Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Sue, I understand the dangers of "chucking the lot" but I also do not have the resources to be able to travel to a teaching hospital or Mayo Clinic. I have to rely on the physicians in my area. It is frustrating to say the least when you not only have to be your own advocate to get care but also do the research because even though they all list my conditions as being part of the practice you find that their knowledge is not up to research data level. I understand my diagnosis is a no cure but symptom control situation. I am just saying that there has to be a better way then constantly ingesting all the chemicals that wreck havoc on your body with no return of function or an improvement to how one feels. There are certain medications I know I can never go off but I feel at least a majority of them why not try a medication holiday to see if baseline has changed or improved.
Devonsnana

Thank you I would like the join the RA group.

You are in the right place @adlttl123! All you have to do is ask your questions or post your comment in the box below!

Do you have anything specific you’d like to know?

Hi @adlttl123, I see you found the RA discussion which is where you typed your post (Rheumatoid Arthritis (RA) - Introduce yourself and meet others). You should now receive email notifications when other members post in this discussion. To stop email notifications for a discussion you no longer want to receive, just scroll to the top and click the three dots (...) at the bottom right of the discussion and select Mute this discussion.

Since you mentioned Rheumatoid Arthritis, you may also be interested in the following discussion:
-- Rheumatoid arthritis questions: https://connect.mayoclinic.org/discussion/rheumatoid-arthritis-questions/

Have you started any treatments for RA?

Hi! I am Peach and have rheumatoid and psoriatic arthritis and pancytopenia, among about seven other health issues (diabetes 2, hypothyroidism, A Fib, gloucoma, Sjogrens, and more. My god, after typing this I am forgetting what I want to say (Possibly dementia?) Ah it is good to throw in some humor. What I will type in next is (to me) quite important for all to know. Here goes: Because of my PsA (Psoriatic arthritis) the nails on my right hand are peeling, mostly gone and revealing the nail bed. (Painful). This has been for over ten years. ANYWAY HERE GOS THE IMPORTANT MESSAGE: After getting over sepsis the infectious disease doctor placed me on HYDROXYCHLORIQUIN. And after a few months the nails are almost fully grown back. Also I am out of the wheelchair; quite a bit of the inflammation is gone and am walking very carefully. I do not expect this to last to long but: I am not a doctor but I think this information should be shared. Who knows? Good news should be shared. Love to all Peach

I’m glad you feeling better are you following any diet plan to help with inflammation

I have always followed the proper diet plans but of to no avail. However now along with the hydroxichloriquin I am also taking powdered tumeric with honey (mixed together). You get used to the taste when you see the swelling and pains go away somewhat. Anything is better than nothing. I know this probably will not last but I am enjoying it now. Love to all. Peach

I have ra and have been taking it for about 12 years. I am wondering if anyone else is taking humera and have any issues with it.

Hello @lottiest, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. @cindyrnc, @guener, and @jewel8888 have discussed Humira in another discussion and may be able to share their experience with you.

Are you able to share what kind of issues you are having with Humira and if you have discussed them with your doctor or rheumatologist?

Hey, @peach414144 Nice to hear from you again! Sounds like things are more positive for you. How long have you been on the hydroxychloroquin?