@debbie0985 , 7.5 years ago when my chronic digestive disorders started, I got a lot of quivering and shaking in my upper gut area . It was hard to explain to the Dr’s . I did have a lot of PVC’s with horrendous Gastric symptoms ( it’s still a problem here and there ). My biggest problem is that my body makes enormous amounts of Gas daily . I deep wet burp 3000-4000 or more times a day . My gut and intestines are always in a war zone in there . I’ve seen 4 Gastro Specialists over 7 years. I’ve had about every test done ✅ and redone . I think the shaking in there was definitely caused by the Vagus nerve . I have chronic Gastritis, Esphogitis , Class B GERD , small hiatal hernia , diverticulosis. The belching is horrendous the sound my gut makes if it had food ( I eat a very healthy diet ) or if it’s empty is horrible. I can’t even enjoy a dinner out w/ my husband anymore. I’m now taking antidepressant as of a week ago . I have anxiety meds too thanks to this . No Dr. can figure this out abs I live on Ultra Pepto daily . For the heart ♥️, I take Heart Calm a triple Magnesium I buy from Vital Biologics online ( or Amazon has it ). Over the years I’ve learned that this stuff is the best as it has 3 diff Magnesium and Q-10 to calm heart down . I’ve been on waitlist for Mayo Jacksonville for 7 weeks ,still no appts available they said last week .
This is my last hope .
Im a medical mystery and it’s hard to live this way . I feel for you and everyone on here . I hope you know that you aren’t alone nor are we crazy . This stuff is real and ruins our lives . Have you been to Mayo by the way ?
God Bless you … Rosemary

@Debbie0895. I have had gi pain from pelvis to xiphoid and it’s mainly all down middle of abdomen about 3-4 inch wide path. Had it for 3 years and every month gets worse last 12 months level 7.5-9 and I know how to tolerate pain from bad headaches for 25 years. Could live with those because I could bring pain level down some when spiking. No pills really work. Once when trying buprenorphine at 20 mg broken down thru day to build up in system I had a good 24 hours. Then next day body couldn’t handle it and vomiting. Lost 40 pounds over 12 months but half of it since Feb. 3 er visits over last year. Their pain drugs do nothing oxy, morphine, dauladin, etc. now I’m last 4 months I added a LEG shake. Not at night but once I wake up. The pain wakes up immediately and I feel stress from pain, chest pain tightens but the two main pain areas are under around xiphoid and around and below navel to pelvis.

It hurts all the time. Not really worse with food but can’t eat any big portions. Weight loss in last 12 months due to appetite keeps waning. I had CT’s, mri, MRCP, ultrasound, blood and urine, ct enterography, main injections from pain clinic including celiac plexus block. Only block that helped happened in summer 19 on each far side of abdomen. She said it was illoinguinal and hypogastric block with steroids. Day later basically no pain for two days then came back. Mri of back and lumbar done. New gi doctor said see my surgeon friend. He found my hida scan a diff doctor did late 2019 had an ejection fraction rate of 95. Many folks now getting gallbladder out with only that note from test. No stones seen. He said that or could refer you to friend who can test for MALS. I had to go to ER again two weeks ago due to pain. Went to new gi doctor and surgeons hospital. Stayed one night and their pills didn’t work. Didn’t sleep one minute. I decided I couldn’t wait another month and out with GB. That was 10 days ago today. See surgeon for first time today. I still think end result I will have navel, pelvis and xiphoid pain. Maybe gb gone will finally help with appetite but will have to watch what I eat. I want to see pathology report. He said it had adhesions, inflammation, high pile back up and distended. I don’t know if it was right to remove but felt had no choice. I know our symptoms are not the same but your the first that mentioned Shaking. I believe mine and maybe yours is a release for the body. Mine couldn’t take anymore holding all up and I tend to shake and if planted rub my left leg and foot back and wear my sock out. My arms or head upper body doesn’t shake but leg or other leg depending on sitting or leaning in bed does most of time. If for some reason pain comes down a bit to an 8 it might stop shaking. That last day I felt pretty good in March with the buprin drug I didn’t shake the whole day.

I have tried a few anxiety drugs to no avail and many antidepressants. One psychiatrist tested me dna and doesn’t think it’s any depression. Yes I am totally depressed, it hurts to walk but that might heal more but it hurt before surgery or couldn’t walk fast. I call it a gut ache. It always aches unless sleeping which it doesn’t wake me from. Though once I get 6-7 hours of sleep there is no laying down. Too much pain so I rub feet and rock a little sitting up in bed. It’s hard for all pain sufferers as it’s their Life now. It’s hard to participate and you are tired of people asking How are you , any better. I told everyone I will tell you on med updates just text me about what ur up to or kids doing. I only want to talk to a few people now on phone. If you don’t live with this kind of daily pain you Can’t understand. Some people don’t get that.

Please post back more of your story on the pain, how long, how often, does it move around. I don’t have much acid but can get a lot of nausea and gives me a bad feeling up thru chest into neck and throat some.

I have had some virtual appts with Mayo gi in MN. They have recommended more tests to do at home first. They didn’t think gallbladder. I know this is not pain I can live with for years, it has to change. No one can live with constant pain daily. I finally for now eating 1000-1400 calories a day. For awhile it was real bad. I don’t feel like eating until around 11am-noon. I take low dose suboxone when I get up along with 150mg Wellbutrin. I also take zolpidem 10mg at night to help sleep.

I’m not winning yet but can’t give up yet, I can’t do that to my wife and children. It’s hard though, I get it and your frustration.

Have you figured out what’s wrong? Currently going through the same issues.

Did you ever figure out what caused the internal shaking? I get the same thing at night in my skull when I start to fall asleep!