Anyone had a problem with neuropathy after receiving the vaccine?

I am 46 and had sudden, persistent neuropathy approximately 2 weeks after receiving Moderna. That was 3 months ago and I still have it. Some days I have patchy numbness, other days I have intense electric pain in my arms and legs.

When the numbness started in my arms and legs, my doctors were concerned that I had Guillain Barre. That has since been ruled out. My blood work shows elevated Anti-MAG Antibodies and while my large nerves are healthy (confirmed with EMG), it seems my small fiber nerves have lost the ability to feel hot, cold and pain correctly. I am currently seeing 3 Neurologists, 2 at leading teaching hospitals. The current theory is that I am having ANS issues that are impacting my small fiber peripheral nerves. They have not been able to rule out the vaccine as the cause. Moderna, VAERS, and the CDC have an adverse event case file for me.

Oh, sorry to say, I think we all do!
I had a contractor today ask me if I ever had to work in the heat wearing a mask - I asked if refinishing woodwork in 90 heat in an unairconditioned garage counted and he said no. I might have gotten a little testy with him.

The more contagious Delta variant has set us all back on our heels - I hope the new studies being done will determine whether or not we can pass it on if we are vaccinated. As for us, we're back in masks because our little grands and their cousins can't get vaccinated yet.
Sue

Sorry to hear that you too had a reaction to the Moderna vaccine. I too had the same symptoms after the Moderna vaccine with burning in arms and legs. Just had a follow up with my neurologist. He is pretty certain that it is the vaccine that caused my symptoms. Did not suggest anything other than Neurontin. He just said that it will get better on its own. Just wondering if your neurologist suggest any other treatment to speed the healing?

Good morning all. I have autonomic SFN and am wondering if anyone else had the J&J vaccine. It wasn't my first choice but I made the first appointment I could and that's what they had.
I read yesterday that San Francisco is now offering booster shots of Pfizer or Moderna to immunocompromised persons who had J&J and whose doctors (apparently an increasing number) are asking for booster shots.
Has anyone's doctor suggested getting a booster shot whichever original vaccine you had?

Hello @jeanmmurph and welcome to Mayo Clinic Connect. I am sorry to hear that you are going through this.

Fortunately, @sam90 noticed similarities in their experience and has reached out to connect with you and ask some questions of you as well.

How are you dealing with your symptoms?

Deleted and moved to correct thread. Sorry.

I am working with my PCP and a team of 3 neurologists. Because we haven’t been able to determine the exact process at play, but labs and exams are showing there is an issue, we are conservatively treating this as an inflammatory response using OTC drugs with histamine 1 and 2 receptors alternating Excedrin and Naproxen for pain relief. It hasn’t resolved the symptoms but it seems to have stabilized them for the most part so I am not getting any worse while we continue to run tests and labs to determine the etiology. Current thoughts are that I may be experiencing some level of Autonomic Nervous System dysfunction and a full ANS work up is scheduled for late August.

I'm happy to see that you are actively pursuing a good diagnosis and the correct treatment.
Please be sure to let us know what you learn from the testing, and when the symptoms resolve. It has been a topic of many questions and concerns the past few months. It,is wonderful that you have doctors who are not dismissing your concerns.
Sue

Ugh ... this has happened to me. I had Pfeizer. One week after my first vaccine the neuropathy started in both legs CONSTANTLY and sometimes in my arms. I also have pain in my neck and left side of head daily. I am having a brain MRI next week and nerve testing September 1st because that's the soonest I can get in. I have ankylosing spondylitis (an autoimmune condition of the joints) so I was afraid to get the vaccine because the CDC had no guidance for that disease and how my body would respond. My rheumatologist would not advise either way. I'm so angry I'm in so much pain. I had very random neuropathy pain before the vaccine ... but it was always just very occasional and only from my hip to my knee on my right side (same side as my bad hip) . This is both legs, from my toes to my hips. Tingling. Numb. Nerve pain. I'm wondering about Guilienne Barra because of the neck pain as well. I guess that's another symptom. What are AntiMAG antibodies? I'm calling my PCP on Monday to try to get in with him to do some bloodwork to help figure this out. I regret getting this vaccine and I will never get another booster. I'm angry. I hope we all get relief soon.

Also wanted to ask ... how did you get cases started? VAERS was very confusing to me. I will search the other sites and report mine as well.