Hello @freedom05 and @sundance. Forgive me for the dual response. I'm struck by each of you, and your struggles with chronic symptoms, such as pain and sleep disturbances, due to fibromyalgia.
Sundance, I read in your bio that "you never give up". I love that because neither do I.
Freedom05, you most definitely are not lazy, because anyone who consciously has concern for such, is typically not a lazy person.
A little about me...in my search for proper diagnosis of my chronic situations, I was Dr. hopping and swore fibro must be next on my list. The rheumatologist said that I had mirroring symptoms, but not actually fibro. A couple of years later, by process of elimination, and the failure of multiple treatments, meds, and tests, Central Sensitization Syndrome (CSS) became the answer.
Last October, I graduated Mayo Clinic's Pain Rehabilitation Center (PRC). It was life changing. What brought me there was that I refused to give up, like the both of you. I was fed up with opiates which increased my pain and symptoms, fed up with my body deconditioning, fed up with lack of sleep and my reclining chair being my bed for over 3 years, fed up with dependence on doctors to treat my chronic pain verses myself, and just plain fed up with not being present.
Did you know Mayo PRC treats a multitude of chronic pain issues, including fibromyalgia? I'm wondering if either of you folks might consider looking into this amazing program as an option?
Here is a link to learn more. You will find patient testimonials as well.
https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691
I will be curious to know what you think. Do you mind getting back to me with any questions, comments, or concerns you may have?
Wow. I had no idea. I cannot get any opiates period. The strongest sis Ultram which helps some. I don’t think my rheumatologist is much on treating fibro tbh.
I have 3 other autoimmune disorders with one being a new diagnosis this past Tuesday.
So it’s multiple specialists etc and going through the figuring out what’s happening.
I’ll check out the link above.