Has anyone been using Tymlos?

Thanks @artscaping The thought occurred to me, after I wrote that, that you may have other prescriptions that are going toward the drug amount too and that would of course cause you to get to the "donut hole" sooner. All of my drugs are pretty reasonably priced, except for my immunosuppressants and they are paid in full by Medicare B and my supplemental.
JK

After doing a 1/2 dose every other day for a couple of weeks, I tried a full dose last night. I got the usual side effects of headache, dizziness some heart palpitations. However, my glands got swollen in my neck, and I got a very sore throat, and really bad nausea. I am wondering if this was an allergic/immune system reaction. I have lupus and also have a lot of drug, food and other sensitivities. Anyone else?

I started onTymlos in April 2021 after fracturing my T12 and L2. T12 was old fracture and couldn’t do anything for that one,however they the Vertebroplasty in L2. I am still in a lot of pain can’t stand,sit,or walk but a short time. I just wondering if it could be the Tymlos doing this. I did find out that I now have 60% blockage in my vertebral arteries.

Is this with Medicare part B and D?

I know this posts a few years old, but any updates on your treatment outcomes?

Greetings @rubyz. Yes, I have finished my two years with Tymlos. I had no side effects and some sliding backward from osteoporosis to osteopenia. I had to choose Prolia when I finished the Tymlos because of my severe allergy to bisphosphonates which includes the other choice, Reclast. At this point, I have some jaw pain but not as bad as it was with Boniva. I am keeping a calendar and it does seem like there may be some relationship to low barometric pressure. I have had my teeth cleaned and checked by my dentist and everything looks good.

My clinician and I are looking at Evenity since it is both a bone builder and bone saver. You can now have it for two years. Have you considered Evenity?

May you be content and at peace.
Chris

So glad to hear of someone who has no side effects with Tymlos. I am happy for you and I hope you will share your decision about Evenity or Prolia after finishing Tymlos.

This is an old thread and I last posted a year ago. Just want to say that I successfully got on Tymlos by starting with two out of 8 clicks and moving up to 7 total, with a slow ramp up. This minimized side effects. I have done 8 months at an effective dose.

Good to hear that you are doing well. You are getting far along now!

Hello, I see most posts are 2021, but I am wondering if anyone else is still using Tymlos & having side effects of disabling back pain or leg cramps? I started out March 2022 at 1/2 dose & tried to work my way up, but anything over '5' clicks resulted in extreme vertigo & brain fog for me. So only '5' clicks every night for me since 04/26/22. At 4 months usage I started having severe lower back pain, & leg cramps at night that would carry over during the day. Back pain was so excruciating, I was not able to get up, out of bed & walk unless I sat on a heating pad for 2-3 minutes. Had trouble with stairs during daytime due to on-going leg cramps. I told my Doctor I was going to take a 30-day break from tymlos to see if I can be pain free for a while & try again at 1/2 dose 09/01/22, see if I can handle it. I am 4 days totally off injections now, & leg cramps are completely gone. Some back pain, but very diminished from what it was previously. Will see how it goes. Take care everyone!