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Chronic Myeloid Leukemia (CML)

Blood Cancers & Disorders | Last Active: Aug 10, 2023 | Replies (33)

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@loribmt

Oh my gosh, gurl… You’ve been through the wringer. AML’s generally the challenging alphabet grouping of the Leukemia Club! CML is supposed to be the easy one (tongue in cheek…there IS no easy one). What you’ve gone through over the past 20 years is anything but timid!
The chemo overdosing sounds horrific. It’s not pleasant anytime but to be on it and not being monitored, no matter the financial status, is reprehensible! I’m really sorry you had to go through all of that but wow, you certainly came out on top of this incredible challenge.

There certainly is nothing like a second chance at life. It’s something I’ll never take for granted. Not that I did the first time around but we get complacent and don’t quite always appreciate every day. My story is lengthy as well. If you look at my @loribmt link you’ll find my bio and postings so I won’t type it again.
But I truly know and understand your glee at possibly getting off the meds! AND to have made it 20 years, defying the actuarial tables. Sorta feels like a super power, doesn’t it? Giggle. I came out the other side feeling pretty invincible; healthy, strong~mentally and physically and an advocate for surviving and thriving after AML and bone marrow transplants!

It’s a pleasure to have you on board and I know your experiences, along with your positive and inspiring comments will help a lot of members along the way.
Are there any other groups that have piqued your interest?

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Replies to "Oh my gosh, gurl… You’ve been through the wringer. AML’s generally the challenging alphabet grouping of..."

Hi Lori! Thank you for your kindness and wow! What a welcome! I'm actually eager to help anyone. I've recently been diagnosed with prediabetes, since 2017. Trying to lose weight is a nightmare come true. But yeah. My eldest daughter was diagnosed with Type 1 diabetes at the tender age of 2 and half. She's 20 and struggles with this horrible disease. And currently fighting to keep her eye sight. She underwent vitrectomy surgery on her left eye back in July this year and she's waiting to have surgery on the other eye.

Personally, I would be climbing the walls. She's hardly complained. Her father and I try to support her as much as we can.

My husband has ulcerative colitis. He copes with it as best he can.

So. Yeah. We have 2 other children that are pretty healthy. 💖

Back to your message. AML is scary. I've always worried that mine would end up like that. I mean. I've never done anything special. No clicking my heels. No magic spells.😆. I will most definitely read your bio. And I guess I should post mine in that section too. Saves rewriting a mini novel.😂