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Living with Neuropathy - Welcome to the group
Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
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I found a couple of products called hemp-aid But not from Canada. Would you mind doing an online search for your specific product and giving us the URL? Thank you!
@polywog, I can share the link @iampatient mentioned - https://sativagroup.ca/hemp-aid-massage-pain-spray/
I am sorry but I tried to give you the website name but Mayo Clinic has refused the comment from new members for scam purposes.
I can send a photo and tell you it is available at sativagroup.com
I can tell you more if I message you personally but this is the best I can do through Mayo Clinic protection to their members.
Hi @polywog, I shared the link for you in the post above yours. You should be able to post links in a few days. New members are not allowed to post links for a few days to prevent spammers from joining and posting advertisements which is not allowed. Here's the post where I shared your link for you - https://connect.mayoclinic.org/comment/623929/
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1 ReactionJAMA has published a recent article/study on the use of opioids in the treatment of chronic pain. It runs contrary to what is the current practice of many doctors for using opioids to treat chronic pain and criticizing the CDC guidance for creating the situation of doctors inappropriately weaning people of off opioids, which actually leads to greater illegal opioid consumption and suicide.
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1 ReactionI mostly just lurk on this thread, but I am very curious about this comment because of my husband with chronic bone pain. Can you further clarify this, or post a link?
@kenc, The only recent JAMA article I could find on the use of opioids for chronic pain is from Dec 2018. Is this the one?
Opioids for Chronic Noncancer Pain - A Systematic Review and Meta-analysis: https://jamanetwork.com/journals/jama/fullarticle/2718795
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1 ReactionGeez, John you are quick! Lol
I had read this one before, thank you for looking because I thought maybe I missed something. My husband has cancer pain, but if there was new info about opioids and chronic care, I was very interested.
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1 ReactionThis is a JAMA article from Jan 7, 2021, I wonder if this might be the one....found using Google Scholar - https://scholar.google.com
Frequency of and Factors Associated With Nonmedical Opioid Use Behavior Among Patients With Cancer Receiving Opioids for Cancer Pain: https://jamanetwork.com/journals/jamaoncology/article-abstract/2774522
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1 ReactionHi, Thank you, I apologize if this has been asked before—I’m not sure how to navigate this site.
Twenty-eight years ago I had symptoms of MS which included extreme fatigue, paresthesias running down my spine to my feet whenever I bent my neck towards my chest balance issues, and very painful neuropathy in the thumb, index finger and middle finger of my right hand. MRI only showed two plaques on right C-Spine, but I was told there needed to be three plaques for a definite diagnosis. Within about a year symptoms gradually disappeared other than some lingering coordination issues that cleared up within a couple years.
Fast forward to March of this year— I had my second Covid vaccine. Two weeks later I developed neuropathy in both feet and my hands.More so in my feet. MRI shows another plaque on my left C—Spine. EMG on my legs shows nerve damage in a nerve running along my right tibia. Nothing showed in my arms or left leg,
My neurologist said he believes it’s the way my immune system reacted to the Covid vaccine and not a side effect of the vaccine itself.
At my last appointment the doctor ordered some type of antibody tests which came back normal. I’m not even sure what they were supposed to rule out or diagnose. Would you know?
He put me on Gabepetine but it caused my ankles to swell and I had blood in my urine twice and was put on antibiotics proactively as a UTI was suspected but nothing grew when cultured. I think the blood had something to do with Gabepentine.
My doctor switched me to a low dose of Cymbalta at night which is when I have the most issues with my feet.
So, my question is—is there any evidence that the Covid vaccine can cause neuropathy? I honestly am a bit afraid it could be MS, is it just a coincidence that symptoms started after second vaccine?
Sorry, I know this is long. My doctor didn’t notify me of the lab results, I got an email that I had test results available and logged into my chart to get them. My doctor didn’t have me schedule a follow up. Do you think I should get a second opinion? Do I just live with this? I’m hoping it will disappear like it did 28 years ago.
Thank you for listening. I look forward to hearing from you