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Grover's Disease: What works to help find relief?

Skin Health | Last Active: Mar 17 1:04pm | Replies (1921)

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@locutus

More excellent info from @gardeningjunkie...thanks! I'll look for soap alternatives to the Dove for Sensitive Skin. How about laundry detergents and dryer sheets? I've heard they can be very problematic as well.
I have personally found that dermatologists are not much better than witch doctors. If any of you have ever watched the medical TV drama "House" in the past, these docs are working very mysterious cases where the patient can't be diagnosed, so they throw every possible solution at the patient just hoping that they get lucky, guessed right and the patient starts to recover. This seems to me to be the way dermatologists work too, at least where Grover's is concerned.
I'm still experimenting with the organic and concentrated cilantro drops from iHerb. It's only been about 2 weeks and I have gradually worked my way up to 5 drops twice per day, since taking the number of drops recommended on the label of the bottle has resulted in people posting reviews on Amazon saying that so many drops caused a severe reaction, too much detox all at once, I assume. My GD sores are gradually fading in color and are less itchy so far, but I can't be sure it has anything to do with the drops. I'll just keep going with the current routine and see what happens.

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Replies to "More excellent info from @gardeningjunkie...thanks! I'll look for soap alternatives to the Dove for Sensitive Skin...."

With eczema, which GD is a form of, nothing is precise. You may wonder if you are going into remission with GD on your own or is it the cilantro helping to put me into remission? If you are getting better with your cilantro drops stay with it, yet put research into others advice about dosage, most of us spend hours researching in our attempt to educate ourselves and find solutions. It's part of the eczema life. I don't know anything about the dosage of the drops. I tried the capsules trying to avoid the smoothies and they didn't help at all. If in time you don't improve and realize the drops don't help then try fresh or frozen.
Doctors can help with some forms of eczema. In fact they have saved my life twice and I am very grateful. If it wasn't for advanced testing like the 5 Day Extended Patch Test diagnosing me with Allergic Contact Dermatitis, ACD I am not sure I wouldn't have committed suicide because I was in such misery. This test identified my allergens, I now know what to avoid for the rest of my life. I could never have guessed what I was allergic to because many contacts have delayed reactions.
Yet you're right about the Witch Doctor theory because like us, they are experimenting with treatments hoping to stumble of a solution. GD is something that has not been figured out. I also believe because eczema doesn't kill us like cancers or heart disease the money is not put into research for eczema like it is for the deadly diseases. For those with Atopic Eczema there is a new breakthrough treatment Dupixent which is making the pharmaceutical company a ton of money. Face the fact, there is no big money in GD for doctors or drug companies yet.
I can't use fabric softeners liquid or sheet because of allergens in them, but I do have soft water which helps and I don't miss softeners at all. Based upon my test results I have many good or good enough cleaning products. Laundry- Liquid- All Free and Clear Stainlifters free of perfumes and dyes does a good job sold at most grocery stores. Dish Soap- Best I have found and I have tried many is Ecover Zero which is good and safe for me as it is free of preservatives and other elements which gave me hand eczema. I buy a case a year on Amazon. I need no protection with this product. My hands are soft and eczema free. You can't get the degreasing strength of Dawn dish soap with any of the "safe for me alternatives", so I wear my vinyl gloves when using Dawn to clean roasting pans and such. I've finally found face makeup for skin and eyes and lips which I can wear daily (still can't find eyeshadow and have given up searching for that). Even with my list of allergens to guide me on what ingredients to avoid about half of what I tried didn't. Finding make-up was an expensive process and the products that I use for make up , except for one, are all from internet based companies and more expensive then what's at the drug store. Plus most are just good enough, but an itch free and rash free face are a blessing. Even with testing it is trial and error. The EWG on the internet is very good for listing and rating the ingredients in products. You can enter Dawn or Cascade and it identifies active and inactive ingredients and rates them. I won't wear any clothing or use any cleaning or grooming products without a complete list of active and inactive ingredients. If it isn't provided I won't use it.