(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

<br><br><br><br><br>Exceptional practitioner is right. I went to one in Bellingham, Washington <br>who came from five generations of Chinese medicinemen. One of his decendants was <br>the Emporer's private doctor. I saw him when I was traveling up in that area. He <br>was referred to me by an acupuncturist in Tucson, Az who was taught by him. I <br>was up there in early spring when it was still cold and damp. Of course that <br>wrecked havok on my lungs. I saw him one time for one hour and I left his office <br>breathing clear as a bell and NO cough! It was truly amazing. Not only did he do <br>the needles (which are painless) but also did the 'cupping' on my back. Cupping <br>is a process of using suction to draw the blood to the surface, and I think <br>other things also go on that I don't understand. All I know is that it worked. I <br>also saw a fantastic Chinese M.D. in Manhattan, he used electronic needles. Did <br>not see him for lungs, but for my feet and gall bladder. I was experiencing <br>horrible gall bladder pain from a blockage. After the needles he did some kind <br>of massage of the gall bladder and I felt it squirt and release. After that, I <br>never had a gall bladder attack again. I am sure he saved me from <br>surgery, given the severe symptoms I was having, I am sure my local doc <br>would have wanted to just yank it out. My point is; there are some fantastic <br>options with Eastern Medicine. P.S. I still haven't found a good one where <br>I live now. -Terri M.<br> <br><br>

Would you please provide the name of the Chinese doctor in Manhattan? Thank you.

<br><br><br><br><br>Hi there. I will look for his card. I saved it 'somewhere'. I did find the <br>business card for the dr in Bellevue, Wa if anyone is interested. The dr in <br>Manahatten has a daytime practice in the upper east side. He is available in <br>Chinatown by night. I stumbled upon him by accident when stopping at an <br>accupuncture/massage business. He happened to working that night. Am doing a <br>breathing treatment right now, but will look for his card in a bit. Both of <br>these drs are so amazing that it is worth a flight to go see them. Believe me, I <br>am thinking about it.  -Terri M.<br> <br><br>

<br><br><br><br><br>Hi. It's been yrs since I saw that dr. His card will resurface sooner or <br>later. It is here somewhere! I tried looking him up on-line to see if I could <br>recognize him. I did find two that had good references. One was Wing Tsang M.D. <br>109 LaFayette St in Chinatown. The other is Wang's New York Acupuncture & <br>Chinese Herb Clinic. 159 W. 53rd St Suite 218 917-565-8337 (near the Museum of <br>Modern Art) I will keep searching for the one I saw, but, these two sound good <br>to me. -Terri M. <br> <br><br>

Thank you. It is appreciated.
Terry

@windwalker, Terri I have an excellent acupuncturist in Minneapolis if anyone is interested. I found him very helpful for a number of issues. Hope it helps someone! I have found it helpful to combine East and West in my quest for better health! Katherine

Doing my "due diligence" .. in my notes I found:

Dr. Huan Ma Acupuncture Health Center 952-922-5000 Dr. Huan Ma comes from a long family line of Traditional Chinese Medicine (TCM) doctors and completed his PhD in acupuncture and internal medicine at Tianjin University of TCM. He has served as the supervising physician at the Acupuncture and Chinese Affiliated Outpatient Clinic of Tianjin University and was a contributing author to Integration of TCM and Western Medicine Emergency and Practical Internal Medicine. He is a Diplomate of Acupuncture certified by the National Commission for the Certification of Acupuncture and Oriental Medicine and is licensed by the Minnesota Board of Medical Practice. Dr. Ma is dedicated to teaching and developing acupuncture in America and has served as Associate Dean of Acupuncture Clinical Services at Northwestern Health Sciences University. Dr. Ma is a renowned specialist in pain management and in the treatment of the most difficult and complex of medical cases

Sputum Test Results
Posted by @windwalker in MAC & Bronchiectasis, 18 hours ago
Hi ALL! Good news to share. Got my last sputum test results yesterday. All Clear! No organisms found!! Yay!!! That is especially great news to me because I tend to get three different kinds. MAC, pseudomonas, and aspergillums

@windwalker Terri, I am posting this on the Main Forum .. BECAUSE I want you to get ALL the congratulations you so well deserve!! I am SO happy for you! YEAH!! Way to go girl! Big Hugs to you! Katherine

So happy for you!Terri.

Dear All,
As I have said to Colleen .. it is much easier for me to give than to receive .. as such I am oh so aware of the caring and support you all feel for me .. but truthfully it sometimes makes my journey more difficult for me if your support is more than just a silent hand over heart message of positive energy .. know that I will receive that positive energy and become stronger for it .. energized by my dear Forum. That is what I need from you right now .. not the need for me to return any actual posts of support and caring .. I know you care without your posts.

That said I have some news to convey. I have been very ill since February 5. At times too ill to reply to your posts .. and as Colleen told me .. the Universe knew .. and there were NO POSTS during that early period! It was too funny! Finally toward the end of that silent period one unnamed member said .. to paraphrase .. "Why, with no posts for so long .. I thought everyone had been cured of MAC!" So for those 9 days it was pretty rough. Since then, my only activity has been to answer my Mayo Connect. Your posts have been my "happy place" .. even though many of you are going through tough times .. we all remind ourselves of "the journey" .. it's downs .. BUT it's many UPS!

I finally got an appointment at Mayo Clinic in Rochester for March 7 due to a cancellation.

So the news:
Yesterday was a tough day. Today is a better day. Yesterday I saw Dr. Timothy Aksamit at Mayo Clinic who I have a world of confidence in. The news was not great .. can always be worse .. good news was that my MAC has NOT returned! BUT it turns out that as a result of my compromised immune system and my Bronchiectasis .. I have developed a different bacteria .. Like Mac .. it is not curable .. only treatable. .. called Pseudomonas Aeruginosa. Several of our MAC & Bronchiectasis members have the same bacteria.

Dr. Aksamit is going to first try 500 mg Cipro 2x a day for 28 days .. which I have heard referred to as a "cannon" antibiotic .. hopefully that will "stabilize" this new bacteria as my MAC has been stabilized since May 2014.

If the Cipro does not work .. then I go on a 28 day on 28 day off cycle of an inhaled antibiotic called Tobramycin. Obviously I am hoping the Cipro works!

Dear All,
I HIGHLY suggest those of you who have Bronchiectasis or MAC sign up for newsletters at: https://www.nationaljewish.org/ .. look at the bottom to sign up.

REALLY interesting info on: Attached you will find the November 2016 issue of NTM-TB Insights newsletter. Articles in this issue include:
Has the Time Come to Require Nontuberculous Mycobacteria Reporting?
Centers for Disease Control and Prevention (CDC). Reported Tuberculosis in the United States, 2015. Atlanta,

NTM-TB Insights Newsletter November 2016

***NOTE: ALREADY 11 states have Required Reporting for Nontuberculous Mycobacteria!! I didn't even know that!!

Hugs! Katherine