Burning feet and legs

Hi @jimmy370 . One of our mentors, @artscaping has shared about her experience with burning in her legs in another discussion in this group and provided some insight as to what she has done to deal with that since.

Have you been diagnosed with Neuropathy? When did this burning start?

It started 2012 nobody told I had nurapthy

@jimmy370
Jim, I am very sorry to hear you have been suffering from burning feet and legs since 2012. So, let me understand what you are saying here. You have been to several doctors and not one of them has been able to help you, and not one of them has suggested it might be neuropathy? This mystifies me. They should have tested you for that the very first thing. I would suggest seeing a doctor, perhaps a neurologist, and requesting that they test you for small fiber and large fiber peripheral neuropathy. On google you can find out what tests are available, there are 3 that I know about. In the eight years that you have had this, what has been the level of your pain? What steps have you taken for the pain? Good luck to you, Hank

Neurologists in the area of Albany basically suck. I went to NYC to have biopsies done to confirm small fiber neuropathy. I also have burning and pain from Complex Regional Pain Syndrome in both feet and moving up my legs. I see a marvelous pain management doctor. I had a spinal cord stimulator implanted one in 2012 and a more up-to-date one in 2018 by a neurosurgeon. I have been seeing this pain management doctor for 9 years. I use lidoderm pain patches, lidocaine-prilocaine cream, as well as having a variety of procedures done that some have given me up to two years of pain relief.

Good evening I have CRPS, had spinal cord stimulus but leads Crack and would shock me on any movement, leg and foot pain getting worst. I never put in a device yet. What did you do 2 get relief for 2 years, am crying over here, can't sleep long even with my mess. Some days I just want to end my life I see no future for me. Am really a burden to my family. Please advise

Hello @neverrest, I am so sorry to hear that you are in such pain and not able to sleep much. Good sleep is so important for helping with your health. Are you able to discuss the pain and not being able to sleep with your doctor?

I'm wondering if you saw the suggestions in a reply to your earlier post by @amandaburnett in another discussion you posted in here - https://connect.mayoclinic.org/comment/244618/.

Hello @neverrest. The Connect community understands that you are in a difficult place right now and we want you to know that we are here for you. This is a safe place to talk as you feel the need. I also want you to know about the 988 Suicide & Crisis Lifeline https://988lifeline.org that you can call or text any time for immediate help with trained counsellors. Please call them if you are feeling threatened by your feelings of ending your life.

Have you had a chance to review the suggestions by @amandaburnett and @johnbishop? When is the last time you have sought medical care for your pain and/or lack of sleep?

My pain doctor wants to implant a spinal cord stimulator too for my PN. Did you first have a temporary one before the actual implant?

Yes, I also had to have a psych review with psychiatrist. Currently I am on hold to have yet another trial and implant lower in my spine as my feet are quite painful - CRPS, SFN, and a couple of bad surgeries years ago.

Yes, a temporary and if it works the psych review and then the implant. So you are saying the temporary worked for you? And then the permanent implant also worked for you?