Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@mikaylar

Faithann: I saw an interventional radiologist. He did glue/blood patches in my spine that were useless. Research.

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Blood/patch procedures have been used successfully for a very long time. Unfortunate you did not have a positive outcome. Good luck on finding an answer.

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@johnbishop

Hi Elizabeth @ess77, I used to mix my own essential oils with a coconut oil base. I used Frankincense along with some Lavender and a few other essential oils but I never found much relief as far as the numbness from the neuropathy. I didn't really try it much for my arthritis pain in the knees or hip area. I was using the doctor prescribed lotion with Diclofenac and it really didn't help much either so I had my knee replaced which did help for the one knee and a steroid shot in the right hip (same side as my knee replacement). The steroid shot helped for about a month but it's back to the way it was bothering me at night. So, I just roll to the other side if it wakes me up 🙃. If it starts bothering me when walking, I will have to look into a hip replacement.

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@johnbishop, and all. Hello, John. Interesting to hear your experience with these oils, etc. I don't notice any change in the numbness of my feet and legs either, but it does help reduce my pain levels for a time. I'm getting good results from these unusual sources, and so pleased. but they as temporary. I think I'm finding I do well using the CBD lotion an frankincense and Myrrh balm during the day when I have flare-ups or before bed to help with rest. They happily help me for a time that eases the discomfort. I thank you and Chris for your input and help. You both are true jewels and helping so many with your experiences. Thanks and keep the info coming.

I'm working on my supplements as well, so may write you some questions as I go on this journey. Thanks in advance...blessings, my friend and be well. No pain for you today!
elizabeth

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@ess77

@johnbishop, and all. Hello, John. Interesting to hear your experience with these oils, etc. I don't notice any change in the numbness of my feet and legs either, but it does help reduce my pain levels for a time. I'm getting good results from these unusual sources, and so pleased. but they as temporary. I think I'm finding I do well using the CBD lotion an frankincense and Myrrh balm during the day when I have flare-ups or before bed to help with rest. They happily help me for a time that eases the discomfort. I thank you and Chris for your input and help. You both are true jewels and helping so many with your experiences. Thanks and keep the info coming.

I'm working on my supplements as well, so may write you some questions as I go on this journey. Thanks in advance...blessings, my friend and be well. No pain for you today!
elizabeth

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Did you see my post earlier this morning on supplements? I received a newsletter email from the Foundation for Peripheral Neuropathy that had a great article listing the different supplements and how they help the nerves. It also has some reference at the bottom - https://connect.mayoclinic.org/comment/624993/

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@johnbishop

Did you see my post earlier this morning on supplements? I received a newsletter email from the Foundation for Peripheral Neuropathy that had a great article listing the different supplements and how they help the nerves. It also has some reference at the bottom - https://connect.mayoclinic.org/comment/624993/

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@johnbishop, Great. I haven't seen that post yet. I'll get to that link and learn more. You are a treasure. bless you, elizabeth

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@ess77

@johnbishop, Great. I haven't seen that post yet. I'll get to that link and learn more. You are a treasure. bless you, elizabeth

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@johnbishop et al...Thank you, John. I just finished reading the link you posted. Very interesting. I will be adding several supplements from this article.
Do you take them? Have you noticed any improvement or change?
I'm already taking D, B complex, Magnesium, and give myself a B12 shot every 2weeks, as I have serious B and D deficiencies. My grandfather died from pernicious anemia, so it may a DNA thing. My son has same only worse than I.
We'll see what happens...where do you get most of your supplements?
Also, can you add anything re the acids, etc?

Have a lovely day...blessed in every way.

Elizabeth

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@ess77

@cerwin, @johnbishop tried any topical lotions? I have a lot of pain in my spine, mostly now lumbar and cervical, with worsening stenosis. Degenerative arthritis makes life interesting, never knowing how I'm going to feel, what and how badly I'll be hurting and it changes pretty fast, too. My back is tough. Very limiting, movement and activity are limited.

I heard a couple of folks on one of these group sites on Connect talking about using CBD cream. I bought some Garden of Life online, the intensive recovery lotion. I use CBD/THC tincture and it helps me a lot with anxiety and pain, helps me sleep quite well. So, I tried the lotion. The results were quite shocking. I get very fast relief from this lotion, almost total for a bit , then it gradually come back. Doesn't keep the pain at bay very long, but sure does give me some relief .

I also used Frankincense and Myrrh in coconut oil. It's a balm, that's all that's in it and it's from The Wise Men, online from Walmart or Amazon. I love the stuff. It's a strange consistency. hardens into a balm, melts on your fingers and in heat. use it either liquid form or balm. I love the fragrance, light and quite pleasant It seems to have healing powers that actually relive the back pain and It it wonderful on my feet and legs for neuropathy pain, tingling, etc. Also, both help my hands, they look and feel better and the arthritis in my hands/fingers/wrist is much less, much improved.

I'm frankly amazed at both these products. they work. Help me, relieve much of my pain. Maybe they'll help give you some relief as well. I hope so.
Blessings, elizabeth

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Thanks for lotion info. I use a roll on called STOPAIN that works better and lasts longer than Biofreeze or Cryoderm. Not costly.

