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Starting today, The Hub will launch a new video series focusing on Lewy Body Dementia (LBD). Over the next several weeks, you will hear from experts at Mayo as well as collaborating partners presenting on LBD and ways to manage symptoms and improve quality of life for the person with dementia, and their caregivers.
This week’s video is an excerpt from the May 3rd Lewy Body Dementia Knowledge and Support Summit. Todd Graham, Executive Director of the Lewy Body Dementia Association (LBDA), shares resources and services of the LBDA.
Todd has over 35 years of strategic and business development experience in multiple facets of healthcare communications with a focus on patient and provider education.
Follow the Hub each week as new videos on important topics are presented!
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No contact information given!
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1 ReactionHello @barfly, What contact information are you looking for? The LBD association's contact information is given in the video. Perhaps you are looking for something else? Let me know and I'll try to help.
anything that improve my panic when i loose my way or direction
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1 ReactionThis is something that happens to me. When I started to get lost when driving (dont drive anymore) it was unnerving. I definitely felt VERY anxious. It started off subtle and lasted maybe 10 seconds. Now I am a full time passenger and am lost a good part of the time. Always asking where are we at?
My mom taught me some bio feedback techniques that help when i get feeling anxious.
I try to look for clues that might spark a memory that can help know where i am at.
I also utilize a high concentration CBD to THC product . For me a 12.5 part CBD to 1 part THC seems to help best. I have been utilizing this for ~2 years along with a couple other products for more advanced pain.
Thi also helps me with mood - staying more level - helps with the mood swings. And a big thing for me - it helps me with sleep.
Of course - w have to be very careful so we don’t interact with one of the many meds we could be on - so when you meet with a medical marijuana doctor - make sure they are not a card mill - meaning they dont really do much except say - yup you qualify. I researched and found an osteopath that was also a MMJ doctor. He spent over 2 hours with me before coming up with a proposed treatment plan. We tweaked it as time went on to find the best products for me.
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1 ReactionIf you are looking for the website - http://www.Lbda.org.
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1 ReactionHello @estpark2
I am so sorry that you are experiencing this kind of panic. That has to be very stressful to lose your way and direction. Please see Larry's (@larryh23) post about that above.
How long ago were you diagnosed with LBD? Are there any other questions you would like to ask?
4years ago,tks
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1 Reactionif you wish to contact LBDA info@LBDA.org or tgraham@lbda.org