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Is anyone here taking Revlimid? If so please share with me

Blood Cancers & Disorders | Last Active: Oct 27 4:58pm | Replies (15)
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@anamoner1

Mom has myelodysplastic syndromes (MDS) with deletion 5q and started 5mg of Revlimid this week. One day on and one day off. She is having many side effects like nosebleed, gums bleeding, stomach pain, constipation, hard time sleeping, fatigue. Just wondering if any of you that take it may have started out the same but now manage it well?

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Replies to "Mom has myelodysplastic syndromes (MDS) with deletion 5q and started 5mg of Revlimid this week. One..."
Colleen Young, Connect Director | @colleenyoung | Jul 16, 2021

Hi Ana, welcome. I'm sorry to hear that your mom is experiencing such difficult side effects with Revlimid (lenalidomide). I moved your message to this existing discussion about Revlimid so that you can connect with fellow members like @devehf @pom @1nan @wycowgirl307 @5qdeletion @gmajudy, who have experience with this drug, either themselves or someone they care for.

Have you reported your mom's side effects to the symptom management nurse or oncologist? Have they offered any suggestions?

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