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Anyone have Laryngeal Sensory Neuropathy?
Ear, Nose & Throat (ENT) | Last Active: Nov 26 4:47pm | Replies (191)Comment receiving replies
Hello. I do check this site from time to time. I am still bothered daily with LSN. As of now I take 3 tramadol daily and also take medical marijuana CBD drops to help lessen my cough. I also know what foods I should avoid to trigger it ( crackers, pretzels, nuts, chips, anything dry and crunchy) I have just got to the point that I accept that I have to live like this the rest of my life. I have tried a few times to cut back on my tramadol but within a week I start coughing worse and need to go back to 3 a day. I am now at the point that I do still cough daily but there are some days that it is not that often. Some days I do have attacks still that cause me to gag, pull muscles and can feel my heart racing. It’s terrible to have to live with LSN. It seems to be rare and unfortunately we are two of the unlucky ones that seem to have it. 😢
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@tkubby
Make that 3. I have been suffering terribly from this condition for over ten years now. Everything you describe is exactly what Ive experienced. I also have chronic Intractable migraine, fibromyalgia (so they think), three herniated disc in my lumbar spine. This unbearable daily coughing is, I believe, taking years off my life. I am currently under the care of Cleveland Clinics Cough Clinic and ENT. I live in Michigan, its not a short hike, but Ive exhausted all specialist here. They have had me taking 150mg of Tramadol/per day. Which helped minimally, but does provide some relief, maybe 30 to 40%. Now the ENT has started throat injections with steroid & lidocaine. They want to do a set of 3, 3 months apart. However, the first set last month Feb, I was absolutely miserable for 3 days post. My cough worsened, I cough all day, the severe sensitivity to air passing through my throat returned with avengence and still has only lessened very little. Now theyre weaning me off Tramadol, which Im completely baffled by since the injections are not helping at all yet. Im beyond frustrated, depressed, hopeless! I go for second set this month, 14th. Im nervous! Doctors said they will probably omit the lidocaine this time, they think it may have created more of a problem, I dont understand why, but hey, theyre the experts, right? My life is distressing, I dont socialize out of a home anymore, going to stores is stressful, going anywhere is stressful. Everything makes me cough, right down to the Nutella I spread on my daughters toast. Im 53, to look at me you'd say I was a picture of health, but literally everyday of my life I feel 80. The only time in this past 10 plus years Ive had any break from this coughing was during my recovery from a double mastectomy in 2016(stg 1 breast CA). I was on Percocet or Oxycodone. Then thereafter for 3 other related surgeries. Sucks... I surely cant stay on strong Opiates. But believe me, Ive been so desperate that I have considered it. I just need help. I cant imagine living out the rest of my life this way. They tell me they have 3 meds in the works, waiting for FDA approval, specifically for LSN. Im holding onto hope they'll be available those of us who suffer with this soon. I dream of what it would be like to not cough anymore, but refrain from that thought too much, as its very painful. My best to you all. Would be nice to converse more with you who suffer from this. The support is so welcomed. Thank you for this post. Ive been searching for other.