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What do you order when eating at a restaurant?

Transplants | Last Active: Jan 6, 2022 | Replies (67)

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@athenalee

Nice to “visit” with you as well. Connects has been very helpful for me as I navigate my new illnesses, so when I can, I enjoy sharing what I’ve learned from my research and experience.

Wow, I just read about CMV, I hope you are finding reducing Mycophenolate helps!! Are your kidney functions ok?

My doctor is having me try reducing Mycophenolate as my liver enzymes have been so good. So, I have to do labs in 2 and 4 weeks for monitoring.

Here’s the discussion on fungus. It’s actually a great dialogue on all sorts of things - https://connect.mayoclinic.org/discussion/this-and-that-and-talk-my-transpant/?pg=130#comment-616440
The newest entries touch on the fungus issue.

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Replies to "Nice to “visit” with you as well. Connects has been very helpful for me as I..."

I am so happy to hear that your Cellcept dosage was reduced for a great reason (liver doing well!!) and not an infection. My CMV is considered resolved so far, thank goodness. I was super worried about having CMV, but the Valcyte treatment did the job. They are continuing to monitor the CMV and keep the Cellcept reduced. My kidney function is stable so far and doing well so I am hopeful that maybe this is my new maintenance dosage!