Repeated UTI & Yeast infection w/ autonomic neuropathy

@jealge1, I think it does play a part but I'm not sure how big of part. Here's some information from Neuropathy Commons website:

Neuropathy & Your Bladder -- https://neuropathycommons.org/neuropathy/neuropathy-your-bladder

It sounds like you have a plan to help by drinking lots of fluids and taking the cranberry extract. Did your doctor or urologist have any suggestions or thoughts?

Hi John. I agree! Good bladder info. Many people don’t realize that small fiber neuropathy also affects autonomic. After about 10 years I started with the autonomic issues. High heart rate, low blood pressure, The worst for me is the thermoregulation, and stupid bladder LOL

Neuropathy Commons, Max Klein, and Ann Louise Oaklander are really great resources. They have some good YouTube videos as well.

It seems to me that a good stop for frequent UTIs is the urologist. My BIL had a genetic issue with how his organs worked and it was helpful. Sometimes there is an issue with complete emptying of the bladder and that can be causal, also.

I was treated for yeast and urinary problems for years. I was finally referred to a dermatologist and diagnosed with lichen sclerosis. Now that I have been treated with a cortisone ointment I am doing fine. Lichen sclerosis is an autoimmune disease. I believe the Mayo clinic describes it very well.

Just to add more to the conversation, I did an experiment yesterday where I kept track of my intake and measured my urine output. It certainly wasn't scientifically accurate, but not way off. My intake of fluids (all water other than 16 oz of black tea in the morning) was ~4600ml. My output was ~2725ml. Those numbers are WAY off and show that even though I urinate frequently, I'm not removing what I put in. I will continue the experiment for a few more days to see if the numbers are consistent. I plan to ask my neuro for a referral to a urologist to see if there is anything that can help this. Thanks folks for you thoughts and experience.

there are numerous forums on Facebook regarding SFN and Sjögren’s to which I subscribe. It seems that recurring UTI’s and yeast infections are fairly common complaints.

FYI- D-Mannos which is a supplement is supposed to help prevent recurring UTI’s, it can be purchased on Amazon.

I was a nurse for 29 years. I had issues with UTI's also. I found out through a test the urologist did that I have urinary retention. One of the things he told me was sit for awhile and relax. Or get up when you think you are done and walk to the door and back and sit again. I have been able to do the sitting thing and it works. If that is what it is.

So to follow up on my saga, I had 2 negative tests for a UTI and my vaginal yeast swab also came up negative. I saw my GYN this week, and he explained that the loss of estrogen post-menopause & hysterectomy can mimic the symptoms of a yeast infection. Also the neuropathy can lead to more UTI's, which can lead to vaginal irritation. As with so many other issues, SFN can cause and exacerbate problems with our whole body.
I just want to let other women with SFN know that even though they don't find anything in literature about their symptoms, you are not alone.

Research "D-mannose". I was watching* an Alzheimer’s video and Dr recommended to prevent UTI's.