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Transplants | Last Active: May 16 1:00pm | Replies (441)
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@gingerw I will inform tomorrow. The first year, on Prograf then on Mycophenolate gave me severe diarrhea. But on the Envarsus XR and cyclosporine I have other side effects. I know all meds have side effects, but these are bad ones. Hoping someone out there has minimal side effects. There was a bookkeeper I worked with years ago who had 2 kidney transplants since she was 14. The first one lasted 30 years and the second is still going strong. That was in 2015. She didn’t say anything about any problems. I didn’t think to ask.
Replies to "@gingerw I will inform tomorrow. The first year, on Prograf then on Mycophenolate gave me severe..."
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@missdi, I want to add my Welcome to Mayo Connect. Happy belated transplant anniversary!
I am a liver and kidney recipient. I am still taking Tacrolimus and Mycophenolate after 12 years and have not had any side effects like you, and some other members, have had. However, I know that you are not alone, because other members have been sharing their uncomfortable side effects.
Here is where you can join in their conversations or just read what others are saying. If you add their @name, you can direct a question to a particular individual.
Transplant Discussion - Transplant anti-rejection medications. What's your advice?
https://connect.mayoclinic.org/discussion/your-anti-rejection-medications/
Transplant Discussion - Tremors post kidney transplant
https://connect.mayoclinic.org/discussion/tremors-post-kidney-transplant/
Transplant Newsfeed Blog: Immunosuppression: Watching For and Managing Side Effects
https://connect.mayoclinic.org/blog/transplant/newsfeed-post/immunosuppression-watching-for-and-managing-side-effects/
I do hope that you will find some comfort after you speak with your transplant team.
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