Chemo-induced Peripheral Neuropathy and Breast Cancer

@helennicola
Helen, I am posting a response here to something you said over on the Shingrix discussion (Neuropathy Group), since this is not about Shingrix but rather about cancer. Over there you said "Hank, in Linda’s case getting chemo post cancer is almost a no-brainer so I would not agree that you could/should have done more research or if you would have chosen differently."

I do beg to differ with you that my wife Linda would have still proceeded with the chemo for her breast cancer even if I had done more online research. In fact after only two of the planned six infusions she did quit chemo, a decision that was based substantially on things I did find out online after she started the chemo. She was not cured or helped even a tiny bit by chemo (and her health was seriously harmed, hence the neuropathy and other consequences). After two further subsequent cancer outbreaks and surgeries, she was finally cured by a supplement I discovered online called Haelan951 which I have mentioned a few times in other posts. Here's one:
https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=110#comment-361623
She is now, without further medical intervention (chemo, radiation, etc.) cancer free since her last outbreak in Dec. 2015, to the obvious surprise (and I would even say consternation) of her surgeon and oncologist. And all she does is take this product on a daily basis. Best, Hank

Just received a newsletter from the Foundation for Peripheral Neuropathy for an upcoming webinar that you might find helpful.
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FPN Webinar: Chemo-Induced Peripheral Neuropathy: Quality of Life & Treatment Planning for Breast Cancer & Other Cancer Patients

The Foundation for Peripheral Neuropathy is bringing together a panel of experts for this webinar to discuss CIPN and its impact on patients and their physical and mental health.

Date: November 10, 2020
Time: 12:00 PM – 1:00 PM ET (Please note that this lecture starts at 11 a.m. Central, 10 a.m. Mountain and 9 a.m. Pacific)
Register here: https://register.gotowebinar.com/register/5174813403335669772?blm_aid=116106

Panelists for the webinar are:

Thomas Smith, MD FACP FASCO FAAHPM
Professor of Oncology,
Sidney Kimmel Comprehensive Cancer Center, Johns Hopkins University

Stefanie Geisler, MD
Assistant Professor, Neurology,
Washington University, St Louis, MO

Krista Nelson, LCSW, OSW-C, Oncology Social Worker
Providence Health Systems

CIPN (Chemo-Induced Peripheral Neuropathy) can be an unexpected side-effect of certain breast and other cancer treatments. While the treatments save lives, the resulting CIPN can be life-changing and devastating.

CIPN, depending on its severity, may impact future treatment decision-making requiring effective doctor-patient communication about future options and goals of therapy. Patients often find it difficult to find information about CIPN and are at a loss as to how to discuss treatment options with their medical care providers. Patients are equally unaware of the impact on their ongoing mental health that CIPN can cause.

The panelists will provide the latest information about the causes and treatments of CIPN, offer insight into the patient-doctor relationship, and explore the emotional challenges and medical options in coping with CIPN. The webinar will conclude with a Q&A session.

This webinar is generously sponsored by Athenex Oncology.
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Edited - 12/17/2022 to add link to the Webinar: Chemo-Induced Peripheral Neuropathy
-- https://www.foundationforpn.org/webinar-chemo-induced-peripheral-neuropathy/

I "attended" this webinar and it was super informative!! I asked for my compounding cream to be switched from what it was to what Dr. Tim Smith recommends, along with switching out Lyrica for Cymbalta. I'm giving that a try anyway. This was a great webinar to share with the group!

I am receiving TC Chemo (taxotere & cytoxin). After third treatment, I am experiencing peripheral neuropathy. Tingling, numbness, pain in fingers and bottom of feet. Pain and weakness in legs. It is progressing/worsening. I have one treatment left. Has anyone else experienced this? If so, what did you do?

Research says it cannot be consistently prevented or cured. It may go away on its own after treatment weeks, months, years, or never. It may continue to worsen after treatment completed.

Am working with my Mayo care team, however, interested in others’ experiences. Thanks and god bless.

I am receiving TC Chemo (taxotere & cytoxin). After third treatment, I am experiencing peripheral neuropathy. Tingling, numbness, pain in fingers and bottom of feet. Pain and weakness in legs. It is progressing/worsening. I have one treatment left. Has anyone else experienced this? If so, what did you do?

Research says it cannot be consistently prevented or cured. It may go away on its own after treatment weeks, months, years, or never. It may continue to worsen after treatment completed.

Am working with my Mayo care team, however, interested in others’ experiences. Thanks and god bless.

Hi kk57, I moved your question to this existing discussion in the Breast Cancer group called
"Chemo-induced Peripheral Neuropathy and Breast Cancer." I did this so that you can connect with other members like @elizm @karendb @cancersucks @marshabel @mugs24cancer and @cindylb, to name a few, who have had neuropathy related to breast cancer treatments. You may wish to scroll through the past messages to learn more. Also see the webinar that @staciej posted from the Foundation for Peripheral Neuropathy.

KK, is your team considering reducing the amount of chemo for the last treatment? Other options? How many cycles have you had?