1. < Diabetes & Endocrine System

Thyroid? Or something else? Constant internal shakiness

Posted by amtxo1989 @amtxo1989, Feb 26, 2018

Going on 2months now everyday non stop. Sometimes mild and im able to ignore it but over the hours of day it becomes more severe and causing my heart rate to go up and my blood pressure to go very high (170/99) its episodic. Ive been to hospital for it 3 times for it and received no treatment as my vitals slowly return to normal. Xanex helps me feel calm but does not help the shakiness just helps me not get upset about it. Am only 28 years old and hypothyroid. I have never had symptoms like this in my entire life just started out of nowhere. Iam in good sTate of mind and aware of what's happening when the episodes happen. So far my doctors are clueless.

Interested in more discussions like this? Go to the Diabetes & Endocrine System Support Group.

saska | @saska | May 8, 2021
In reply to @becsbuddy "Welcome to MayoClinicConnect @saska . You’ve definitely picked the right discussion to follow. Everyone here is..." + (show)
@becsbuddy

Welcome to MayoClinicConnect @saska . You’ve definitely picked the right discussion to follow. Everyone here is a volunteer so we help each other by sharing what has worked and what hasn’t on our health journeys. We’re not medical professionals so we can’t diagnose or prescribe.
Well ask members like @david1972 ans @jewles63 and @happyat76 and @champton to come back and maybe relate what they’ve learned.
In the meantime, read them this entire discussion. Maybe there is something to help. Have you asked your family members who had thyroid problems, if they ever experienced this shakiness?

Jump to this post

I have not asked. My mother who has hashi has electric Like shocks in her spine.

REPLY
1 reply
elisa1313 | @elisa1313 | May 29, 2021

Hyperthyroidism will do this. I am experiencing the internal shakiness now and think maybe my almost two year hiatus from hyperthyroidism has possibly returned. My levels were literally just checked this month and we're fine but ..... however I have had periods where I think it has come back because I will have increased anxiety and spiking heart rate and some more weight loss and my levels will be fine. It could just be doing it frequently and not being caught in the moment. Not sure. I have lost more weight since my levels stabilized. It also caused my appetite to go way down and food hasn't tasted that good since..also my appetite never really returned, which I am not too bothered by, but the taste of food...wish that was better.

REPLY
1 reply
jewles63 | @jewles63 | Jul 10, 2021

Hi again everyone, so I have an update, I had my 1st visit at my new neurologist and WOW what a difference. Shands has it going on… So on 8/2 he will be confirming a diagnosis of SFN with a skin biopsy. He had bloodwork done and my blood showed speckled Ana of not high titer 1:160 and a loss of reflex in both arms. This vibration feeling is one of the major symptoms. I will keep you guys updated.

REPLY
2 replies
jewles63 | @jewles63 | Jul 10, 2021
In reply to @elisa1313 "Hyperthyroidism will do this. I am experiencing the internal shakiness now and think maybe my almost..." + (show)
@elisa1313

Hyperthyroidism will do this. I am experiencing the internal shakiness now and think maybe my almost two year hiatus from hyperthyroidism has possibly returned. My levels were literally just checked this month and we're fine but ..... however I have had periods where I think it has come back because I will have increased anxiety and spiking heart rate and some more weight loss and my levels will be fine. It could just be doing it frequently and not being caught in the moment. Not sure. I have lost more weight since my levels stabilized. It also caused my appetite to go way down and food hasn't tasted that good since..also my appetite never really returned, which I am not too bothered by, but the taste of food...wish that was better.

Jump to this post

Hey , yeah I totally feel you . I do have hasimotos and at the time my #s are
“ fine “ my dr says we need to get as close to 0 as possible. Since 2017ish have been suffering with chest pain, nerve pain, vibration throughout my body, and gastrointestinal issues and thyroid nodules, emphysema and osteopenia that I feel ALLl tie together with Small fiber neuropathy and hasimotos. My opinion…

REPLY
1 reply
Mentor
Becky, Volunteer Mentor | @becsbuddy | Jul 10, 2021
In reply to @saska "I have not asked. My mother who has hashi has electric Like shocks in her spine." + (show)
@saska

I have not asked. My mother who has hashi has electric Like shocks in her spine.

Jump to this post

@saska how are you doing? Do you still have the internal tremors? Are you and your mother seeing doctors to find out what’s going on? Would you mind sharing ?

REPLY
Mentor
Becky, Volunteer Mentor | @becsbuddy | Jul 10, 2021
In reply to @jewles63 "Hi again everyone, so I have an update, I had my 1st visit at my new..." + (show)
@jewles63

Hi again everyone, so I have an update, I had my 1st visit at my new neurologist and WOW what a difference. Shands has it going on… So on 8/2 he will be confirming a diagnosis of SFN with a skin biopsy. He had bloodwork done and my blood showed speckled Ana of not high titer 1:160 and a loss of reflex in both arms. This vibration feeling is one of the major symptoms. I will keep you guys updated.

Jump to this post

@jewles63 I’m very happy to hear that you’ve found a doctor that you like! How and where did you find him?

REPLY
jewles63 | @jewles63 | Jul 10, 2021

I live in a small town and my current neurologist was at ends with me so referred me to my choice Mayo in Jacksonville Fla or Shands in Gainesville Fla. I 1st choose Mayo but they didn’t except my insurance so I waited 8 months for a appointment at Shands. He was picked by my symptoms.

REPLY
siosal | @siosal | Jul 11, 2021
In reply to @jewles63 "Hi again everyone, so I have an update, I had my 1st visit at my new..." + (show)
@jewles63

Hi again everyone, so I have an update, I had my 1st visit at my new neurologist and WOW what a difference. Shands has it going on… So on 8/2 he will be confirming a diagnosis of SFN with a skin biopsy. He had bloodwork done and my blood showed speckled Ana of not high titer 1:160 and a loss of reflex in both arms. This vibration feeling is one of the major symptoms. I will keep you guys updated.

Jump to this post

What is SNF.?

REPLY
1 reply
View MoreView Less
Please sign in or register to post a reply.