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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Joined: Feb 13, 2017 Posted by @21042, 13 minutes ago
I talked to my pulmonologist on Tues. and i brought up probiotics to her. She said these three antibiotics do not attack the good bacteria in the gut, that they only work for nothing but mac. Did your doctor recommend them? Im so confused. She said they would do nothing. I have been so sick today. An hour after i took my meds last night i vomited it all up and have been sick since. The first day i took all the meds at 9:00 pm. and went to bed. I did fine. I ate at 6:00 pm. Ive never had anything make me so ill. Im so nauseated i cant eat, but i know i cant continue not eating. Also my dr. gave me Ondansetron 4mg. for nausea. Doesnt help a bit.
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@21042 .. Kathi I think you can already tell I am a pretty straight shooter .. I tell it like it is .. so here goes. Your doctor is NUTS .. AND poorly informed!! You can tell her that Dr. Timothy Aksamit at Mayo Clinic, Rochester MN .. a worldwide respected EXPERT on MAC told ME to start on probiotics the FIRST time he started me on antibiotics! Plus if you read through the pages of our Forum you will read how much probiotics are helping our other members. Kathi, do what feels right for you and your body .. BUT I just wonder how many MAC patients your Pulmonologists has treated in the past 12 months?? Sorry, but she just doesn't seem up to speed enough to help you to your best self.
Please re read the above message from Posted by @pamelasc1, 3 days ago .. might that help you? I feel so bad for you .. BUT do NOT give up .. it is so tough in the beginning but it DOES get better .. just put one foot in front in front of the other. We will all be here for you. I am answering you an the Main MAC Forum .. I want you to get more support from more of our wonderful members! I am sending you a BIG Hug! Katherine
Replies to "Joined: Feb 13, 2017 Posted by @21042, 13 minutes ago I talked to my pulmonologist on..."
Thank you
A few days ago there was a notice about a Mayo Clinic conference in May in D.C. about bronchiectasis and MAC - but now I can not find it. Does anyone have a link for this so I can get the details? Thank you, Pamela
This is 21042 Kathi. Pamala ive taken the same schdule as you suggested to me. Took all three meds at 9:00 pm. Slept 5 hours, went for a bathroom break, slept another 4 hours. Felt pretty well this morning and actually ate a decent breakfast. Nothing has sounded good to me and mostly nauseates me. But this morning when i got up half an English muffin with peanut butter and a little bit of jelly on top, and fresh orange. Its the first food that tasted good to me and didnt make me nauseated. I lik your schedule because you actually have two full days between meds and on the weekend you have three. I may feel like going to church tomorrow. Thank you for helping me.
Thank you so much. I really was ready to give up. I was soooo sick. Pamala has helped me with a schedule thats working for me. Thank you Pamala.
@21042, Kathi and @pamelasc1 .. Pamela .. I am just jumping for joy!! This is just wonderful! Pamela you are a star for coming up with this schedule! I am going to recommend it from now on for people getting started!! Kathi I am so happy for you .. keep us posted!
Hugs to all! Katherine
Thank you Katherine. I like to have a friend be a "straight-shooter". I will definately get on the probiotics. Anything that will improve my health, i want to do. Im doing better today after my meds. Now i need to gain some strength by eating. With the nausea, i've had no appetite, but today im actually hungry and i want only good food in my body.
@21042, Kathi, I'm so glad! Just put one foot in front of the other .. each day will get better .. we promise .. we have all been there. You are only given one body in this lifetime .. take good care of it .. feed it good food .. care for it .. so it can take care of you for the rest of your lifetime! It gets better .. we are all here for you! Sending you a hug! Katherine
<br><br><br><br><br>Hi Pam, Per your request for info on that conference in D.C. You will have <br>to Google this as I do not know how to bring in an outside e-mail to this group. <br>Here is what you need to search: NTM & Bronchiecstasis Physician/Patient <br>Conference this will also include the registration form. The event is on <br>May 19 at the Georgetown University. I am thinking of going as well. Wouldn't be <br>great if a whole bunch of us from this forum went and got to meet each other? <br>Terri M.<br> <br><br>
Thanks Terri for the information about the conference on May 19 - I will go online and get more info... if I do decide to and can attend, I will let you and the group know as it would be great to meet up with anyone who goes who is in our group. Let's keep in touch on this. Pamela
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<br><br><br><br><br>Hi Terri! How is it going at the Mayo in Florida? Terri M.<br> <br> <br><br>