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Internal Tremors associated w/ pneumothorax or PH

Posted by ibw295 @ibw295, Aug 6, 2021

Has anyone experienced internal tremors coincidental with the onset of a hydropneumothorax and/or chronic pulmonary hypertension (WHO 3 or 5)?

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Amanda Burnett | @amandaa | Aug 7, 2021

Hi @ibw295. I wanted to welcome you to Mayo Clinic Connect. While I am not aware of a link between internal tremors and pneumothorax or pulmonary hypertension, there may be something with a little research.

In the meantime, would you mind sharing a little bit of your story? What are you currently experiencing? How long has this been going on?

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ibw295 | @ibw295 | Aug 7, 2021

Tks Amanda- It is my wife. She has moderate/severe PH (WHO 3 or 5) & PLCH. On 02 presently 24/7. Diagnosed with small hydropneumothorax which with O2 therapy seems to be getting smaller. Had multiple CTs for lungs/abdomen, blood work & thyroid tests& revealed nothing new to explain tremors which she 1st experienced around onset of pneumothorax in legs & arms (no hands or feet), abdominal area (laterally belly button & below), & with temporary blankness in head. Lasts no more than 1 min, but with regular frequency. Mostly at rest. Has rode stationary bike slowly w/o episode. Had it standing still, but waiting to see if gets it while mobile. No neurological issues in family or with her previously. No PD, MS or essential tremors. Came out of nowhere & can't explain it.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Aug 10, 2021
In reply to @ibw295 "Tks Amanda- It is my wife. She has moderate/severe PH (WHO 3 or 5) & PLCH...." + (show)
@ibw295

Tks Amanda- It is my wife. She has moderate/severe PH (WHO 3 or 5) & PLCH. On 02 presently 24/7. Diagnosed with small hydropneumothorax which with O2 therapy seems to be getting smaller. Had multiple CTs for lungs/abdomen, blood work & thyroid tests& revealed nothing new to explain tremors which she 1st experienced around onset of pneumothorax in legs & arms (no hands or feet), abdominal area (laterally belly button & below), & with temporary blankness in head. Lasts no more than 1 min, but with regular frequency. Mostly at rest. Has rode stationary bike slowly w/o episode. Had it standing still, but waiting to see if gets it while mobile. No neurological issues in family or with her previously. No PD, MS or essential tremors. Came out of nowhere & can't explain it.

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Hi @ibw295, I assume your wife is in the care of a pulmonologist. What does the specialist say about the development of tremors? Has she seen a neurologist?

REPLY
ibw295 | @ibw295 | Aug 10, 2021

Yes my wife has seen and been in the care of a pulmonologist for decades and is seeing her cardio doc tomorrow. Was in ER last wk for battery of tests that showed nothing save for reduction in size of pneumothorax which is positive. Have not seen neurologist yet, although internal tremors came on suddenly with no prior neuro history for her or her family; only occurring when not mobile; no hands or feet involvement; no thyroid issues or general likelihoo of adrenaline surge. Have seen others with similar and having nothing showing with MRI of brain/spine etc. re peripheral nerves. Not much work being done in this area although people have described similar symptoms for years. Seems like a lot of silo thinking. Frustrating.

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