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Transplants | Last Active: Oct 24 12:37pm | Replies (445)
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Hi @missdi! I received my new heart 4 years ago and have had several changes to my meds. I was taken off of tacrolimus due to its negative effects on my kidney output. It also made my hair fall out! I hated that. I was placed on sirolimus which seems to be less toxic to my body with no real bad effects. I take prednisone every day and will do so probably for the rest of my life due to an underlying sarcoidosis illness that caused my heart failure. The prednisone has given me chipmunk cheeks that I can't get rid of and can make me edgy. I don't take many other drugs - I've been fortunate that way. I hope this helps. Take care.
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Hi @estrada53 Thats wonderful. Nice to know the side effects are minimal with you now. I only took prednisone for a couple months after surgery. Don’t worry about the chipmunk cheeks.....I’d take that any day. Dr’s have changed my meds a few times already. I’ve had different side effects with each one. The first two medications I thought were really bad but I’ve traded them for feet swelling, body cramping, inflamed gums, severe magnesium deficiency (which about twice a month I go for magnesium infusions). I also get weekly labs. I have a video visit on Tuesday with my Dr. She just put me on Cyclosporine a month ago. So will see how it goes. Thank you for your comment. It does help.