1. < Osteoporosis & Bone Health

Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

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arlene7 | @arlene7 | Jun 2, 2021
In reply to @sarahw02 "Hello Can you share the results of the Dexa from May please?" + (show)
@sarahw02

Hello
Can you share the results of the Dexa from May please?

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Hi, I shared my results on May 24th post (4:46pm). If you can not find, please let me know. thanks

REPLY
1 reply
bobbo1 | @bobbo1 | Jun 2, 2021
In reply to @dmort "Hi! My doctor has prescribed Evenity for my osteoporosis. I’m extremely afraid of the major cardiovascular..." + (show)
@dmort

Hi! My doctor has prescribed Evenity for my osteoporosis. I’m extremely afraid of the major cardiovascular side effects. Does anyone know how long these major side effects last (i.e. most at risk for 3 days after injection)? Also, why does this medication cause those particular side effects when other osteoporosis medications do not? I’m expecting to get a call soon to set up my first shot so any information would be greatly appreciated.

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A UCLA endocrinologist I consulted said the apparent CV side effects are from a comparison of Evenity with a bisphosphonate, and it turns out that bisphosphonates actually reduce the risk of CV events rather than Evenity increasing the risk.

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2 replies
glennmh | @glennmh | Jun 2, 2021
In reply to @sarahw02 "Hello Can you share the results of the Dexa from May please?" + (show)
@sarahw02

Hello
Can you share the results of the Dexa from May please?

Jump to this post

My Bone Density is -3.2, yours?

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1 reply
glennmh | @glennmh | Jun 2, 2021
In reply to @bobbo1 "A UCLA endocrinologist I consulted said the apparent CV side effects are from a comparison of..." + (show)
@bobbo1

A UCLA endocrinologist I consulted said the apparent CV side effects are from a comparison of Evenity with a bisphosphonate, and it turns out that bisphosphonates actually reduce the risk of CV events rather than Evenity increasing the risk.

Jump to this post

Your Bone Density?

Mine is -3.2 and my Doctor immediately put me on Prolia that is a Serious number

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glennmh | @glennmh | Jun 2, 2021
In reply to @bobbo1 "A UCLA endocrinologist I consulted said the apparent CV side effects are from a comparison of..." + (show)
@bobbo1

A UCLA endocrinologist I consulted said the apparent CV side effects are from a comparison of Evenity with a bisphosphonate, and it turns out that bisphosphonates actually reduce the risk of CV events rather than Evenity increasing the risk.

Jump to this post

What was your Bone Density? mine -3.2 - serious enough for Prolia - did you search internet for side effects etc. of Evenity?

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1 reply
bobbo1 | @bobbo1 | Jun 2, 2021
In reply to @glennmh "What was your Bone Density? mine -3.2 - serious enough for Prolia - did you search..." + (show)
@glennmh

What was your Bone Density? mine -3.2 - serious enough for Prolia - did you search internet for side effects etc. of Evenity?

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-3.5, and vertebral compression fractures. Sure, I looked at side effects, and the one that worries me most is jaw osteonecrosis, but that's also true of all bisphosphonates and Prolia. Only Forteo and Tymlos (and estrogen) avoid that specific side effect.

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1 reply
sarahw02 | @sarahw02 | Jun 2, 2021
In reply to @arlene7 "Hi, I shared my results on May 24th post (4:46pm). If you can not find, please..." + (show)
@arlene7

Hi, I shared my results on May 24th post (4:46pm). If you can not find, please let me know. thanks

Jump to this post

Okay yes thank you I see them now. I am 6 months into my year of Evenity. I Will have dexa in December. I think my hip is -2.3 and spine -2.7 before I started but I will post all of my before and after stats in December.
Fortunately I have had no side effects other than with the first dose when I had injection site pain and swelling. I am 46 years old. Had a stress fracture of the hip last year and that’s when I finally agreed to start a bone builder. My endocrinologist said you can continue to have improvement and bone building for many months after completion of evenity. Plan is to do reclast for 5 years after completion of evenity. She prefers this over prolia because she said I would have to stay on prolia for life vs only 5 years of reclast given my age

REPLY
1 reply
sarahw02 | @sarahw02 | Jun 2, 2021
In reply to @glennmh "My Bone Density is -3.2, yours?" + (show)
@glennmh

My Bone Density is -3.2, yours?

Jump to this post

I am 6 months into my year of Evenity. I Will have dexa in December. I think my hip is -2.3 and spine -2.7 before I started but I will post all of my before and after stats in December.
Fortunately I have had no side effects other than with the first dose when I had injection site pain and swelling. I am 46 years old. Had a stress fracture of the hip last year and that’s when I finally agreed to start a bone builder. My endocrinologist said you can continue to have improvement and bone building for many months after completion of evenity. Plan is to do reclast for 5 years after completion of evenity. She prefers this over prolia because she said I would have to stay on prolia for life vs only 5 years of reclast given my age

REPLY
1 reply
arlene7 | @arlene7 | Jun 2, 2021
In reply to @sarahw02 "Okay yes thank you I see them now. I am 6 months into my year of..." + (show)
@sarahw02

Okay yes thank you I see them now. I am 6 months into my year of Evenity. I Will have dexa in December. I think my hip is -2.3 and spine -2.7 before I started but I will post all of my before and after stats in December.
Fortunately I have had no side effects other than with the first dose when I had injection site pain and swelling. I am 46 years old. Had a stress fracture of the hip last year and that’s when I finally agreed to start a bone builder. My endocrinologist said you can continue to have improvement and bone building for many months after completion of evenity. Plan is to do reclast for 5 years after completion of evenity. She prefers this over prolia because she said I would have to stay on prolia for life vs only 5 years of reclast given my age

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Hoping your scan shows improvement! Keep us posted.
Seems that your endocrinologist recommends the same continuing treatment with Reclast, so that’s reassuring.

REPLY
glennmh | @glennmh | Jun 2, 2021
In reply to @sarahw02 "I am 6 months into my year of Evenity. I Will have dexa in December. I..." + (show)
@sarahw02

I am 6 months into my year of Evenity. I Will have dexa in December. I think my hip is -2.3 and spine -2.7 before I started but I will post all of my before and after stats in December.
Fortunately I have had no side effects other than with the first dose when I had injection site pain and swelling. I am 46 years old. Had a stress fracture of the hip last year and that’s when I finally agreed to start a bone builder. My endocrinologist said you can continue to have improvement and bone building for many months after completion of evenity. Plan is to do reclast for 5 years after completion of evenity. She prefers this over prolia because she said I would have to stay on prolia for life vs only 5 years of reclast given my age

Jump to this post

Your BD is low enough to use other meds

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