Hearing loss and thyroid medication: Is there a connection?

Posted by ainsleigh @ainsleigh, Apr 20, 2021

My Endocrinologist decreased my Synthroid medication and since then my hearing loss has increased. I am trying to connect with her to discuss it. Has anyone had
a similar experience? Would appreciate input.
Thanks,
Ainsleigh

Interested in more discussions like this? Go to the Hearing Loss Support Group.

Profile picture for ess77 - Elizabeth @ess77

@colleenyoung Colleen, I just sent this message to Julie, I thought, but must have not clicked on your link below re thyroid and tinnitus. Can you help me get this to her????? I'm adding her address @julie04, I think? Thanks my friend. bless you, elizabeth

Jump to this post

Julie got your message Elizabeth. By @mentioning her by her @username @julieo4, she was alerted to your post. Do you see her reply to you?

REPLY
Profile picture for Julie, Volunteer Mentor @julieo4

Here is a helpful brochure about how to buy a hearing aid.

Jump to this post

Thank you, Julie. I've been looking online at the Panasonic 4 handset cordless phone with amplified volume, 3 band equalizer, and other talking features that look interesting. It is telecoil compatible. Does this sound like something good for an older woman living alone with hearing loss? I also ck'd the links you sent re loops and telecoils, so I'll chat with the folks at Mayo at that appt re hearing aids.
Thanks for the hearing aid links. I've read the ones from Mayo with 3 or 4 different aids. I'll ck this out. Other recommendations?

Thanks again for your help. I'm tired and heading to bed. It's 9 here, getting late for me since I've had a recovery few days from a little procedure monday. be well, be blessed. elizabeth

REPLY
Profile picture for Colleen Young, Connect Director @colleenyoung

Julie got your message Elizabeth. By @mentioning her by her @username @julieo4, she was alerted to your post. Do you see her reply to you?

Jump to this post

Yes, and she's really helping me get started on this next part of my journey. I need to address this hearing loss and deal with it. Means I don't eat for a while, but I'll figure it out....I'm meeting with Mayo specialist to begin the hearing aid selection process, and am getting a new phone with additional audio help as well.
Thanks for the help....again.
I'm tired, off to bed. It's after 9 and this has been a tiring week w/the silly procedure Monday and breathing issues. Doing well now, just not back yet.
Blessings, my friend. elizabeth

REPLY
Profile picture for ess77 - Elizabeth @ess77

Thank you, Julie. I've been looking online at the Panasonic 4 handset cordless phone with amplified volume, 3 band equalizer, and other talking features that look interesting. It is telecoil compatible. Does this sound like something good for an older woman living alone with hearing loss? I also ck'd the links you sent re loops and telecoils, so I'll chat with the folks at Mayo at that appt re hearing aids.
Thanks for the hearing aid links. I've read the ones from Mayo with 3 or 4 different aids. I'll ck this out. Other recommendations?

Thanks again for your help. I'm tired and heading to bed. It's 9 here, getting late for me since I've had a recovery few days from a little procedure monday. be well, be blessed. elizabeth

Jump to this post

Phones are labeled with an M/T rating. M is for microphone; T is for telecoil. The highest rating would be M4/T4. That means that a phone has both a strong microphone and a strong telecoil. Many people say the 3 rating works well enough. Best to try before you buy whether it's a landline phone or a cell phone. Often the sales people don't have a clue about what this all means. YOU have to be assertive. Don't feel guilty about that You have a right to try the technology before you buy it. It would be wise to get the hearing aids first, and try the phones during your hearing aid trial period. .

REPLY
Profile picture for Julie, Volunteer Mentor @julieo4

Phones are labeled with an M/T rating. M is for microphone; T is for telecoil. The highest rating would be M4/T4. That means that a phone has both a strong microphone and a strong telecoil. Many people say the 3 rating works well enough. Best to try before you buy whether it's a landline phone or a cell phone. Often the sales people don't have a clue about what this all means. YOU have to be assertive. Don't feel guilty about that You have a right to try the technology before you buy it. It would be wise to get the hearing aids first, and try the phones during your hearing aid trial period. .

Jump to this post

Great. I noticed several phones on display in the hearing aid area at Mayo Jax, so will ck them out too. I've been dealing with a bunch of heal issues most of my life, Julie and have learned to be assertive and proactive concerning my health. You are helping me know enough to do my work more easily.
thanks, bless you and be well. elizabeth

REPLY

Yes, it is shocking. In the early 2000s HLAA circulated a brochure on this topic that had been developed by a medical organization that is no longer in existence. At some point this brochure was no longer available. It would be nice if this info was more readily available.

