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Langold (@rarelybees2889)

Autoimmune Fatigue and/or Chronic Fatigue

Autoimmune Diseases | Last Active: Jan 20 7:24pm | Replies (166)

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@johnbishop

Hello @dianegerrodette, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. Thanks for sharing that tip. It is an often overlooked cause of chronic fatigue syndrome and multiple chemical sensitivity. Here is an older article from 2007 on the topic.

Functioning in individuals with chronic fatigue syndrome: increased impairment with co-occurring multiple chemical sensitivity and fibromyalgia: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1890280/

Are you able to share a little more about your diagnosis and how you discovered the cause?

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Replies to "Hello @dianegerrodette, Welcome to Connect, an online community where patients and caregivers share their experiences, find..."

My son has not gotten an "official" diagnoses or treatment plan. He has been tested by loads of departments at children's, but nobody has yet to offer a name for this or how to help. His tests generally look "normal," We are still looking for a trigger cause. Lots of questions and looking at possible pieces to the puzzle, but nothing stands out. Had our house tested twice. It was suspected to be mold related, and yet, no mold in house. He could have been exposed at say, summer camp and reacted, but there are just no real direct patterns.

Hello. I know this article is over a year old but I have hopes of someone reaching back out to me. I have had my illness for 13 years and have never received an actual diagnosis from the many 50+ doctors I have seen.
I am gluten intolerant, sugar alcohol intolerant, and many other foods as well. I have multiple Chemical sensitivity. Whenever I inhale perfumes, cigarette smoke, or apply lotions to my skin, including sunscreens, I become deathly sick as if I have the flu and it sends me to bed for days at a time. I become weak, disoriented, brain, fog, headaches, nausea, and sometimes muscle aches to name a few. The most at one time that I have ever stayed well is three weeks it has left me disabled and unable to work. I am still searching for answers asked to how I woke up one morning in 2009 and have never been the same again.