"Dents" in leg muscles

I also popped into this conversation. I DO have problems with gait. I would fall but I always manage to fall into things or grab onto others. Also I went from 168 to 89lbs in 18 months without change in eating. But was diagnosed with celiac disease and have gained back 19lbs. Prior to April 10 2017 I had sciatica, scoliosis, osteoporosis, osteoarthritis. Then I woke up on the 10th and had lost the use of my right hand and the pain felt like my hand was in boiling water. 10 days later I woke up with the same thing in my left hand. 1st neurologist said PARSONAGE TURNER SYSNDROME and said she would send a letter to my family Dr. When I went to see family Dr. Her words exactly were. I have never heard of this disease YOU WILL HAVE TO GOOGLE IT. I did, it didn't sound like my symptoms. 48 hours after the test where they poke you full of holes I had a heart attack at home whilst having a BM. 2nd neurologist said no it couldn't be PTS. he said was MONO NEURITIS MULTIPLEX. MNM family Dr said. SAME DEAL YOU WILL HAVE TO GOOGLE IT. SAME DEAL it didn't sound like my symptoms.
I went back to my old family Dr. He's not likely to tell me to Google it. He sent me to a different neurologist, the 3rd. When we got there she had gone through all the previous tests done by the others. She had made herself totally knowledgeable of my symptoms. She was what you hope for in a Dr. However yes you guessed it 3rd diagnosis. CHRONIC REGIONAL PAIN SYSNDROME. She explained every detail, no waiting to get results from family Dr. However the news was not good. It is nicknamed the suicide disease. There is no cure and no treatment. Just 24/7 pain. I am on gabapentine. I didn't think it worked until I miss a dose. Also long acting diladid and 2mg fast acting for break through pain. They don't work either. So I cry out in pain I scream in pain. My best friend is sleep and I'm very fortunate that my evening meds do their job and I sleep well. Then I wake up. It's still there. It will always be there. I will never have anything to look forward to again. I'm only 64. I worked all my life now I've lost that. My husband is drifting farther and farther away. I have zero quality of life. I know why it's nicknamed the suicide disease because I fantasize about not waking up. Having a massive heart attack. Because my death is not imminent I'm not eligible for MAID. The thought of living like this for another 2 weeks is hell but 20 years. Will not happen. I will be a statistic. Part of the over 60% that choose to end their life. I pray no one on here has this horrible disease. It breaks my heart that children can get this disease.

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hi. new here although searched mayo clinic for a decade now. wasn't aware there was a dedicated forum until tonight.

anyway.

as the title says.

I'm concerned about muscle atrophy and maybe even ALS. any ideas? I've attached a photo for additional insight.

Jump to this post

hi. new here although searched mayo clinic for a decade now. wasn't aware there was a dedicated forum until tonight.

anyway.

as the title says.

I'm concerned about muscle atrophy and maybe even ALS. any ideas? I've attached a photo for additional insight.

Jump to this post

hi. new here although searched mayo clinic for a decade now. wasn't aware there was a dedicated forum until tonight.

anyway.

as the title says.

I'm concerned about muscle atrophy and maybe even ALS. any ideas? I've attached a photo for additional insight.

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Hi @cladinviolet, and welcome to Mayo Clinic Connect. I see you are worried about the dent in your leg muscle. You will see that I moved your post to an ongoing discussion about this topic. I did this so that you can connect with other members like @trellg132, @johnhans, and @johnbishop who have contributed to this topic.

Is this the first dent that you have seen? Have you shared this with your primary?

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Hi @cladinviolet, I would like to add my welcome to Connect along with @amandaburnett and other members. I used to have a small dent in my right leg on the side of the shin but haven't seen it for awhile. I discussed it in my post earlier in this discussion here - https://connect.mayoclinic.org/comment/269233/. I think mine is related to my lymphedema. I did mention it to my primary care doctor and they said they thought it could be edema related. This was prior to my being diagnosed with lymphedema for which I now wear compression socks.

Have you done any research into what the possible causes for the dent in your leg?

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Hello -
Can you tell us a little more about your history and when this occurred? How long have you noticed this dent, and exactly how large is it? Where is it on the thigh, and is there specific weakness in the leg? Have you had any surgeries on the hip or leg?
Sorry to bombard you with questions, but it is difficult to give any informed suggestions on a single phots.
Sue

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not at all. I appreciate the detailed questions.

1. history and occurrence

i'm a gamer who tries to stay fit. i am not precisely sure when it happened but one day when I was exercising I did feel a very different almost twisting pain near that area after intense cardio work out.

although I did not check the area because I assumed I merely pulled a muscle.

only to notice days later I have a horizontal indentation between the hip bone and thigh on the left side.

2. not long a few days at most. it's about 2 maybe 3 inches going horizontal. length wise not long at all.

3. it's below the hip bone but above most of the thigh. I did research on the anatomic location and it's either the Iliotibial band or glutes medias. possibly tensor fasciae latae.

the muscle in the location only (or tendon?) Is gone until I flex it then it magically reappears temporarily.

4. no surgeries ever.

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