Living with Neuropathy - Welcome to the group

Hello @andrewbar, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. There is another discussion where members have shared their journey with neuropathy and what has helped them. You might want to read through the discussion to learn what others have shared.

Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

Are you able to share what treatments you have tried and if they offered any relief at all for your symptoms?

Yes I have t have tried injections Lyrica gabapapen medical marajua all vitamins shock therapy nothing is working I have been taking out of work due to hands and feet hurting so much it started over 2 years ago and this January after getting the COVID-19 shot it got 100 times worse and my Doctor a nuraoligesr has no ideas of what to do

Is this condition a disability? I am a chef and I was burning my hands and cutting them with out knowing this is why my DR took me out of work and I only have 6 more weeks of FMLA left I am scared that I will not be able to go back I am 52 years old and I have to take care of my two daughter’s

@andrewbar -- Here is some information that might help get you started. I do think from your symptoms and doctors orders not to work you should qualify for disability.

Getting Help for Peripheral Neuropathy Social Security Benefits: https://www.foundationforpn.org/2016/05/08/5217/

Do You Qualify? Free Disability Evaluation: https://www.disabilitybenefitscenter.org/disability-work/neuropathy

I am new to Mayo Clinic Connect and appreciate any helpful information. I started having tingling in my feet a couple of years ago, then
awhile back started a serious walking program, and suddenly woke up with burning, painful feet. Neurologist did many tests and diagnosed me with idiopathic neuropathy (you have it but we don't know why), possibly years of pre diabetes. I don't do well on meds
because of stomach, ibs, etc. so have not gone on gabapentin, etc. A strong CBD ointment from my chiropractor helps any night.
@tjaapa I had a tetanus shot 3 month ago, and have had pain in left upper arm ever sing. Weird, nurse said maybe it went too deep.

Hello @bgiddio, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. There is another discussion where members have shared their journey with neuropathy and what has helped them. You might want to read through the discussion to learn what others have shared.

Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

Also, there is an older discussion that has posts from this year that is related specifically to your burning symptoms that you might want to read through the posts.
-- Burning Feet syndrome: https://connect.mayoclinic.org/discussion/burning-feet-syndrome/

The Foundation for Peripheral Neuropathy has a section on Living Well with Peripheral Neuropathy that has information on complementary therapies, healthy lifestyle and other topics you might find helpful:
-- https://www.foundationforpn.org/living-well/

Have you tried any alternative therapies for your neuropathy symptoms?

Hello John, I haven't seen any alternative therapies, one Dr. recommended vitamin B complex. That's it!
Any suggestions are appreciated!

The protocol of supplements I take includes B vitamins and others recommended on the Foundation for Peripheral Neuropathy website under the Natural Products which has a link to a PDF document listing vitamins known to help neuropathy - https://www.foundationforpn.org/living-well/integrative-therapies/.

I posted my story and the product I use (Protocol 525) in the Member Neuropathy Journey Stories - What's Yours discussion here - https://connect.mayoclinic.org/comment/310341/. Whatever you decide, you should always discuss any supplements you take with your doctor.

Thank you so much John, I will certainly check it out!

Meds for neuropathy. Any new ones