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New to Mayo, Old to Epilepsy

Posted by hobbitinhopeland @hobbitinhopeland, Jun 3, 2021

My new neuro (I hadn't seen one in 12 years as recommended my previous neuro: "we need to wait for science to catch up to your brain") has referred me to the Mayo Epilepsy Specialist to figure out what kind of seizures I'm having, and if i have more than one kind.

It feels a bit intimidating.

Any tips or suggestions?

Interested in more discussions like this? Go to the Epilepsy & Seizures Support Group.

Leonard | @jakedduck1 | Jun 28, 2021

@hobbitinhopeland
Have you ever had generalized seizures where are your seizures always focal? I’m curious how your seizures manifest themselves. Could you expand on what happens during them?
Jake

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Chris Gautier OR Santosha | @santosha | Jun 30, 2021
In reply to @hobbitinhopeland "I see an Epilepsy specialist at Mayo next month. I was in an EMU many years..." + (show)
@hobbitinhopeland

I see an Epilepsy specialist at Mayo next month. I was in an EMU many years ago, but they said the science was limited back then. Here's to hoping for good news. Or any even fairly concrete news at this point. 😊

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All the best in your appointment at Mayo this coming July, @hobbitinhopeland!

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