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@jennifernicole

Many of the people posting on here seem to know more that some of the doctors I have encountered. Can anyone share what evidence of MAC/MAI on a cat scan includes? Is it nodules, ground glasz opacities, tree in bud (all things on my report but not sure if that is consistant). I was diagnosed witj MAI through lavage washings but i don't know if it is the reason I am having issues or whether whatever issues i have been having made me vulnerable to the MAI ...

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Replies to "Many of the people posting on here seem to know more that some of the doctors..."

Jen, I was a little self concious of wearing my oxygen at the gym. I do a
one hour gentle arobics class. Everyone, including me are used to it now. No big
deal.
 

@jentaylor,
Bravo to you for taking a 10 min slow paced walk around the block with my daughter, Emma & our dog!!!! What a great start! For 8 years after being diagnosed with NTM, I wore a Pedometer which recorded my steps each day (I didn't care about all the other stuff the pedometer could record). After about a year, I challenged myself to reach 10,000 steps a day. Sometimes I made it, sometimes not.

@jentaylor Jen, I am very proud of you .. AND your 10 minute walk .. you are being a role model to Emma .. it is NOT what we SAY to our children .. it is what we DO that our children REMEMBER. That effort to walk 10 minutes means a lot MORE than a whole lot of words .. good for you .. you can pat yourself on the back. Our Community has and WILL BE behind you each of those steps you walk .. you have found that out .. BUT "If it IS TO BE .. it is UP TO YOU!" As the saying goes. Just as "Happiness is an Inside Job" .. "Health is an Inside Job" .. NOBODY can do it FOR us .. they can help us .. guide us .. support us .. but ultimately WE must grab those reins and drive the buggy into our future health and happiness .. both for you .. Emma and Ben. You go Girl! Hugs to all! Katherine

@jentaylor Jen, just wanted to tell you that your post "Mon. I took a 10 min slow paced walk around the block with my daughter, Emma & our dog! " .. inspired me! I have been feeling so lousy. .. BUT today I hopped on my Nordic Track and did one mile .. not my former 3.7 miiles .. BUT I did it along with 25% of my Yoga. I am really going to try to continue .. we are ALL on this journey together! Hugs to all! Katherine

@katemn Congratulations Katherine!! Teresa