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Grover's Disease: What works to help find relief?

Skin Health | Last Active: 5 days ago | Replies (1946)

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@stpchair

In the internet research I've done, sweating IS the worst trigger for a flare up of Grover's Disease, which I've had since the 90's. I've started taking much cooler showers, which seems to be helping somewhat. The internet suggested bathing LESS. GD used to be a minor annoyance but these days, it's been really bad and topical steroid creams that used to work are not working any longer. The creams control the itching but not the outbreaks. My dermatologist suggested I try UVA treatment. Don't do it! It made it worse. I now have GD on my legs, which I didn't have before. It was limited to my torso. It's really bad under my breasts now, too and I think my bra is aggrevating it (as it promotes sweating). None of the internet info ties outbreaks to stress--but I'm convinced there is a link. I'm under a huge amount of stress now and the GD has never been this bad before. I don't know what to try and my dermatologist reminds me GD is a "rare disease" and no one is really doing any research or studies on it now. It's ugly and I hate it. I'm shocked I found people discussing it here. I'm happy to hear what anyone has to suggest.

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Replies to "In the internet research I've done, sweating IS the worst trigger for a flare up of..."

I agree sweating is the worse for flare ups...and bright sun, which living in Texas it's a challenge... I believe years of sailing 30 yrs as my late husband and I had a sailboat here did sun damage...even though I did use sunscreen, and then running 4 /5 miles every am in this heat just triggered it exponentially ....I am now running inside on my treadmill and avoiding our pool until it is shaded....I have been drinking dandelion tea with drops of cilantro oil each am which I think has calmed it somewhat...also when I do get a bad flare up on my hands and fingers I wash them in a 10% benzoyl peroxide which drys the irritation in a few minutes, leaving your skin dry but not itching...after an hour or so I apply CeraVe hydrating Hyaluronic Acid Serum for moisture...it's definitely not a cure but does alleviate some of the discomfort...I have stopped the steroid creams my dr has RX...just didn't work...I keep going back to my dr but frankly I don't think they know how to treat this....

Cilantro smoothies and lysine. Read the past posts on this site.