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LBD Video Series: You Asked, Leading Experts Answered

May 24, 2021 | Nick Rethemeier | @nrethemeier | Comments (17)

Over the course of several weeks, The Hub will launch a series of videos focused on Lewy Body Dementia. You will hear from experts at Mayo as well as collaborating partners presenting on LBD and ways to manage symptoms and improve quality of life for the person with dementia and their caregivers.

This week's LBD video is an excerpt from the May 3rd Lewy Body Dementia Knowledge and Support Summit. Moderated by Dr. Philip Tipton of the Mayo Clinic, Drs. Brad Boeve, Neill Graff Radford, and Tanis Ferman of the Mayo Clinic, and Dr. Kimiko Domoto-Reilly of the University of Washington answer questions submitted by you via the Dementia Hub, touching on topics ranging from diagnosis,  sleep, medication, and more.

New videos will be posted on The Hub each week. Stay tuned for more engaging content!

1 Reaction

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Kathy W | @klwmfan | May 25, 2021

Very useful and understandable informätion!

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mjthoma | @mjthoma | May 25, 2021

I missed the live presentation and looking forward to replays of the rest of clinic. I wish I had some of this information 2 years ago. Thank You.

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Cheryle L. | @melaniekerena7 | May 26, 2021

Hi I am 61yr.F. Has anyone had Shingles,&Know How oainfully this goes on.3&half minths now..I would appreciate,Any Advice so Painfull.

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4 replies
Moderator
Colleen Young, Connect Director | @colleenyoung | May 26, 2021
In reply to @melaniekerena7 "Hi I am 61yr.F. Has anyone had Shingles,&Know How oainfully this goes on.3&half minths now..I would..." + (show)
@melaniekerena7

Hi I am 61yr.F. Has anyone had Shingles,&Know How oainfully this goes on.3&half minths now..I would appreciate,Any Advice so Painfull.

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Hi Melanie, @hopeful33250 knows first hand how painful shingles are and how long lasting. Please join her and others in this active discussion about shingles pain.
- Postherpetic Neuralgia (Shingles) nerve damage https://connect.mayoclinic.org/discussion/postherpetic-neuralgia-shingles-nerve-damage-around-eye-eyebrow-forehead-scalp-8/

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stellawf | @stellawf | May 26, 2021
In reply to @melaniekerena7 "Hi I am 61yr.F. Has anyone had Shingles,&Know How oainfully this goes on.3&half minths now..I would..." + (show)
@melaniekerena7

Hi I am 61yr.F. Has anyone had Shingles,&Know How oainfully this goes on.3&half minths now..I would appreciate,Any Advice so Painfull.

Jump to this post

Ihad a bad case several years ago and it lasted 6 months tAking gapentin 2 times a day during the entire time
Good luck!

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1 reply
Cheryle L. | @melaniekerena7 | May 27, 2021
In reply to @stellawf "Ihad a bad case several years ago and it lasted 6 months tAking gapentin 2 times..." + (show)
@stellawf

Ihad a bad case several years ago and it lasted 6 months tAking gapentin 2 times a day during the entire time
Good luck!

Jump to this post

Sorry To Hear I wouldnt want anyone to have this.ITS IN THE AREA OF MY MY BREAST LEFT ONE ,GOES TO THE MIDDLE OF BOTH BREAS THEN BACK AROUND TO MIDDLE & UPPER BACK. WORST AREA TO HAVE ESP. UNDER BREAST.THANK YOU FOR UR INPUT .THE TIME PERIOD OF URS. AS MINE KEEPS GOIN.WELL WISHS .

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Cheryle L. | @melaniekerena7 | May 27, 2021
In reply to @melaniekerena7 "Hi I am 61yr.F. Has anyone had Shingles,&Know How oainfully this goes on.3&half minths now..I would..." + (show)
@melaniekerena7

Hi I am 61yr.F. Has anyone had Shingles,&Know How oainfully this goes on.3&half minths now..I would appreciate,Any Advice so Painfull.

Jump to this post

Even though this about dementia i apoligze.im computer illiterate n im on only a cell phone.i do know how to collect info.So ive trythis way.

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judithannek | @judithannek | May 27, 2021

One of the best discussions of LBD.

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | May 27, 2021
In reply to @judithannek "One of the best discussions of LBD." + (show)
@judithannek

One of the best discussions of LBD.

Jump to this post

Welcome, Judith. Do you care for someone living with Lewy body dementia or do you have LBD yourself?

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1 reply
judithannek | @judithannek | May 27, 2021

My husband was diagnosed three years ago and I care for him.

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