Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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Profile picture for Sue, Volunteer Mentor @sueinmn

Sorry to hear prednisone wasn't a quick cure for you, but hopefully it calmed the nerves enough to let healing begin. Will you to let your doctor know if full symptoms return? Sometimes a low dose (like 10 mg/day) is used for a longer time.

@dhamil - My doctor and I have settled on a slightly different solution than the Medrol dose packs. For inflammatory flares, we generally do 40mg of prednisone for 7 days, and if the symptoms have lessened, 20 mg for 7 more days, then stop. If not, we consult on a longer course of treatment. For exacerbations in my lungs, it is 5 days of 40mg prednisone and 5 days of 20mg, if it doesn't resolve, we consult.

Sue

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Thanks.

Yeah. I'll send him a portal message after I've finished the course so I can provide a complete report and see what he suggests.

I'm not giving up the fight!

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I was using some CBD cream for arthritic knees for a while. The results weren't drastic enough for me to use it on the regular. I hadn't even thought to try it for this. I'll have to give it a whirl.

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Profile picture for littlenoise @littlenoise

Thanks.

Yeah. I'll send him a portal message after I've finished the course so I can provide a complete report and see what he suggests.

I'm not giving up the fight!

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Great idea. I love having the info on my patient portal so I can refer back to it, and see exact dates, etc.
Sue

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Profile picture for minnesotadave @minnesotadave

Can anyone tell me if any data now exists as to which brand of Covid vaccine is most likely to cause neuropathy symptoms or make existing ones worse?

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Hi. Personally I have been waiting for approval of a traditional vaccine. NovaVAX phase 3 clinical trial results came out at the end of June. Dr Mobeen Syed Analyzed the results in a YouTube video which was very informative. Here is the trial data From new England journal of medicine
https://www.nejm.org/doi/full/10.1056/NEJMoa2107659

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Profile picture for polywog @polywog

Hi. Personally I have been waiting for approval of a traditional vaccine. NovaVAX phase 3 clinical trial results came out at the end of June. Dr Mobeen Syed Analyzed the results in a YouTube video which was very informative. Here is the trial data From new England journal of medicine
https://www.nejm.org/doi/full/10.1056/NEJMoa2107659

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Thank you for the link. Once again, this shows the effectiveness of the vaccine, and the rarity of significant adverse reactions. The numbers reported in the article look very similar to those reported in the other 3 vaccine trials. I'll look for those articles when my time permits.
Sue

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Profile picture for Sue, Volunteer Mentor @sueinmn

Thank you for the update. I have chronic inflammation, experienced a huge flare with the Pfizer vaccine, and had the same experience - prednisone calmed it down.
Sue

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@sueinmn could you share how long after vaccine you took prednisone? I’ve seen several people refer to taking prednisone to calm down the immune response. My neurologist also offered it to me, for my 2nd shot, but I turned it down as I didn’t want to inhibit the vaccine from actually working. I hope people realize that prednisone is a powerful immunosuppressant. I wouldn’t think taking it right at the time of the shot would be advisable as I’ve even seen some literature advising people not to take ibuprofen or other NSAIDS unless absolutely necessary, for the same reason. But I would think after the shot has had time to “do it’s thing”, maybe? So about how long?

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Profile picture for lk61 @lk61

@sueinmn could you share how long after vaccine you took prednisone? I’ve seen several people refer to taking prednisone to calm down the immune response. My neurologist also offered it to me, for my 2nd shot, but I turned it down as I didn’t want to inhibit the vaccine from actually working. I hope people realize that prednisone is a powerful immunosuppressant. I wouldn’t think taking it right at the time of the shot would be advisable as I’ve even seen some literature advising people not to take ibuprofen or other NSAIDS unless absolutely necessary, for the same reason. But I would think after the shot has had time to “do it’s thing”, maybe? So about how long?

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After the shingles vaccine I just toughed it out, until I ended up in pain management to regain my moblilty, and vowed not to do that again! A year later, it was 10 weeks after the flu shot as clinics were still only sort of open. With the Pfizer, I waited 8 weeks to be sure I got full immune response, it was probably another week to get the meds.
Sue

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I received my 2nd dose in early Feb. Didn't start having issues for about a week afterwards. I didn't have prednisone until last week, so late July. If it didn't do it's job by then, so be it.

Seems it's not working for the vast majorities anyway since masks are going back in style throughout the country.

This is all just so craxy.

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Profile picture for littlenoise @littlenoise

I received my 2nd dose in early Feb. Didn't start having issues for about a week afterwards. I didn't have prednisone until last week, so late July. If it didn't do it's job by then, so be it.

Seems it's not working for the vast majorities anyway since masks are going back in style throughout the country.

This is all just so craxy.

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Do you mean the vaccine is not working, or the prednisone?

Prednisone is notoriously fickle when it comes to neuropathy - some it works for, other it doesn't, still others need the dose tweaked to get results. Or sometimes another med can help.

As to the vaccine, some encouraging statistics have come out recently - depending on location, 90-90% of Covid hospitalizations, and 99%+ of Covid deaths are among the unvaccinated. So even if you get Covid after vaccination, you have a very good chance of a mild or asymptomatic infection.
The masks are being recommended because it appears that those who are vaccinated may be able to spread the infection. This is currently being studied at the University of Minnesota and several other locations. Stay tuned for further information.

Sue

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Yeah, sorry about that. I was just being cranky because I hate these masks.

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