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Benign Cramp Fasciculation Syndrome
Hello, has anyone here been living with the struggles of Cramp Fasciculation Syndrome? I was just diagnosed last week after months of horrible cramping. Can anyone tell me what has worked for you? I am interested in connecting with other people who are suffering with this.
Thanks in advance.
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Hello, this is my fist time posting. My neurologist just recently told me that I most likely have Benign cramp fasciculation syndrome. He is waiting for some blood work to make sure it isn't something else. I've noticed that whenever I look it up, all I find is cramp fasciculation syndrome. Is there a difference between Benign cramp fasciculation syndrome and Cramp fasciculation syndrome?
Have u tried putting Magnesium Gel on the area of fasciculations? It sure stops mine!
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1 ReactionI don't have a diagnosis yet, but my legs go CRAZY when I try to sleep. A PT friend suggested Theraworx foam ($18 on Amazon). It's a Magnesium foam, and it works well for me, in addition to Baclofen and sleeping in my recliner that goes back far enough to keep my feet just above my head. My friend also suggested a weighted blanket, but I haven't tried it yet.
I wish you well and hope you find a way to sleep!
I’m a 67 y/o Aussie male who has had CFS all my life. Started mainly in feet, toes, hands & fingers several times a day. It now affects those areas several times an hour. I’ve been diagnosed by to Brain & Nerve professors who have each prescribed various medications, each of which gave no relieve but only depression. As the years have gone on, other areas of my body now cramp up. Legs, arms, back, jaw, tongue, abdomen and diaphragm, the last two, though scary as it‘s difficult to breathe, they aren’t the most painful. (Cramps in the anal sphincter muscle are the most painful.) Fasciculations occur in several muscle groups continually. Both professors showed great interest when I explained that both my sons (from different mothers) also appear to suffer from CFS, yet my daughters show no signs. We, me & my sons, are undergoing genetic testing to help in the research.
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1 ReactionWelcome Tim @tim6580, Sorry to hear you haven't found much relief for the cramp fasciculation symptoms. I know it has to be frustrating. I'm pretty sure you are not alone in your search. There are quite a few other discussions and posts that you might find helpful. Here's a link with the search results that shows the different discussions and posts for "cramp fasciculation +genetic" - https://connect.mayoclinic.org/search/?search=cramp+fasciculation+%2Bgenetic.
Have you done any research on how genetics may be involved? Google Scholar is a great tool for finding medical research articles - https://scholar.google.com/