Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

Interested in more discussions like this? Go to the Neuropathy Support Group.

@jimmy370

Yes I do! It’s the worst medical problem you can have! I tried all the medications! Only to hear from the Doctors, your just going to have to live with it! So Depressing!

Jump to this post

Have you tried any alternatives therapy or lifestyle changes to see if you have any improvements?
https://www.foundationforpn.org/living-well/

REPLY

Have been dealing with peripheal neuropathy in my legs since 2007. Now reached the point I walk with a cane and the balance is becoming a real problem. No pain but. not steady on my feet at all. No falls in the past year or so but can see it coming. Also have sc lung cancer, right lung, pulmonary fibrosis, chronic pancreatitis, on Neuropathy I s my main concern.going skin cancer and just in the middle of a case of shingles. Right now have a bad case of being P.O.'d!! In good shape for the condition I'm in. Still function fair.

REPLY

Somehow the text got scrambled.
Should read..... On going skin cancer and neuropathy is my main concern

REPLY
@jimmy370

Yes I do! It’s the worst medical problem you can have! I tried all the medications! Only to hear from the Doctors, your just going to have to live with it! So Depressing!

Jump to this post

REPLY

@jimmy370 Where us your neuropathy? Have you had it long? Tried anything that worked? I'm going to a neurologist next month to see if anything can be done. Hope it's too late.

REPLY
@shamrock5jeg

@jimmy370 Where us your neuropathy? Have you had it long? Tried anything that worked? I'm going to a neurologist next month to see if anything can be done. Hope it's too late.

Jump to this post

Seem to be having a keyboarding problem today. I hope it's NOT too late!

REPLY
@shamrock5jeg

Have been dealing with peripheal neuropathy in my legs since 2007. Now reached the point I walk with a cane and the balance is becoming a real problem. No pain but. not steady on my feet at all. No falls in the past year or so but can see it coming. Also have sc lung cancer, right lung, pulmonary fibrosis, chronic pancreatitis, on Neuropathy I s my main concern.going skin cancer and just in the middle of a case of shingles. Right now have a bad case of being P.O.'d!! In good shape for the condition I'm in. Still function fair.

Jump to this post

@shamrock5jeg, Good evening, and thanks for your post about balance. This week I purchased my first walking cane. We are getting ready to visit grandchildren after a long COVID wait. One of my legs...the right one, has begun to collapse as I walk across a parking lot or lawn. And....the pain level has decided to increase during the day. It is not easy to introduce a cane into your life. You have to change the way you take a step, leading with the foot on the left while the cane takes the place of the right foot with its crazy ways.

I haven't figured out how to reduce the pain a little more so I can at least get back to the produce section at the market. How do you handle carrying your water bottle, pocketbook, and cane while you make selections? Then there is carrying the bags in the house, sorting the items, and placing them in the pantry or refrigerator? Because I was wearing a mask I was also out of breath.

Wow......my education involves a lot of practice. And how long does it take before you stop leaving your cane at the cash register?

You are dealing with a lot of issues in your legs since 2007. I just started. I am cheering you on and hoping to read more posts about how you address your neuropathy challenges.

May you be safe and protected from inner and outer harm.
Chris

REPLY

@artscaping. Made about 21 canes before I had my problem. Had over 450 trees on my land, was retired and bored. Gave all but 2 away. Luck I guess or intuition! Used a cane once in awhile until my wife and daughter passed away then went full time with it. Met a woman 5 yrs ago that loved dancing. Kept her dancing I kept my country music, put the two together and soon I put away the cane and we danced away the nights. The balance problem came on full blast, no more dancing. The legs got worse and the balance got worse. Still trying to find an answer. Cancer came along with other problems. Trying to cope but it's hard. Had the same problems as you. I fight and try to believe it will get better. Don't ever give up. You will find ways to adjust, yea it's hard and try not to throw your cane at someone! I have had to retouch the artwork on mine a few times. My lady friend is great support. Drive over 30 mi each weekend to see her. Pack the car in the Florida heat.....fun. Unpack in Florida heat....more fun. Oh well, fun when I get there. Don't ever give up my friend, bite the bullet and fight. There is always a chance, always!

REPLY
@shamrock5jeg

Have been dealing with peripheal neuropathy in my legs since 2007. Now reached the point I walk with a cane and the balance is becoming a real problem. No pain but. not steady on my feet at all. No falls in the past year or so but can see it coming. Also have sc lung cancer, right lung, pulmonary fibrosis, chronic pancreatitis, on Neuropathy I s my main concern.going skin cancer and just in the middle of a case of shingles. Right now have a bad case of being P.O.'d!! In good shape for the condition I'm in. Still function fair.

Jump to this post

@shamrock5jeg
Hello,
I’ve had Neuropathy over 30 years and it traveled from my feet to my waist. Because my nerves are now dead I don’t have the horrible pain anymore but my feet are numb.
I’ve had Epilepsy for 54 years and have awful balañce problems. I fall frequently and am going to start balance training soon with a physical therapist. Have you considered therapy?
Take care,
Jake

REPLY
@artscaping

@shamrock5jeg, Good evening, and thanks for your post about balance. This week I purchased my first walking cane. We are getting ready to visit grandchildren after a long COVID wait. One of my legs...the right one, has begun to collapse as I walk across a parking lot or lawn. And....the pain level has decided to increase during the day. It is not easy to introduce a cane into your life. You have to change the way you take a step, leading with the foot on the left while the cane takes the place of the right foot with its crazy ways.

I haven't figured out how to reduce the pain a little more so I can at least get back to the produce section at the market. How do you handle carrying your water bottle, pocketbook, and cane while you make selections? Then there is carrying the bags in the house, sorting the items, and placing them in the pantry or refrigerator? Because I was wearing a mask I was also out of breath.

Wow......my education involves a lot of practice. And how long does it take before you stop leaving your cane at the cash register?

You are dealing with a lot of issues in your legs since 2007. I just started. I am cheering you on and hoping to read more posts about how you address your neuropathy challenges.

May you be safe and protected from inner and outer harm.
Chris

Jump to this post

Well, Chris, I can see you and I are going to have some discussions about logistics. It is a lot of working these things out, but you are such a bright, smart lady you'll have no problems. You may not like the solutions, but so what, eh? None of us is too thrilled using a cane. Be sure you have a pretty cane, though. One that reflects you and your personality. I found that very important. In fact, I have a small collection....some from England with flowers, actually England makes a great cane, very strong and dependable. You must have comfy handles and good balance and be sure it's the right height for you and only you.

The market, in your town may be different, but use whatever basket they offer....put your things including cane inside the basket....if they don't have them, then you have to have something to put things on you don't have to carry. I love my walker for that reason...

blessings in your new steps...elizabeth

REPLY
Please sign in or register to post a reply.