Has anyone experienced internal vibrations?

Hello @bamma, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. 10 years is a long time to be dealing with internal vibrations and not have any answers. It sounds like you have had a lot of different tests to rule out MS, Parkinson's and more.

I'm not sure if you have already seen this information but thought it could be useful or helpful for learning more about your condition.
-- Internal Vibrations: Is it MS, Parkinson's, or Something Else?: https://www.healthline.com/health/internal-vibrations
-- Tremor Fact Sheet | National Institute of Neurological Disorders and Stroke: https://www.ninds.nih.gov/disorders/patient-caregiver-education/fact-sheets/tremor-fact-sheet

Do you keep a diary of when your internal vibrations occur? The first link above has a section called Tips for monitoring your symptoms that gives you some tips for keeping a diary of your symptoms to help discuss with your doctor, neurologist or care team.

THANKS FOR THE INFORMATION JOHN. I HAVE BEEN RESEARCHING, OBSERVING AND DOCUMENTING FOR YEARS TO NO AVAIL. I POSTED TO LET THOSE NEW TO THIS ISSUE KNOW THAT IN.MY CASE THIS IS NOT LIFE THREATENING. I LIVE IN RURAL VIRGINIA AND HAVE NOT TALKED WITH ANYONE DEALING WITH THIS ISSUE. BAMMA

Hello @jen14kay and welcome to Mayo Clinic Connect. Thank you for joining the discussion. You mentioned that your vibrations started 3 years ago in your legs and is now everywhere. Can you share more about what you meant by "next step"?

Hello @bamma

I read with interest your post about internal shaking/vibrations. I see that you have been evaluated quite well for neurological problems and I see that John (@johnbishop) has given you some great ideas and research links to read.

While I know that you said that Parkinson's (PD) has been ruled out, I wanted to provide you with some other information. I've been diagnosed with PD but it is definitely atypical in symptoms. I have gait/balance problems. Sometimes I walk in a staggering fashion. I've also had PD voice problems and other typical PD symptoms but without tremors. As a result of being in PD support groups, I've found that many people have what is referred to as "internal tremors" or the shaking/vibrating inside their body, but not outward tremors. At first, doctors called it anxiety and gave them anti-anxiety meds (the worst thing for PD) and/or sent them to a psychiatrist, etc. It wasn't until the movement symptoms became more noticeable that they got a PD diagnosis.

I'll share with you a post by one of our members who has PD that is related to his exposure to Agent Orange while he was in the military. His doctor called this internal shaking, muscle spasms.

While I'm certainly not trying to diagnose you and I'm not a medical professional it might be good for you to at least look at his post. Here is the link, https://connect.mayoclinic.org/comment/335142/.

Do you have any other movement problems besides this internal shaking, such as difficulty with balance, gait, walking, falls, etc.?

I'd like to know how you are coming along with this problem. Will you keep in touch?

I hope the medical cannabis is helping you. It really helps me with a lot of the Parkinson’s like symptoms. I have been utilizing for a couple of years for many ailments and for me it helps. I highly recommend - like the path you are following - to take the time to go the medical marijuana route and not recreational.

HELLO, LARRY THANKS FOR YOUR COMMENT. ACTUALLY YOU CAN HAVE THE EFFECTS OF BOTH MEDICAL (CBD) AND RECREATIONAL (THC) IN LIEU OF XANAX OR OTHER ANXIETY MEDICATIONS. EACH HYBRID ADDRESSES SPECIFIC ISSUES. IF YOI ARE INTERESTED OR JUST CURIOUS CHECK OUT ILGM.COM. TAP ON THE PICTURE OF EACH TO FIND THE EFFECTS. BAMMA (A CHILD OF THE SIXTIES)

Aloha - Right on all accounts. I for sure was a child in the 60s!! This is my opinion - very subject to being fallible. I dont think we should put THC into the category of recreational. Both THC and CBD have their roles in the medicinal world. On recommendations in Florida we have it broken down for Medical Marajuana (high THC) / Low THC =CBD.

This info is meant to build upon your great points!!!

Of course it is the terpenes / terpenoids that do the work. Most of us already use terpenes in our daily lives and don’t realize it - mostly for aromas and flavoring. They are not in amounts that should effect you because of the small concentrations. It is when we get into larger amounts when the medicinal aspects can become apparent.

Here is a little more info on terpenes - https://www.trulieve.com/discover/blog/what-are-terpenoids-and-why-are-they-crucial-to-the-effects-of-cannabis
This site gives a listing of well known / widely used terpenes - their common uses and what they can provide medicinally.

You are right - there are many things to be taken into consideration. For instance - do you want / need a hybrid? Then you would have to decide if you want an even indica / Sativa hybrid, an indica leaning hybrid or a sativa dominant hybrid. If you dont want a hybrid - then choose either a Sativa or indica. Also you can choose from ratio products ( i,e, a ratio of 5 parts CBD to 1 part THC for a 5:3 ratio). Then move on to the strains. Most people associate sativa with daytime in mind. Most associate indica for evening / night time (not a one size fits all statement).

All of the above are reasons it is imperative that you work with a good medical marijuana doctor. One that will take the time to review your medial history to make recommendations and help choose ratio products, hybrid products, sativa or indica which might be best for you.

Like other meds - you will have to try a few different products to find what works best for you. Many people find that they will use a few products - like one for daytime, one for evening and one for bedtime.

Another good site for specific strain information and some educational materials. http://Www.all bud.com

I just realized i went way too deep - but maybe someone will find this entertaining 🙂

LARRY, I CONSIDER MYSELF FORTUNATE THAT MY ONLY ISSUE HAS BEEN VIBRATING HEAD TO TOE FOR THE...LAST 10 YEARS. I HAVE LEARNED TO PUT MY CONDITION ON THE BACK BURNER DAILY. IT IS SHAMEFUL THAT THIS MEDICINAL PLANT HAS BREN DEMONIZED AND THOSE WHO USE IT STIGMATIZED.. I CONSIDER IT THE 'DUCK TAPE' OF MEDICINAL PLANTS. THINK OF THE MILLIONS WHO COULD HAVE BENFITTED. THANKS FOR THE INFORMATIONAL LINKS. BAMMA

Totally agree!!!

I have had internal vibrations, from head to foot, for 4 1/2 year. In the past year, my upper thigh muscles have begun to ache. They are very sore. My eyesight is also being impacted. I also have tinnitus. It began at the same time as the internal vibrations. No diagnosis. However, I also had a cerebral venous sinus thrombosis and a dural arterial venous fistula in my brain. I believe it is likely the clot and fistula caused some nerve trauma or damage and may be contributing to the internal vibrations.