Welcome to Mayo Connect, a place for people to share their experiences regarding their health with others in similar situations. We are not medical practitioners, and cannot offer diagnosis, only support

Over 20 years is a long time to have an infection, you must have seen a lot of doctors and had a lot of tests during that time. It must be very frustrating to never get an answer. Have you been ill this entire time?

What led you to believe you have actinomycosis, which is very rare? Has it ever been suggested by one of your providers, or have you had tissue cultured to test for it?
Sue