(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

@imeehaigt, Imee, DARN and Phooey too! I was SO excited to see your site .. BUT as you all know .. I always do my "Due Diligence" ..by putting in the word "review and the name of item or company" .. so I googled "REVIEWS GLOBAL HEALTH SERVICES BRANDMEDICINES.COM". See what I came up with .. sound like BUYER BEWARE! ESPECIALLY with any medical item we mut be SOOOO careful! Katherine
http://brandmedicines.com/index.php?main_page=product_info&products_id=659
REVIEWS GLOBAL HEALTH SERVICES BRANDMEDICINES.COM
https://mgreviews.net/brandmedicines-com-review-a-substandard-pharmacy-with-overpriced-medications/
According to Scamadvisor, Brand Medicines e-store is only 46 percent trustworthy. Because the trust level is even less than half, the website is not recommended at all. It was also said by Scamadvisor that the location of brandmedicines is Bulgaria which is a high-risk country. Generally speaking, the reputation of Brand Medicines e-store did not seem to be positive.

According to LegitScript, Brand Medicines is a rogue pharmacy that has failed to provide verification of itself. Therefore, it is not safe to use. By analyzing the results provided by two scam catching websites, it becomes clear that Brand Medicines does not qualify as a trustable pharmacy and it should not be tried out without getting any further information.

Conclusion Brandmedicines.com is a sheer disappointment. The drugs store lacks in almost every aspect. There is not much information about the exact location or authenticity of the company. The customer reviews are positive but are limited to the official website of the store only. Several scams detecting websites have rendered it as a rogue website that is running from a high-risk area. The drugs offered here at Brand Medicines are extremely costly, and most of the people can’t afford to buy them. Moreover, the company failed to impress me in terms of discounts as well. Hence, I would give 1 out of 5 to Brand Medicines and would never recommend it to anyone for buying drugs..

@windwalker, Terri .. you Drug Dealer you! I'll be visiting you in prison yet! Yes, it IS sold in France! What I do is buy a years supply .. remove it from the boxes .. and place in the MIDDLE of all my clothes in my checked baggage .. so far have not had a problem! BUT See the below! Hugs! Katherine
https://www.fda.gov/aboutfda/transparency/basics/ucm194904.htm
FDA, however, has a policy explaining that it typically does not object to personal imports of drugs that FDA has not approved under certain circumstances, including the following situation:

The drug is for use for a serious condition for which effective treatment is not available in the United States;
There is no commercialization or promotion of the drug to U.S. residents;
The drug is considered not to represent an unreasonable risk;
The individual importing the drug verifies in writing that it is for his or her own use, and provides contact information for the doctor providing treatment or shows the product is for the continuation of treatment begun in a foreign country; and
Generally, not more than a 3-month supply of the drug is imported.

@tdrell, Terri, OK .. then just WHAT is your "thick mucus " coming from?? Did they evaluate that?? BUT drinking lots of water if we can is really good for our kidneys if we are able to! Plus flushes any meds out of our bodies! Thanks for the info! Hugs! Katherine

Boomer, this is JUST me .. but I prefer the Time Release 75mg Ambroxal Musosolvan that I can get when I can walk right into a pharmacy I know I can trust .. I search until I can get it .. so it stays in my body ! Just me. If the day comes when I have no other option .. who knows! Katherine

Aww Im glad you researhed it, I used to have drug store I still have my license but im not sure how much it will cost if it will be shipped via fedex I will let you know once I visit manila and maybe I can buy for you and shipped it via fedex or if I have relatives travelling to US that they can just send it to you.

@jula73, Jula .. I am assuming that is your first name .. PLEASE correct me if I am not correct! I am going to answer you on our Main MAC page because I want you to get LOTS of support from our wonderful Community of caring people! You said: I am a 73-year-old female with a recent diagnosis of MAC along with a history of 34 years of severe rheumatoid arthritis. I also have osteoporosis, osteoarthritis, GERD and a neuromuscular disease called CMT (Charcot Marie Tooth Disease). I also live with scoliosis which can be one of the symptoms of CMT and for which I had corrective surgery 11 years ago. My MAC diagnosis came about a month ago. I am not on treatment yet except for an inhaler. I have been reading many of the messages posted here and am learning quite a bit. One thing I have not noticed is mention of loss of voice or raspy voice. My voice has gotten raspy in the past when I have had sinus infections. I do not believe I have sinus trouble presently but my voice has been getting worse since the beginning of this year. I am trying to drink extra fluids but I am beginning to worry about losing my voice totally. I'm looking for suggestions. I am going to be scheduled for a bronchoscopy sometimes soon. I am a former LPN who worked on a post op surgical floor, in nursing homes and for many years as an occupational health nurse.
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Jula, I am REALLY glad you found us! Welcome! It sounds like you have REALLY been through the wringer with all your health issues .. some that seem to go hand and hand with MAC. MANY of our Group have RA and GERD. I am hoping someone will jump in on the " loss of voice or raspy voice".

You may be new to MAC .. but trust me .. we have ALL been on this journey .. all of us at a different point .. but all on this shared journey .. we are here to help you .. support you in any way we can. We have "been there .. done that". Know how scary it is in the beginning .. BUT have come through that time .. KNOW there is a light at the end of the tunnel. Know what that light is? Knowledge! Knowledge is POWER! Knowledge is learning to advocate for yourself. Knowledge is TAKING BACK your power over your health care! How do you do that? By reading through the past pages of our Forum .. JUST like you seem to be doing! CONTINUE to do that .. read the Connect Forum to educate yourself to our shared MAC disease?! Yes, of course you will! Then as you read .. feel free to come back with ALL your questions .. we are here for you EVERY step of the way. We know where you are right now .. how you feel .. how tough it is .. BUT we also know where you are going .. AND how you are going to get there!! BECAUSE we HAVE DONE IT!! We will walk this walk with you .. just keep coming back with your questions ,... concerns .. cares. We will be here. Sending you a hug in this tough time! Katherine

Hi Jula: When I had bad gerd, with hiatal hernia, my voice got raspy also. May be the acid in your throat. i stopped eating at night, and went low fat and it is controlled now. Also, sleep on left side a lot. xo

@imeehaigt, Imee, I REALLY question if drugs would get over the border with all the drug trafficking!! AND if it would be worth it for your FAMILY or us!! It might seem legit and simple to us .. BUT just think of the consequences!! Too scary to me frankly. You just get YOUR supply when you go home .. EACH of us be responsible for our OWN supply of . DO NOT get ANYONE in trouble trying to be helpful! Per Mama Katherine! Hugs to all! Katherine

@unicorn .. Christa Good information .. thank you! I also find I cough less when I sleep on my left side. Hug! Katherine

Katemn....great question....where does my mucus come from if not an active pulmonary NTM infection. I assume a combination from
-chronic allergicq rhinorrhea....when pulmonologist at NJH was doing a laryngoscopy on my nose he noted and put it in the written summary "there was a copious amount of mucopurulent material present thru out" i already use steroid nose sprays as well as antihistamine nasal sprays as well as oral ones.
-esophagram I had over a year ago showed when i eat the food does not enter into the stomach at the normal speed.....it sits a long time....i notice more mucus coughed up after eating.
- i have allergies.
The above is my interpretation?...tdrell