GI Disorder and Internal Shaking

So question...:do you believe the vibrations were linked to stress/anxiety?

Did anyone ever find out what was causing this? Internal shaking? I have been having it for years. Now my granddaughter is having it and I notice I can feel it through her skin, so I know it's a real thing and now probably inherited. I don't believe it's related to 'gas', since we don't suffer from this, but have been studying 'lectins' and believe it could have something to do with ingestion of foods that cause blood agglutination and then when you are supine somehow that effects your heart? Because mine inevitably causes a tachycardia about the time that I reach REM at night, probably when my body temperature changes. I have worn a watch monitor to try to figure it out and know from a Kardia monitor that it's tachycardia. I have had a transverse myelitis in 2015 from a quadrivalent flu vaccine, so it was interesting that someone mentioned that. I believe that could be a contributing factor. I believe lectins exacerbate that. And give you GI problems. Dr. Gunderson has written some good books about how to have a diet that helps this GI & cardiac problem. I made a chart that works for me and post it to my twitter. I've tried to eliminate most lectins. If anyone has figure it out, please let me know, or if you've found anything to take that helps please let me know, my doctor has run out of things to check for! We're talking about DNA for hypokalaemia and RYR1. I have had a reaction to low potassium with sulpha which stopped when I began taking Diltiazem. But the shaking and tachycardia remains and disrupts sleep.This is much more info than I intended to share, but am just trying to get to the bottom of this internal shaking heart problem. It's like a vibration. It's not in your head. There has to be a physiologic reason, because I can feel it in my granddaughter and she's not making it up.

Hi there. I’m brand new to this board. I was looking up essentially the same symptoms as I’ve seen here but in relation to Pepsid (Famotidine) use. I was wondering how many people posting here uses Pepsid (famotidine) for GI issues but then develops a whole list of side effects due to this medication. I was checking out the side effects of Pepsid a couple nights ago desperately trying to find out which of my symptoms could be attributed to its use or what else could account for the internal jitters; feeling like my heart is fluttering, but it isn’t; anxiety and panic attacks out the wazoo; depression getting worse; headaches; severe gas pain; upper right abdominal pain despite my gallbladder being removed around 8-9 years ago, and many more “mystery” symptoms. When I saw all my symptoms listed as side effects of Famotidine, I couldn’t believe it. But, you know who could believe it? My husband when I told him this revelation twice before. I asked him what he was talking about and he told me that this is now the third time I’ve realized that famotidine (at least) was causing me to have all these symptoms and more and then quit it. The reason I didn’t remember that and then went back to using it again when my acid indigestion and GERD flared up is because it fried my brain that much. I’ve been floating around in a haze for a couple months now wondering why my brain fog was so awful. Can’t find the words for simple things, forgetting what I was even talking about and forgetting the names of basic colours. I’m two days without any famotidine and already the horrific migraines and tension headaches I was suffering from everyday are almost gone right now. The jitteriness is going way down, I don’t have that feeling of complete emptiness that I’ve felt for months now and hopefully the fog keeps lifting. Anyhoo, to make a long story a tad bit shorter, consider your medications, especially the ones for GI conditions. Look up ALL their potential side effects and speak with your doctor. I will never go back on famotidine again. I’m not sure what I will try in its absence but nothing could be as bad as what I’ve felt this past couple months and those other times that my brain fog swallowed up. I hope this can help in some kind of way.
Stay safe and sending my best to all of you 🙂

Hi, I am just wondering if you found an answer to your GI/Internal shaking?
I feel like we have almost same thing that is going on. I experienced gastro issues last year July. Had endoscopy done, Abdominal CT and Pelvic Ultrasound and everything came back normal and eventually I got better. Didn’t notice much apart from occasional indigestion. This year again, just 7 weeks ago I started having bad hyperacidity, abdominal discomfort indigestion despite that I am on omeprazole. My Dr. Increase the dosage for my omeprazole plus famotidine and domperidone. I been experiencing pounding heart rate and pounding and palpitations after meal most and when I feel my stomach needs food again my heart i racing as well. I get fatigue, achy arms even before I feel like I am hungry. 4 weeks ago I started getting this internal shaking at night when I’m about to sleep. Sometimes the internal shaking wakes me up. At times during the day I get internal shaking. I felt like it is connected to my gut. I had my heart monitoring done in 24hrs. Stress test and echocardiogram on my heart. I’m still waiting for my cardiology appointment next month. I’m getting quite anxious of what is going on with me.

@debbie0985 , 7.5 years ago when my chronic digestive disorders started, I got a lot of quivering and shaking in my upper gut area . It was hard to explain to the Dr’s . I did have a lot of PVC’s with horrendous Gastric symptoms ( it’s still a problem here and there ). My biggest problem is that my body makes enormous amounts of Gas daily . I deep wet burp 3000-4000 or more times a day . My gut and intestines are always in a war zone in there . I’ve seen 4 Gastro Specialists over 7 years. I’ve had about every test done ✅ and redone . I think the shaking in there was definitely caused by the Vagus nerve . I have chronic Gastritis, Esphogitis , Class B GERD , small hiatal hernia , diverticulosis. The belching is horrendous the sound my gut makes if it had food ( I eat a very healthy diet ) or if it’s empty is horrible. I can’t even enjoy a dinner out w/ my husband anymore. I’m now taking antidepressant as of a week ago . I have anxiety meds too thanks to this . No Dr. can figure this out abs I live on Ultra Pepto daily . For the heart ♥️, I take Heart Calm a triple Magnesium I buy from Vital Biologics online ( or Amazon has it ). Over the years I’ve learned that this stuff is the best as it has 3 diff Magnesium and Q-10 to calm heart down . I’ve been on waitlist for Mayo Jacksonville for 7 weeks ,still no appts available they said last week .
This is my last hope .
Im a medical mystery and it’s hard to live this way . I feel for you and everyone on here . I hope you know that you aren’t alone nor are we crazy . This stuff is real and ruins our lives . Have you been to Mayo by the way ?
God Bless you … Rosemary

