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John Hopkins Webinar on transplant recipients and vaccines
Transplants | Last Active: Jan 13, 2022 | Replies (141)Comment receiving replies
Very helpful information, which concerns me.that im.not hearing more from.Mayo itself as to some of these studies. I will.admit I keep hearing the same mantra, "We are following the CDC and WHO recommendations" which is not telling us much. I have always respected the opinion of my Doctors directly but lately it seems they are just quoting the mainstream media as to what to say. Im told we should not listen to erroneous sources but when information is wanted and your primary sources are quiet it makes it hard to not listin to what appears to be good information for people who are some bodies Doctors talk about all aspects of the information available. I'm really having a hard time dealing with the lack of data from Mayo Doctors these days. I just sent a request to my team about getting an antibody test since I did come in contact with individuals who had confirmed covid but after the fact. I did not have any symptoms but based on some of the information out there I could have been asymptomatic and not know it. The response I got was a basic We are following CDC and WHO recommendations and are suggesting all patients follow those guidelines. Which really upset me since I've come to relay on the opinions of my Mayo Doctors not what CDC says. What are we paying them for? It's really got me concerned as to what is driving the current campaign about vaccinations. Oh well I'll just keep to the original advice I received during my transplant. Mask up during virus seasons, wash my hands and take precautions. Until I feel the information im getting is from my doctors and not from the government.
Replies to "Very helpful information, which concerns me.that im.not hearing more from.Mayo itself as to some of these..."
The drive for vaccination is probably the only thing that will eventually bring protection for us transplant patients. We were told that it would be likely our immunosuppressed systems would not develop the antibodies from the vaccine to provide full protection. And, the research certainly proves that. So, we are going to have to keep being masked and cautious until more people are vaccinated and the virus continues to wane.
For those of you that are Kidney recipients from Florida, we have a monthly Education/Support group on Zoom for our patients and Dr Martin Mai has been providing updates for our patients including studies that are being completed with the kidney transplant patients here at Mayo. I would encourage any of our patients to attend. For the other Mayo sites, you could request that your Social Workers have a physician attend and provide an update at their meetings.
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@danab- I hear you, my friend. I think that the problem is more that your doctors, whether Mayo doctors or a clinic doctor somewhere in the deep woods, just can't answer your questions because they simply don't know. Their egos won't let them admit it. Some doctors have huge egos as you know. It's so frustrating not to have answers to matters of such importance. I know that you have struggled with this a lot so the time might be to just go ahead and decide, one way or the other until there are more answers and answers that make your doctors appear smart!