Pancreatic Cancer Group: Introduce yourself and connect with others

Hi @dugancarol,and welcome to Mayo Clinic Connect. I moved your post over to the group that you originally posted to so we can get you connected with others that are going through similar situations. A lot of times, if your markers are going up, it means the treatment may not be working yet.
How long have you been doing your treatment?

I have had 3 so I was kind of worried

I would most definitely bring this up with your physician.
@ryanmary3341 was waiting on follow up testing to check how treatment was working. I'd also like to bring back @dotmoto, @skkirby, and @trp to share with you also.
Other than your marker going up, are you having any adverse reactions to the treatment?

I have mentioned it to my doctor and plan to again. I have not had any adverse reactions just some neuropathy in my fingers.

In reaction to my feethurting, my doctor said to stop taking the Xeloda and get a foot cream with 20o/o urea in it. Couldn't find it walmart so I came home and iced it down. Don't know what else I can do, if any of your followers has any suggestion, let me know!

Hi.
I am Kyle from A2 Michigan.
I was diagnosed a year ago.
Since then I’ve had 9 Folfirinox chemo treatments followed by an attempted and aborted Whipple surgery because of vein involvement. I then had radiation treatments.
I am currently at Mayo Clinic to get a second opinion whether or not surgery is possible.

Hi Kyle, welcome. I'm tagging a few other members who have been to Mayo Clinic for pancreatic cancer treatment like @marvinjsturing @mayojoe7 @kjrita @buckslayer @chemobile @maryvallis512 @susan2018 @colorafo19 and others. They can answer questions you may have about Mayo Clinic and more.

Kyle are you at Mayo Clinic right now? May I ask which location?

@kyaeger I think it is a good idea to get a second opinion at Mayo. The doctors and the surgeons there are some of the best in the world. My Whipple was done 7 years ago at Mayo in Rochester. I know that they have developed procedures in recent years that enable them to do surgery even in very complex situations. Please keep us informed about what the doctors there tell you. I pray that they will be able to help you.

Yes. At the time of your response I was at St. Mary’s campus waiting to have a laparoscopic procedure. It was my 3rd day at Mayo Clinic.
I should add that Dr. Truty would do a Total Pancreatectomy. I would be interested in others experience with this and coming from outside to have this surgery done at Mayo.
Thank you Colleen

Carol, you might be interested in this related discussion:
- CA 19-9 and pancreatic cancer: What do the numbers mean? https://connect.mayoclinic.org/discussion/ca-19-9/

Have you talked to your oncologist in the meantime about what the rising numbers mean for you?