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@katemn

Joined: Feb 13, 2017 Posted by @21042, 13 minutes ago
I talked to my pulmonologist on Tues. and i brought up probiotics to her. She said these three antibiotics do not attack the good bacteria in the gut, that they only work for nothing but mac. Did your doctor recommend them? Im so confused. She said they would do nothing. I have been so sick today. An hour after i took my meds last night i vomited it all up and have been sick since. The first day i took all the meds at 9:00 pm. and went to bed. I did fine. I ate at 6:00 pm. Ive never had anything make me so ill. Im so nauseated i cant eat, but i know i cant continue not eating. Also my dr. gave me Ondansetron 4mg. for nausea. Doesnt help a bit.
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@21042 .. Kathi I think you can already tell I am a pretty straight shooter .. I tell it like it is .. so here goes. Your doctor is NUTS .. AND poorly informed!! You can tell her that Dr. Timothy Aksamit at Mayo Clinic, Rochester MN .. a worldwide respected EXPERT on MAC told ME to start on probiotics the FIRST time he started me on antibiotics! Plus if you read through the pages of our Forum you will read how much probiotics are helping our other members. Kathi, do what feels right for you and your body .. BUT I just wonder how many MAC patients your Pulmonologists has treated in the past 12 months?? Sorry, but she just doesn't seem up to speed enough to help you to your best self.

Please re read the above message from Posted by @pamelasc1, 3 days ago .. might that help you? I feel so bad for you .. BUT do NOT give up .. it is so tough in the beginning but it DOES get better .. just put one foot in front in front of the other. We will all be here for you. I am answering you an the Main MAC Forum .. I want you to get more support from more of our wonderful members! I am sending you a BIG Hug! Katherine

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Replies to "Joined: Feb 13, 2017 Posted by @21042, 13 minutes ago I talked to my pulmonologist on..."

You will find several shown under products, i.e., 12.5. The pharmacist placed an order for me. Tessie

Rosie - this is Pamela - my probiotic is dairy free - it is made by Jarrow and called Ultra Jarrow Dophilus - 50 billion per capsule. I take it mid day with applesauce just after lunch as I take my meds for MAC after dinner so I try to keep them separate. As to your cough, early on when I first began the meds for MAC my cough got much worse and I was coughing up stuff I could not believe - my doctor had the sputum tested for pseudemonis, and that is what I had, above and beyond the MAC - has to be treated with Levofloxacin. Once I got on that, it cleared up within 3 weeks and no more coughing up terrible stuff - you may want to get a test for pseudemonis, just to rule it out. Pamela

Kirkman brand is allergy free and a safe facility.

@pamelasc1, Pamela, that is REALLY interesting! When I am coughing so bad I think my ribs are about to crack .. I just think it must be my Bronchiectasis or Reactive Airway Disease and just put up with it .. Hmm .. I NEED to listen to my own preaching and be my OWN best advocate! I just never thought of things like Pseudomonas .. not to be crude .. but what color was your sputum .. that could be a tip off for the rest of us. Pamela, thank you for this info .. it is helpful for all of us. Hugs! Katherine
http://www.medicinenet.com/script/main/art.asp?articlekey=20161

Hi there,I had pseudomonas this past fall. I had to have a PICC line inserted & 21 days of IV antibiotics. I've been coughing for 10 years now but the pseudomonas cough was quite different. I had a overwhelming amount of mucous when I would lie down for bed. I would wake up "drowning" in mucous in my airways. It was just awful & jarring!!! The sputum had a distinct taste, smell & color (dark gray & dark green). This was when my bronch culture hadn't completely grown out yet to show the MAC, but the MAC was there during the time that I had the pseudomonas. Yucky stuff & not to be messed with! ~Jen 🙂

<br><br><br><br><br>Gosh Jen, I feel for you! Pray you feel better soon. -Hugs to you! Terri <br>M.<br> <br><br>

Hi, this is Kathi again. Just thought i would check in since i havent posted for a while. I am doing great on these meds. By following Pamala's schedule of taking my meds between 9-10 at night-all at one time, i am no longer sick all the time. Im even back singing in the choir and my energy level is improving daily. I was losing weight (which i didnt need to do, but a 94 year old choir member told me to get Carnation Instant Breakfast and mix a scoop of ice cream in it daily. She said when she was in the hospital in St. Louis, she was told to do that. Its been good because i get more of my daily vitamins and minerals. I use skim milk, so i get my daily calcium. I go for a CT scan tomorrow to see how i'm doing. My doctor will be happy that i no longer am sick from the meds. With all the encouragement on this forum, i kept going and it DID get better. Thanks , (21042) Kathi

@21042, Kathi, thank you SO much for checking .. so glad you are doing so well. I have @pamelasc1 .. Pamela's med schedule in my File Cabinet to recommend in case members are having nauseas issues. So glad it worked for you!

Really like the idea for weight loss: "skim mild, Carnation Instant Breakfast and mix a scoop of ice cream in it daily. She said when she was in the hospital in St. Louis, she was told to do that." I am going to put that one in my File Cabinet . good idea! Thanks for letting us know how you are doing .. good to hear from you! Let us know how your appointment goes! Hugs! Katherine

<br><br><br><br><br>So glad to hear that you coming along nicely on your meds and feeling some <br>improvement. <br> <br><br>