Tried CBD OIL and CBD gummies - saw no effect from either. 😞

Sent from my iPhone

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@ess77

@johnbishop et al...Thank you, John. I just finished reading the link you posted. Very interesting. I will be adding several supplements from this article.
Do you take them? Have you noticed any improvement or change?
I'm already taking D, B complex, Magnesium, and give myself a B12 shot every 2weeks, as I have serious B and D deficiencies. My grandfather died from pernicious anemia, so it may a DNA thing. My son has same only worse than I.
We'll see what happens...where do you get most of your supplements?
Also, can you add anything re the acids, etc?

Have a lovely day...blessed in every way.

Elizabeth

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@ess77, The Protocol 525 that I take has most of the ones that were in the article. Here's what's listed on the website for the Protocol 525
--- "Na-RALA 1200 mg. Magnesium 400 mg. B12 Methylcobalamin 8000 mcg. Methylated Folate (5-MTHF) 100 mcg. Omega-3 Fish Oil 1000 mg. (EPA 330 mg. DHA 220 mg). D3 2500 IU (62.5 mcg). Acetyl L-Carnitine 1000 mg. Vitamin K (as K2) 200 mcg. Thiamin (B1) 50 mg. Riboflavin (B2) 50 mg. Niacin (B3) 20 mg. Biotin (B7) 20,000 mcg. Organic HSO 1.5 oz." -- https://theprotocol525.com/faq/

I also take Doctor's Best Curcumin Phytosome with Meriva 500 mg and Qunol Mega Ubiquinol CoQ10 100mg daily along with the protocol which I get from Amazon or Costco. I feel like the protocol has helped my feet quite a bit but that's just me. The Curcumin (Turmeric) I think helps with inflammation and the Ubiquinol CoQ10 hopefully is helping my heart health. I've discussed them with my previous doctor who didn't have any issues with them but haven't had a discussion with my new doctor yet.

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@johnbishop

@ess77, The Protocol 525 that I take has most of the ones that were in the article. Here's what's listed on the website for the Protocol 525
--- "Na-RALA 1200 mg. Magnesium 400 mg. B12 Methylcobalamin 8000 mcg. Methylated Folate (5-MTHF) 100 mcg. Omega-3 Fish Oil 1000 mg. (EPA 330 mg. DHA 220 mg). D3 2500 IU (62.5 mcg). Acetyl L-Carnitine 1000 mg. Vitamin K (as K2) 200 mcg. Thiamin (B1) 50 mg. Riboflavin (B2) 50 mg. Niacin (B3) 20 mg. Biotin (B7) 20,000 mcg. Organic HSO 1.5 oz." -- https://theprotocol525.com/faq/

I also take Doctor's Best Curcumin Phytosome with Meriva 500 mg and Qunol Mega Ubiquinol CoQ10 100mg daily along with the protocol which I get from Amazon or Costco. I feel like the protocol has helped my feet quite a bit but that's just me. The Curcumin (Turmeric) I think helps with inflammation and the Ubiquinol CoQ10 hopefully is helping my heart health. I've discussed them with my previous doctor who didn't have any issues with them but haven't had a discussion with my new doctor yet.

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@johnbishop and others.
Thanks, my friend. I'll run some of this by my new rheumatologist since I've got some new rather serious autoimmune issues and infections. I betcha' he'll give me the go ahead, and I will. I know Curcumin will help with inflammation, but with my esophagus and intestinal stuff, I gave my new bottle to my son and will begin it when get the olk. Then. I'll be sooooo healthy!
Be well. elizabeth

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@johnbishop

Hi Cathy @mcd123, Have you heard about Myofascial Release Therapy (MFR)? There is a discussion on the topic here that you might find helpful.

Myofascial Release Therapy (MFR) for treating compression and pain: https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

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I talked to my PT therapist about this. It is main stream and practical theory but not for everyone. Therapist says it is for the facia which is more on the surface and does not help any issues with the deep tissues. She says it is not for me and did deep tissue work which helped greatly with pain between spine and hip at L-5 s-1.

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@mcd123

Did rehab work for you? If so I what way.

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Hello @mcd123, welcome to Connect. Thank you for joining the conversation about pain rehabilitation at the Mayo Clinic. You ask a great question, and my answer is a resounding, yes, rehab worked for me.

Mayo's Pain Rehab Center (PRC) set me up for success by helping me to look differently at the way I see, respond, and live with chronic pain, in the following ways:

1. A physical therapy (PT) plan designed to gradually help recondition my deconditioned body, a cardio routine in the form of walking and/or use of a therapeutic recumbent bike, and a morning stretch routine that gently works each joint from jaw to toe. I maintain this PT plan at home.

2. Cognitive behavioral therapy (CBT) sessions revealed the science of how the brain responds to chronic pain and the cognitive errors it makes. I learned how to catch and correct these errors. I learned coping mechanisms and tools for better emotional and behavioral stability including; self care, distraction, humor, forgiveness, grace, perspective, pause, etc...

3. Occupational therapy (OT) taught me how to use modification and moderation in every day life skills in order to achieve the best possible outcome for my body. Training in the use of proper ergonomics was very helpful, as was learning about proper nutrition and what feeds into pain verses helping it.

4. Gradually weaned off opiates, and other non-medically necessary medications, which only enhanced my pain.

5. Learned how to properly breath, calm and relax my body via bio- feedback sessions.

6. Schedule, schedule, schedule. The importance of scheduling my days as to hold myself accountable and apply all of the things I learned.

7. Developed a "difficult day" plan.

I hope my answer gives you insight as to how PRC has helped me live to the best of my abilities with chronic pain and symptoms.

What is your impression? Do you think Mayo PRC would be helpful to your situation?

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