REPLY

Some drs don’t know about connection. They know their field and decide what they believe is best for you. It is up to us to look out for issues; esp now w technology. Then bring it up to dr. They just can’t be everything to everyone. My oncologist said after the fact that I prob list some hearing after chemo. For me, even though I am hearing impaired, I wouldn’t have asked for different chemo. That’s just me though. Good luck.

REPLY
Profile picture for happy2bhere @happy2bhear

Some drs don’t know about connection. They know their field and decide what they believe is best for you. It is up to us to look out for issues; esp now w technology. Then bring it up to dr. They just can’t be everything to everyone. My oncologist said after the fact that I prob list some hearing after chemo. For me, even though I am hearing impaired, I wouldn’t have asked for different chemo. That’s just me though. Good luck.

Jump to this post

No question about it, we have to make some choices when it comes to our long term health. Chemo is known to cause hearing loss in some people. It also is known to cure issues that are life threatening. One can learn to live well with hearing loss by taking a positive approach. It sounds as if you have done that.

There is no question that the medical field today is very highly specialized and focused in specific areas. If it's not within a professional's specialty they have to refer to another specialist. Often it seems that hearing loss is brushed aside as being of lesser importance. Even in primary care, if a patient doesn't mention concerns about hearing loss in an annual appointment, they are rarely asked about their hearing by the physician. Too often it's not mentioned by the patient because they are embarrassed by it. This stigma issue prevents millions of people from getting the help that would be beneficial to them.

I am attaching a copy of a newsletter. On page 2 there is an article about this issue, along with a survey sponsored by Johns Hopkins. I hope you and others will take time to fill it out. (NOTE: I was unable to copy the survey link, so used the attachment.)

Shared files

2021 August FV issue FINAL (2021-August-FV-issue-FINAL.pdf)

REPLY
Profile picture for Julie, Volunteer Mentor @julieo4

No question about it, we have to make some choices when it comes to our long term health. Chemo is known to cause hearing loss in some people. It also is known to cure issues that are life threatening. One can learn to live well with hearing loss by taking a positive approach. It sounds as if you have done that.

There is no question that the medical field today is very highly specialized and focused in specific areas. If it's not within a professional's specialty they have to refer to another specialist. Often it seems that hearing loss is brushed aside as being of lesser importance. Even in primary care, if a patient doesn't mention concerns about hearing loss in an annual appointment, they are rarely asked about their hearing by the physician. Too often it's not mentioned by the patient because they are embarrassed by it. This stigma issue prevents millions of people from getting the help that would be beneficial to them.

I am attaching a copy of a newsletter. On page 2 there is an article about this issue, along with a survey sponsored by Johns Hopkins. I hope you and others will take time to fill it out. (NOTE: I was unable to copy the survey link, so used the attachment.)

Jump to this post

Hi, I took the survey. They asked if they could contact me for more info. I gave them contact info. Glad to help. The absolute worst issue for hearing impaired is contact info and it’s only a phone number. Absolutely the rudest companies do this and there are many.
Internet issue is all the videos wo closed captioning! I am amazed daily that top people put out something and want everyone to share, yet no captions. I am sad that it will take gov regulation to mandate captions the way they did for tv. Wish people would just add them bc it’s the right thing to do.

REPLY
Profile picture for happy2bhere @happy2bhear

Hi, I took the survey. They asked if they could contact me for more info. I gave them contact info. Glad to help. The absolute worst issue for hearing impaired is contact info and it’s only a phone number. Absolutely the rudest companies do this and there are many.
Internet issue is all the videos wo closed captioning! I am amazed daily that top people put out something and want everyone to share, yet no captions. I am sad that it will take gov regulation to mandate captions the way they did for tv. Wish people would just add them bc it’s the right thing to do.

Jump to this post

Thank you for following through on the survey. I agree with you about captions. Are you familiar with the speech to text apps that are available? They work quite well. Many HH people use the app in sync with videos that are not captioned. It's not perfect, but it helps.

FYI: A major effort by a national board member of HLAA managed to circulate a petition for Zoom to include automatic speech recognition (ASR) to their platform. That petition got close to a million signatures and while Zoom resisted this for months, they have now added ASR. The only catch is that it must be activated in the 'host' settings by whomever is scheduling meetings. So, the people who need this, those of us with hearing loss, must ask them to activate it prior to the Zoom event. Once it is activated by a host it will remain activated unless they reset it to be inactive. Only those who need/want it have to see it. It's activated by the participant by one of those 'buttons' on the bottom left of the computer screen.

The only reason we have made progress on issues like this is because the people who want the change get involved. HLAA provides the opportunity to get involved. That actually even involved those TV captions that were mandated back in the early '90s.

So much to learn. Have you considered joining HLAA? http://www.hearingloss.org

REPLY
Please sign in or register to post a reply.