosed for years from going to podiatrist 2 Achilles tears in left leg and 4 blood clots later in right leg one causing ambolisim in my lungs from
I injected corticosteroids in the veins
It’s been a hell of a road and still dealing with it to no end of pain
I have been diagnosed with poly-neuropathy due to nerve damage caused by arthritis in my lumbar and sacral regions. I’ve taken gabapentin and lyrica both of which make me too tired to be useful, physical therapy,epidural all to no avail. I am pursuing other avenues such as surgery and various other treatments.I like to exercise quite a bit and have been having difficulty doing so.
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I pretty much have the same situation. I’m not sure there is a remedy for this. I tried with a caregiver to massage my feet several times but it doesn’t really work.
I’m also experiencing additional symptoms subsequent to coming off Amiodarone a couple f weeks ago. I seem to get tired faster during the day. I don’t know if it’s due to the change of medication to Tiazac XC. I wonder if anyone has or had this.
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1 ReactionHello @1932, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. Interesting question that I suspect depends upon who you ask. What works for one person doesn't necessarily work for someone else. There are several discussions where members have shared what helps them for neuropathy symptoms. Here are a few you might want to browse through to see what others have found helps:
-- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
-- Neuropathy Pain at Night: What helps?: https://connect.mayoclinic.org/discussion/night-pain-2/
Are you able to share a little more about your diagnosis and what treatments you have tried?
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1 ReactionI have scalp itching and skin itching on my left shoulder. I took gabapentin for about ten years, but changed to Pregabalin two years ago. I have gotten steadily worse over these years. Any suggestions from anyone?
I get lost in all the posts that are online. What medication are you referring to ?
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1 ReactionHello @jeanieweeniexyz, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. You might be interested in the following discussion on skin itching.
The "itch".....An update about testing and treating.: https://connect.mayoclinic.org/discussion/the-itch-an-update-about-testing-and-treating/
Have you seen a dermatologist for the itching scalp and skin problems?
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2 ReactionsBeautifully said. You're words resonate. I imagine that you have clearly left your mark with many as you certainly have with me. Thank you for your kindness @audriana
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2 Reactions@greenacres
Thank you 😊🙏
You made my day!
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2 ReactionsYes to the 10 the power, the pain is really unbearable sometimes
I have Arachnoiditis in the the lower spine (LBP) chronic 24/7 Peripheral Neuropathy very intense . I’ve been everywhere under the sun had surgery SCS spinal cord stimulator implant taking all kinds of meds with no help
Pain never goes away I was mis- diagnosed for years from going to podiatrist 2 Achilles tears in left leg and 4 blood clots later in right leg one causing ambolisim in my lungs from
I injected corticosteroids in the veins
It’s been a hell of a road and still dealing with it to no end of pain
I have been diagnosed with poly-neuropathy due to nerve damage caused by arthritis in my lumbar and sacral regions. I’ve taken gabapentin and lyrica both of which make me too tired to be useful, physical therapy,epidural all to no avail. I am pursuing other avenues such as surgery and various other treatments.I like to exercise quite a bit and have been having difficulty doing so.