Hi@rozy288, thank you for sharing what you have been thru as well. I am from New Zealand hence I have pretty much limited option compared from you in the US. I hope you’ll find answer to your gastro problem. I could imagine how hard it is for you. My doctor told me that we will take one step at a time, if my cardio came back normal then I might suggest to see a gastroenterologist or someone that deals with vagus nerves. I hate living like this, I feel bad for my husband and kids. I am really praying that God uses my doctors to find cure for me. God bless you too@rozy288

You would think being in USA and my 5th Gastro Dr., that someone could help me by now. NOT So.....Thank you for responding. I'm so sorry that you are dealing with this too. I feel bad for my husband too....it's been a long 7.5 years for him as well. MY kids are 28 and 32 so grown and gone a long time (now just 2 hours away from us). They are busy both engaged now. So I don't like to bother them w/ my problems. They know enough what's going on for so long. They too want me to go to the Mayo Clinic Jacksonville, FL (3 hrs away). So like I said...they have my records 8 weeks now and I'm STILL on Waitlist. I've had so many tests done and I know they will want to RE-DO all the tests which will cost us soooooooo much money in Co-pays and ded out of pocket. So on one had , I want to go so bad...on another...I don't want all the debt that comes with it. It's a double edge sword. Keep me posted on Cardio Dr. and if you see a Gastro Dr. ok...... My brother has been to New Zealand and they loved it. !! God Bless you too @debbie0985

Pinched Vagus Nerve most likley.

@Debbie0895. I have had gi pain from pelvis to xiphoid and it’s mainly all down middle of abdomen about 3-4 inch wide path. Had it for 3 years and every month gets worse last 12 months level 7.5-9 and I know how to tolerate pain from bad headaches for 25 years. Could live with those because I could bring pain level down some when spiking. No pills really work. Once when trying buprenorphine at 20 mg broken down thru day to build up in system I had a good 24 hours. Then next day body couldn’t handle it and vomiting. Lost 40 pounds over 12 months but half of it since Feb. 3 er visits over last year. Their pain drugs do nothing oxy, morphine, dauladin, etc. now I’m last 4 months I added a LEG shake. Not at night but once I wake up. The pain wakes up immediately and I feel stress from pain, chest pain tightens but the two main pain areas are under around xiphoid and around and below navel to pelvis.

It hurts all the time. Not really worse with food but can’t eat any big portions. Weight loss in last 12 months due to appetite keeps waning. I had CT’s, mri, MRCP, ultrasound, blood and urine, ct enterography, main injections from pain clinic including celiac plexus block. Only block that helped happened in summer 19 on each far side of abdomen. She said it was illoinguinal and hypogastric block with steroids. Day later basically no pain for two days then came back. Mri of back and lumbar done. New gi doctor said see my surgeon friend. He found my hida scan a diff doctor did late 2019 had an ejection fraction rate of 95. Many folks now getting gallbladder out with only that note from test. No stones seen. He said that or could refer you to friend who can test for MALS. I had to go to ER again two weeks ago due to pain. Went to new gi doctor and surgeons hospital. Stayed one night and their pills didn’t work. Didn’t sleep one minute. I decided I couldn’t wait another month and out with GB. That was 10 days ago today. See surgeon for first time today. I still think end result I will have navel, pelvis and xiphoid pain. Maybe gb gone will finally help with appetite but will have to watch what I eat. I want to see pathology report. He said it had adhesions, inflammation, high pile back up and distended. I don’t know if it was right to remove but felt had no choice. I know our symptoms are not the same but your the first that mentioned Shaking. I believe mine and maybe yours is a release for the body. Mine couldn’t take anymore holding all up and I tend to shake and if planted rub my left leg and foot back and wear my sock out. My arms or head upper body doesn’t shake but leg or other leg depending on sitting or leaning in bed does most of time. If for some reason pain comes down a bit to an 8 it might stop shaking. That last day I felt pretty good in March with the buprin drug I didn’t shake the whole day.

I have tried a few anxiety drugs to no avail and many antidepressants. One psychiatrist tested me dna and doesn’t think it’s any depression. Yes I am totally depressed, it hurts to walk but that might heal more but it hurt before surgery or couldn’t walk fast. I call it a gut ache. It always aches unless sleeping which it doesn’t wake me from. Though once I get 6-7 hours of sleep there is no laying down. Too much pain so I rub feet and rock a little sitting up in bed. It’s hard for all pain sufferers as it’s their Life now. It’s hard to participate and you are tired of people asking How are you , any better. I told everyone I will tell you on med updates just text me about what ur up to or kids doing. I only want to talk to a few people now on phone. If you don’t live with this kind of daily pain you Can’t understand. Some people don’t get that.

Please post back more of your story on the pain, how long, how often, does it move around. I don’t have much acid but can get a lot of nausea and gives me a bad feeling up thru chest into neck and throat some.

I have had some virtual appts with Mayo gi in MN. They have recommended more tests to do at home first. They didn’t think gallbladder. I know this is not pain I can live with for years, it has to change. No one can live with constant pain daily. I finally for now eating 1000-1400 calories a day. For awhile it was real bad. I don’t feel like eating until around 11am-noon. I take low dose suboxone when I get up along with 150mg Wellbutrin. I also take zolpidem 10mg at night to help sleep.

I’m not winning yet but can’t give up yet, I can’t do that to my wife and children. It’s hard though, I get it and your frustration.

@rt061069 You said you take low dose suboxone in the AM. May I ask why you are taking this medicine and what your experience has been with it?