Thyroid? Or something else? Constant internal shakiness

@jewles63 - Thyroid imbalce certainly does have all kinds of symptoms!!! I told my endocrinologist about the vibrations but all she wanted to do was put me on a 24 hour halter monitor. I really don’t think it’s my heart because when it happens i check my pulse and it’s normal. I also listened to my heart with my stethoscope (I’m an RN) and it’s normal as well. So strange. I feel like no matter how well I explain this to any doctor they will never figure it out. I’m just praying it too shall pass. For me, they mostly happen in the middle of the night after I’ve been sleeping for several hours. Wondering if it’s some kind of positional neuropathic effect from compressing certain muscles/nerves in my neck?!?!?? Idk. I should get halter monitor results this week as well as repeat thyroid labs to see if my meds are working to suppress it. Prayers for everyone on here dealing with difficult symptoms.

Hi I too also experience internal vibrations with unknown etiology. My neurologist thinks it is stress associated with the pandemic and prescribed Gabapentin. I am wondering if with more time you are discovered what is causing your symptoms, possible treatment or if they remain? Please update me- Thank you

I suffer from Graves disease and am looking to possible thyroid removal. Would you please share the name of the doctor at the Mayo clinic in Jacksonville that has performed more than 2500 Thyroidectomy's? Thank you so much!

Hi I too also experience internal vibrations with unknown etiology. My neurologist thinks it is stress associated with the pandemic and prescribed Gabapentin. I am wondering if with more time you are discovered what is causing your symptoms, possible treatment or if they remain? Please update me- Thank you

Happy St. Patrick's Day
I think everyone is Irish on this day. lol
Anyway, due to having pink eye and just starting eye meds, I'm not going back to read all your posts. So, If I say something you already addressed, I'm sorry!

I've had a sluggish thyroid for years and years. With meds, it has kept it normal. All of a sudden, about 3 weeks ago, I went to the neurologist (will tell you about it in a minute) and she ordered blood work. My thyroid number was way, way, way low. My PCP had me take it again (3 weeks later) and the result was the same. He is reducing my dosage. It must explain why I am so tired and why when I look at food I put on 10 pounds. He will redo the blood work in 3 months after I've had time to get the new dosage. I am hoping it will arrive this week from my mail away pharmacy.

That's the story about my thyroid. Now the shaking. Another story...….
This year I've had 2 spinal surgeries (Feb. my cervical spine and Oct.my lumbar spine). As far as I am concerned they were a success because it too away the chronic pain (24/7) that I experienced for over 10 years, probably closer to 15. Just a couple of months before my lumbar surgery, I noticed that when I sat, I couldn't sway my right foot, lift my toes or move my toe at all. I also noticed that although it was not the same as the right, my left foot did not feel normal, either. My neurosurgeon took ALLLLLLL SORTS OF TESTS and could not figure it out. He said if it didn't improve after the lumbar surgery, he wanted me to see a neurologist.

Not only did my symptoms NOT improve, they were worse. I needed to use a cane to walk and I had s few falls. This is something you don't want to do after spine surgery. Off to the neurologist I went...….

During my preliminary exam she noticed my hands quivered. I did notice that starting to happen, too. My mom, son and cousin also have (or had) quivering hands. It did not prevent any of them from writing or doing anything. As a matter of fact, my mother was a typist and my son does nuclear medicine tests that require him to give injections. Neither had a problem. Then, the doctor looked in my mouth. She noticed the roof of my mouth was quivering, too. I never felt that.

She reviewed my MRI (ordered by the neurosurgeon) and noticed that a bunch of nerves are clumping together. I also still have stenosis. However, NONE of these hurt. The doctor who performed the test said I have SIGNIFICANT nerve damage coming from my lumbar spine and S1. That is all he would say. I meet with the neurologist Tuesday, followed by an appointment with the neurosurgeon. It is my hope that they will be able to give me a diagnosis (more than neuropathy in my feet) and come up with some sort of a plan of action to slow down the neuropathy.

The reason I al telling you all this is because I have some of the similar symptoms and I wanted you to know about who I have seen and tests they performed. Will share more after my appointments; that is if they give me more information.

Happy Sunday...…
Ronnie (GRANDMAr)

Hello. I'm new to the site
I've been hypothyroid for years. The last month or so my numbers went low so she decreased my meds at the same time I started having muscle or nerve twitching in my calves and feet. Went for more bloodwork three weeks into new meds and my numbers are above the normal reading. I was wondering if anyone else had the same problem with legs and could it be tied to my thyroid. Thanks Pat

Hello, I think this has been discussed on here, but I'm new and looking for any help that I can get. I have this weird and worrisome internal vibration (that's the only way to describe it) in my neck area and chest area. It started in September/October 2019. I actually had an ablation done on my heart due to PVC's. I was in bigeminy and trigeminy off and on for days! It was horrible and I could not function. The ablation did not get rid of the PVC's, but lessened the feeling of them, but they were still there. My EP put me on Flecainide about four weeks after the ablation because they came back. I currently take Flecainide 75mg twice a day. I've also been to the ER several times for this and they tell me it's anxiety. It's mainly at night when I lay down, but now it's happening during the day. Way worse at night. I've had stress test, echo, and calcium score, all of which were normal. The only thing that was not normal was my carotid artery scan, and that came back with a 1-49% blockage, my cardiologist told me to clean up my diet and exercise more. My insurance company called me and the nurse there said for me to get a second opinion on the carotids. I see a cardiologist at UTSW in Dallas next month. The weird thing is that if I put my hands up near my neck and throat area, I can feel my pulse there, and it feels like it's bouncing around, But, my pulse is normal in my wrist and carotid area on neck. The EP did say that the Flecainide couple be messing with the the nerves ?? I'm so tired of this and it's so scary. I go to bed every night not know if I'm going to wake up. Anyone have any suggestions? Thank you!

How strange. I too have the internal tremors in my hands mainly.....with overall stiffness and muscle weakness mainly in upper extremities. I also have noticed tiny cramping in my foot area (from where toes are and into the arch). Its really weird. My ft4 is 0.95, my ft3 is 2.9 and rt3 is 17.5, tsh ranges from 1.4 to 2.2. Family history of thyroid issues on moms side. Can this be related to thyroid?