Has anyone experienced internal vibrations?

@lacy2 Yes I take Latanoprest thanks for the tip

Hello, I am new to the group. I really appreciate reading the various stories about the development of the internal tremors and what works and doesn’t work. So, thank you for sharing. My story is that I am 69 years old. My internal tremors began four years ago. They were accompanied by tinnitus. The tinnitus sound was similar to holding a conch shell to my ear and hearing that type of noise. So, it wasn’t terribly unpleasant but was annoying. Initially my internal tremors were mild. I had just worked hard on getting my house ready to put on the real estate market. I thought I was just overly tired, etc. Four years later, they have not only continued but progressed. I have them from my head to my toes. They occur all day and everyday. They are not noticeable to others. My muscles on the top of my thighs frequently ache. I can feel a hard lump in my leg. I have also frequently had muscle cramps but mostly on my left leg. Interestingly, all my significant medical conditions occur on my left side (DVT, CVST, Dural Arteriovenous Fistual, pulmonary embolism, lung nodules). My blood tests have come back normal. My EMG was normal. My movement disorder doctor stated there was nothing else they could do and did not have a plan to assist me other than to say if I develop new symptoms to give her a call. One of the neurologists that I saw yelled at me and stated that because I was a mental health therapist I should be able to figure out what the stressor is and manage it. He was sure it was anxiety. There is nothing I find to be more of an indicator of incompetence than when a doctor, therapist, etc, takes one symptoms and leaps to a conclusion. I confidently told him my internal tremors were not caused by stress/anxiety. He stated I didn’t need to see him again but to call him if my symptoms change. I told him I concurred about not seeing him again but would not be calling him if my symptoms changed!

@lacey2-when pain becomes chronic, the nervous system gets involved. Yes the brain is the control center of the body. The two do not operate separately. Do not underestimate how an overly, prolonged, stressed nervous system can contribute to all kinds of things. This is why most doctors are of little help, ESPECIALLY ER doctors to people with chronic issues, because it becomes a sensitization of the entire system. This is why you can hear a pin drop, but not the TV. An anxious system is on high alert waiting for danger, hence a random unexpected noise. It’s a “what’s that?” reaction. This is no different than what is going on in the body with bodily sensations.
Constantly googling symptoms, unfortunately feeds that anxious need. You are actually rewarding your brain for keeping you on high alert, by googling a symptom. So the cycle continues. It does not calm the nervous system to be on the hunt for a problem. Is there a way to work with someone who is an adjunct to the other things you are tying? Like someone experienced in somatic therapy? When the system can calm, the heightened sensitivity, pain can lessen a bit. Just some thoughts.

I think you have lyme disease

Anxiety is one of those experiences/conditions that is often viewed in negative terms and used as a fall back when physical symptoms/medical conditions cannot be explained. As a mental health professional, I would never diagnose someone with anxiety or use anxiety as a reason for a physical symptom/medical condition without doing an evaluation. All of us experience anxiety during our life. It can be protective as a warning that we need to pay attention to something and protect ourselves. Certainly the person’s coping skills need to be healthy. (driving during rush hour in an unfamiliar area - pay attention, choose a different route vs road rage). But, we are also resilient. We can often manage the stress without relying on another pill. This is where an evaluation comes in. It will assist in determining whether the anxiety is a normal response or has reached a clinical level that needs intervention. Initially, three factors that should be considered: Intensity (severe vs unpleasant, constant vs periodic), interference (interferes with daily living experiences), appropriate ( is it in proportion to the experience). Using anxiety as the default cause for a physical symptom and potential medical condition creates more problems than it solves. A premature, and often faulty, diagnosis of anxiety can lead to increased anxiety, a distraction from the medical condition that should be monitored, misuse of mental health medications, a deterioration of functioning, and then some. I hope the medical profession will heed best practice standards and stop prematurely using anxiety as the default cause of a physical symptom/ medical condition.

I started vibrating in my left leg in February. Then full body at the end of April.

Hello @jos and welcome to Mayo Clinic Connect, a community of members getting and giving support to one another. When you say that your vibrating started in your left leg and then progressed to full body, was there a progression of your symptoms spreading or did it suddenly impact your whole body?

Have you sought care yet?

I’ve been having vibrations for the last six months. I went to one neurologist and said it was anxiety. I went to a second opinion neurologist and he said it was restless body syndrome he thought. I was on gabapentin for six weeks and it really didn’t make too much of a difference. I woke up yesterday feeling really weird and I believe it’s the gabapentin I tried calling my neurologist and he never called me back. I went to the pharmacy and asked him how to get off of the gabapentin and he explained it to me so I am getting myself off of the gabapentin. Going to call the doctor again today and if he doesn’t call me back I’m getting a new neurologist. Very frustrating. I’m going to call my primary doctor also and tell him what’s going on.

Do you yet know why you vibrate? Mine started in my legs 3 years ago and is now everywhere. My 'next step' is another 6 months away. Also have many other symptoms but I believe my snow vision is caused by whatever is causing me to vibrate.

I HAVE BEEN DEALING WITH INTERNAL VIBRATIONS FOR 10 YEARS. NEUROLOGIST HAS RULED OUT MS AND PARKINSON. I HAVE HAD A SPINAL TAP. REMOVED ALL MEDICATIONS. THE MEDICAL COMMUNITY INITIALLY BELIEVES YOUR NUTS. I HAVE APPLIED FOR MEDICAL CANNIBIS AT THE AGE of 73
CHECK BACK IF HAS ANY EFFECT I WILL POST.