Lower spine pain after robotic Prostate removal

Posted by stantallusa @stantallusa, May 21, 2021

I had prostate removed using the robotic assistant in April 2018. Before surgery I lifted weights and walked between 5 and 10 miles per day. I have been a cripple ever since. No explanation from surgeons or other docs I have visited. I have had chiropractic treatments and physical therapy with no help. Had injections and finally nerve burning done. Temp relief at best. Now looking into some sort of stimulator being surgically implemented. I am hesitant to do this. Anyone have any suggestions? Thx

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Colleen Young, Connect Director | @colleenyoung | May 26, 2021

@stantallusa, I added your question to the Spine Health group (https://connect.mayoclinic.org/group/spine-health/) as well as the Prostate Cancer group. In the spine health group you will find several discussions about spinal stimulators. For example:
- Comparison of Spinal Cord Stimulators from Boston Sci., Nevro https://connect.mayoclinic.org/discussion/comparison-of-spinal-cord-stimulators-from-boston-sci-nevro/
- Has anyone tried the HF10 Spinal Cord Stimulation Device? https://connect.mayoclinic.org/discussion/hf-10-spinal-cord-stimulation-device-relieves-back-and-leg-pain/
- Has anyone had the Stimwave spine stimulator installed? https://connect.mayoclinic.org/discussion/has-anyone-any-had-the-stim-wave-installed/

Stan, it sounds like the source or cause of the pain remains unknown. Is surgery an option?

stantallusa | @stantallusa | May 26, 2021

I want to avoid that. Ever person I have talked to that had back surgery said they would never do it again. Thanks for the info. I am going to look into the stimulation. Thanks again

stantallusa | @stantallusa | Jun 28, 2021

In reply to @colleenyoung "@stantallusa, I added your question to the Spine Health group (https://connect.mayoclinic.org/group/spine-health/) as well as the Prostate..." + (show)

Everyone I know who has had spine surgery telll me don’t do it. They all say it got worse.

stantallusa | @stantallusa | Jun 30, 2021

What about the certified superion system

Colleen Young, Connect Director | @colleenyoung | Jul 4, 2021

In reply to @stantallusa "Everyone I know who has had spine surgery telll me don’t do it. They all say..." + (show)

Stan, I’d like to bring @jenniferhunter into this discussion. She’s written extensively about her experience and knowledge of Myofascial Release Therapy. I wonder if that might be a non-invasive option for you to investigate.

See this discussion:
> Groups > Neuropathy > Myofascial Release Therapy (MFR) for treating compression and pain
— https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

Are your orthopaedic specialist and oncologist in communication with one another? Has it been confirmed that you do not have bone métastases?

Jennifer, Volunteer Mentor | @jenniferhunter | Jul 4, 2021

In reply to @colleenyoung "Stan, I’d like to bring @jenniferhunter into this discussion. She’s written extensively about her experience and..." + (show)

@stantallusa Myofascial release is non invasive because it is just stretching tissue. However, if a person has cancer, stretching tissue can release cancer cells, so that would be a time not to use it. All surgeries create fascial scar tissue which gets tight and can cause pain. There is also a device called a Dolphin Neurostimulator which can release knotted muscles by passing a current through it. It has settings to dampen neurotransmitters and my PT used one on my spine at the nerve roots to lessen pain and spasms while I was waiting for spine surgery which stopped pain for about a week. What is your status with your oncologist?
The Dolphin can also be used like dry needling (which releases stored electric energy in muscle knots), but without the needles. It can send currents between 2 devices or on device and an electrode. Here is a link which shows what it is. https://www.dolphinmps.com/dolphin-neurostim-2/

stantallusa | @stantallusa | Jul 6, 2021

In reply to @colleenyoung "@stantallusa, I added your question to the Spine Health group (https://connect.mayoclinic.org/group/spine-health/) as well as the Prostate..." + (show)

Well. I am at the end of my rope. Just requested an apt with Mayo
Hoping their experts can get to the bottom of this

stantallusa | @stantallusa | Jul 9, 2021

I just got a call from Mayo. Hoping I can get the help I need

Colleen Young, Connect Director | @colleenyoung | Jul 9, 2021

In reply to @stantallusa "I just got a call from Mayo. Hoping I can get the help I need" + (show)

Fantastic. As you prepare for your appointment, you may appreciate the guidance fellow members offer in this discussion:
- Your Tips on How to Get Off to the Best Start with a New Specialist https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/

And other discussions in the Visiting Mayo Clinic group https://connect.mayoclinic.org/group/traveling-to-mayo-clinic/

Which location will you be going to?