Benign Cramp Fasciculation Syndrome

Hello @jhn48110, I might be mistaken but I think CFS and BFS are a similar condition only the cramp fasciculation syndrome is a more severe form with the cramping. There is another discussion which is probably better for you if you want to check it out.

Benign fasciculation syndrome (BFS): https://connect.mayoclinic.org/discussion/benign-muscular-fasciculation/

Here are some reference articles you might find helpful if you have not already seen them.
-- Benign fasciculation syndrome: What causes muscle fasciculations?: https://www.medicalnewstoday.com/articles/320388
-- Excerpt from article below - "My diagnosis changed from benign fasciculation syndrome (BFS) to cramp ... I do not have amyotrophic lateral sclerosis (ALS) or multiple sclerosis (MS) and ..." - Living Each Day to the Fullest - GBS/CIDP Foundation: https://www.gbs-cidp.org/patient-stories/living-each-day-to-the-fullest/

Have you had a punch test skin biopsy done? That can determine small fiber neuropathy but not the cause. Helen

My doctor passes off the fasiculations as overworked muscles. Do you agree?

I was diagnosed with cramp Fasciculation syndrome in 2012. Horrendous stuff. I have tried various meds throughout the years. Many stopped working and many I didn’t like the side effects. The ones I have stuck with are Duloxitine, tramadol, and baclofen/tizanidine…I also love Epsom salt soaks and Zims Max Freeze roll on for cramps that won’t go away. God bless..find a good support group on Facebook helps too.

I have been having muscle twitches all over my body. Cramps in both lower leg cramps for a year now. My nurse practioner assures me that it's not als but I'm worried. Any advice is greatly appreciated

I too have CFS. 4 years now. I am on Ropinirole, clonazepam and baclofen. It has helped but I still get the cramping and twitches. Just not as much. Good luck on your journey.

Welcome @jeanniekuchera123, I think anytime an unknown cause of something bothering you, it can cause a lot of stress and worry. I'm pretty sure most of us have had the same feelings at one point. Here's an article that may provide some suggestions to try --- Muscle twitch: Causes, symptoms, treatment, and prevention: https://www.medicalnewstoday.com/articles/324641

@captainanxiety8 @slturley and others may also have some suggestions or information for you.

Did your doctor or NP provide any suggestions or treatments to try?

She said that she didn't think it's serious, but I'm going to a neurologist. Takes so long to get in; that i've thought about going to ER

Hello, this is my first post in this group. It has been a long road of doctor's visits, tests, medication's, stress, anxiety, and a lot of frustration. Unfortunately, I had to give up my job due to the spasms and medication. Since being diagnosed in 2018 it seems like any new issues I have is attributed to the Cramp Fasciculation Syndrome. I have very severe chest pains, trouble swallowing, and possible breathing issues. I have had tests to rule out cardiac, stomach and bowel, and will be seeing a pulmonologist. I was just wondering if anyone else has had this much trouble with this diagnosis.

I have the severe chest pains and have two trips to the ER thinking it was a heart attack. I have learned to differentiate the CFS from the heart attack, I hope, lol. My body is consumed by pain, it controls me.